Experiences with

Infective conjunctivitis

Hi folks, It's vaccine time again. Arrangements for Covid vaccines for immunosuppressed people vary around the UK. In Scotland we have generally been advised to wait to be contacted, when we will be sent an appointment or invitation to book. But in Spring 2025 Scottish immunosuppressed people are able

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hican you take benepali and methotrexate inj. as normal when having covid booster

Good Evening all .x Question …I got a call for the Covid Vaccine Is it still important we get the spring jab ? I’ve never missed one . Just wondering what the majority think .. I’m always quite poorly after having it ,, Thanks xxx

Thank you all for your responses to my Covid and Paxlovid inquiries. Since my symptoms are much like a head cold and I don’t feel comfortable going off my brukinsa for 2 weeks I’ve decided not to take the paxlovid. My doctor is ok with my decision. . I had it in 2022 with similar symptoms after 3 vaccinations

I'm still going through a flare and Pred has been lowered to 12mg since 22nd March, I am suffering with exhaustion, absolute tiredness, brain fog and memory loss which appear to be getting worse but joint and muscle pain are not as bad as they were when I was initially diagnosed. I have an appointment

Just tested positive for Covid. Is it treated like anyone else who has covid? I called the weekend on call nurse at MD Anderson. She told me to go to urgent care and get paxlovid. She also told me to not take my brukinsa while on it and talk to my doctor Monday. I’ve been taking Tylenol for fevers and

Hello helpful people, I'm sorry but I've completely forgotten.... should I skip a week of Methotrexate before the covid jab, or after it, or not skip at all ?

I was perfectly healthy prior but had my Flu and Covid jab Oct 5th 2024. 14 days later I go down with PMR and although tappering I am currently on 11mg daily. I think thats was a triggered it. So I'll skip my jab.

I am writing for my sister who is reluctant to communicate with anything other than facebook. Hopefully she will see the value in this forum. I have been subscribed to the advanced prostate cancer forum and have found it very useful. My sister was having all sorts of symptoms including postural orthostatic

hi, can someone please remind me how long should I leave my spring Covid booster before or after Rituximab infusion I have just been invited but I am hoping for my infusion the middle of April Thank you 😉

Hello I have always had such fantastic help from this page and the advice I've been given ive tried to follow. I have been having on going issues with my thyroid since I had covid in 2022. My gp has basically told me it's all in my head and has been utterly useless . I recently saw a new gp who told

I have been invited to book another Covid vaccine. My last one was October. Is there any official advice to continue with all vaccines offered? I have PMF intermediate 2?

hi all. Just a quickie. My haematologist in uk is recommending I continue to have the Covid vaccination. what’s the wider view on this please. I have PV and on Rux for the last 12 months Thanks.

We are all indebted to researchers who found that transplant recipients generally do not have robust responses to Covid vaccines. In my own case, due to my immunosuppression I generated no antibodies and, of course, I don't have a fully functioning immune system should I become infected. Researchers

In December 2023 I was diagnosed as Covid positive. Two days later I developed a very itchy red spot on the inside of my right knee. It looked like an insect bite. The following day I had several red spots in the same place. Within a week I had developed patches of eczema all over my body from the neck

Hi I don't know if anyone can help me. I wondered if anyone is taking Tirosint capsules or the oral solution. I recently had an appointment with the endocrinologist at the hospital to discuss medication. He said that any medication that is on the British National Formulary is available to patients

I have booked for a booster Covid jab on the basis that as Preds increases vulnerability it is a sensible thing to do. And then I thought, er…but is it? Mrs GnT has decided to participate partly based on her unpleasant experience with statins Although this must have been discussed before I just wondered

please has anyone any useful tips as have just been diagnosed with long covid. All the PA symptoms plus utter exhaustion I have increased my IM injections but doesn’t help very much.In my late 80s which doesn’t help either.Thank you for reading.

The UK Kidney Ecosystem at the University of Liverpool is hosting an online event on April 4th (12 PM - 1 PM) for individuals with lived experience of IgA Vasculitis (Henoch-Schönlein Purpura). This event is a vital opportunity for those affected to share their insights and help shape a new clinical