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Immunosuppressants
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Help: How to treat cold sores?
Hello all. I have a nasty but relatively small cold sore in the corner of my mouth...am a bit run down after a little urology op under general anaesthetic 3 weeks ago...was gradually recovering when a houseguest came for the past week...meanwhile was managing a flare of big eroding lesions in my hard
Hello all. I have a nasty but relatively small cold sore in the corner of my mouth...am a bit run down after a little urology op under general anaesthetic 3 weeks ago...was gradually recovering when a houseguest came for the past week...meanwhile was managing a flare of big eroding lesions in my hard
Barnclown
in
LUPUS UK
9 years ago
Do immunosuppressants and sushi mix?
came home my tummy was doing stunts and show and I was up all night I’m not sure if Imagined this having this conversation when I started taking rituximab infusion but I think I'm meant to stay away from sushi (or perhaps I am thinking about a tv show referring to pregnant women) Has anyone on
immunosuppressants
came home my tummy was doing stunts and show and I was up all night I’m not sure if Imagined this having this conversation when I started taking rituximab infusion but I think I'm meant to stay away from sushi (or perhaps I am thinking about a tv show referring to pregnant women) Has anyone on
immunosuppressants
wotshernameagain
in
LUPUS UK
9 years ago
Trouble swallowing
I have been diagnosed with systematic scleroderma and it has affected my stomach and esophagus, among other things . My treatment is lansopranzole 30mg and domperidone before each meal. My rheumatologist has treated me with an immunosuppressant infusion called mabthera (drastic substance called rituximab
I have been diagnosed with systematic scleroderma and it has affected my stomach and esophagus, among other things . My treatment is lansopranzole 30mg and domperidone before each meal. My rheumatologist has treated me with an immunosuppressant infusion called mabthera (drastic substance called rituximab
boome
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
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Lupus, immunosuppressed and catching lots of viruses
I've had a bit of a tough time since January. I've often caught the odd extra cold than my friends but this year had been ridiculous. I started with a chest infection in January for which I had 2 weeks off work. Since then I have just had cold/flu virus one after another. I'm now left with a constant
I've had a bit of a tough time since January. I've often caught the odd extra cold than my friends but this year had been ridiculous. I started with a chest infection in January for which I had 2 weeks off work. Since then I have just had cold/flu virus one after another. I'm now left with a constant
Sarah74
in
LUPUS UK
9 years ago
Drenched with sweat
I have read somewhere that Kwells can be helpful, but I'm not sure how compatible they are with
immunosuppressants
or antibiotics. I'm drinking loads of water, off spicy food ( I was anyway) but nothing seems to help. any suggestions would be much appreciated. Jora
I have read somewhere that Kwells can be helpful, but I'm not sure how compatible they are with
immunosuppressants
or antibiotics. I'm drinking loads of water, off spicy food ( I was anyway) but nothing seems to help. any suggestions would be much appreciated. Jora
Jora
in
NRAS
9 years ago
Chicken Pox
I know if I haven't had it I could need antibiotics if I do get CP but I'm on so many
immunosuppressants
and I'm not well myself at the moment (think its a flare but possibly a virus on top) that I'm wondering how easy it is for me to catch it again and if it's happened to anyone on here?
I know if I haven't had it I could need antibiotics if I do get CP but I'm on so many
immunosuppressants
and I'm not well myself at the moment (think its a flare but possibly a virus on top) that I'm wondering how easy it is for me to catch it again and if it's happened to anyone on here?
jlmack
in
NRAS
9 years ago
Mycophenolate mofetil - longer term experiences?
However, she is concerned about the potential risks during the longer term associated with taking high levels of
immunosuppressants
. I need to take tacrolimus for my liver but she wondered whether my mycophenolate could be reduced.
However, she is concerned about the potential risks during the longer term associated with taking high levels of
immunosuppressants
. I need to take tacrolimus for my liver but she wondered whether my mycophenolate could be reduced.
artytransplantee
in
ITP Support Association
9 years ago
Antibiotics & immunosuppression
Hi. I am currently on a hefty dose of Klaricid for a deep infection to my foot but don't know whether I should discontinue the Mycophenolate until the antibiotics are finished. My wbc is always low but this doesn't seem to affect me adversely. I haven't been able to get an answer from the surgery whilst
Hi. I am currently on a hefty dose of Klaricid for a deep infection to my foot but don't know whether I should discontinue the Mycophenolate until the antibiotics are finished. My wbc is always low but this doesn't seem to affect me adversely. I haven't been able to get an answer from the surgery whilst
Fennella02
in
LUPUS UK
9 years ago
are any of your chronic symptoms a degree stronger on one side of your body?
First, some background: Rheumatology instructed me to stop daily hydroxy 400mg last feb when blood tests prior to starting IV osteoporosis treatment found hypogammaglobulinaemia & leukopenia....nb for years before starting on oral immunosuppression, my gammaglobulins, complements, haematocrit & white
First, some background: Rheumatology instructed me to stop daily hydroxy 400mg last feb when blood tests prior to starting IV osteoporosis treatment found hypogammaglobulinaemia & leukopenia....nb for years before starting on oral immunosuppression, my gammaglobulins, complements, haematocrit & white
Barnclown
in
LUPUS UK
9 years ago
More on Prograf
I have read of patients who can manage without
immunosuppressants
and given that they are powerful drugs, it is an attractive proposition. I would be interested to hear your thoughts and experiences. Mike
I have read of patients who can manage without
immunosuppressants
and given that they are powerful drugs, it is an attractive proposition. I would be interested to hear your thoughts and experiences. Mike
Hidden
in
British Liver Trust
9 years ago
Immunosuppressant
My rheumy has mentioned immunosuppressants.imuran was one and methotrexate was the other.could anyone give me an idea of that these are like,side effects and benefits. Have people been taken off steroids before they start these drugs or is it a sliding scale process ? Do you tend to remain on plequnil
My rheumy has mentioned immunosuppressants.imuran was one and methotrexate was the other.could anyone give me an idea of that these are like,side effects and benefits. Have people been taken off steroids before they start these drugs or is it a sliding scale process ? Do you tend to remain on plequnil
amandajane76
in
LUPUS UK
9 years ago
Shingles when you're immunosuppressed
Of course its easy not to understand what is happening when you have a number of different ailments and sensitivities. So when I developed a swollen eye and red swelling on my forehead I assumed it was my usual sensitivity to sun. It wasnt - it developed into shingles. My RA pain is not too bad at the
Of course its easy not to understand what is happening when you have a number of different ailments and sensitivities. So when I developed a swollen eye and red swelling on my forehead I assumed it was my usual sensitivity to sun. It wasnt - it developed into shingles. My RA pain is not too bad at the
cathie
in
NRAS
9 years ago
Meaning of ECG
I had an ECG today and the printout from the machine said: Sinus rhythm Left atrial (something which implied a problem) Right bundle branch block 1. The cardiologist dismissed these as of no significance, but I'd still like to have some appreciation of what they mean. Any experts out there? 2. I'm
I had an ECG today and the printout from the machine said: Sinus rhythm Left atrial (something which implied a problem) Right bundle branch block 1. The cardiologist dismissed these as of no significance, but I'd still like to have some appreciation of what they mean. Any experts out there? 2. I'm
cgarmstr
in
Atrial Fibrillation Support
9 years ago
Immunosuppressants
Hi all just laid here thinking and thought I'd ask, been on
immunosuppressants
for 4 years due to stage 4 nephritis and neutropenia due to lupus really at first I was so scared taking them but the alternative was worse so i get them monthly from my gp use to be hospital have a blood test before and a
Hi all just laid here thinking and thought I'd ask, been on
immunosuppressants
for 4 years due to stage 4 nephritis and neutropenia due to lupus really at first I was so scared taking them but the alternative was worse so i get them monthly from my gp use to be hospital have a blood test before and a
poodlegal
in
LUPUS UK
10 years ago
22 year old Colitis + ITP
Does anyone suggest alternative methods for dealing with ITP as I don't like the idea of
immunosuppressants
of being any sort of long term solution.
Does anyone suggest alternative methods for dealing with ITP as I don't like the idea of
immunosuppressants
of being any sort of long term solution.
bk610
in
ITP Support Association
10 years ago
Lupus SLE urine test
Hi just would like to know if i should be worried.Done a dipstick urine test Billrubin +++ normal urobilinogen ,proteiene +++ gravity high and + blood a have nefrotic syndrome with first stage glomuler nefritis , i am on immunosuppressant Cellcept 500mg x2 daily.? Thank you
Hi just would like to know if i should be worried.Done a dipstick urine test Billrubin +++ normal urobilinogen ,proteiene +++ gravity high and + blood a have nefrotic syndrome with first stage glomuler nefritis , i am on immunosuppressant Cellcept 500mg x2 daily.? Thank you
Voeltjie
in
World According to Lupus
9 years ago
Working full time
Hello, I was diagnosed win lupus at 18 and once I managed to finish uni I have worked full time ever since. I'm 41 now. I work some of the time in an office and the other out on the road. I have in the last 2 months come down with 2 horrendous colds and/bad chests as other staff keep coming into work
Hello, I was diagnosed win lupus at 18 and once I managed to finish uni I have worked full time ever since. I'm 41 now. I work some of the time in an office and the other out on the road. I have in the last 2 months come down with 2 horrendous colds and/bad chests as other staff keep coming into work
Sarah74
in
LUPUS UK
10 years ago
CT scan 2015 info update #1
Hi all, I have examined recent research in the long running debate concerning the risks vs benefits of CT (Computed Tomography) scanning, with focus on how it may relate to our CLL/SLL community. My opinion, reflecting that of many CLL specialists and medical researchers, is that the public is being
Hi all, I have examined recent research in the long running debate concerning the risks vs benefits of CT (Computed Tomography) scanning, with focus on how it may relate to our CLL/SLL community. My opinion, reflecting that of many CLL specialists and medical researchers, is that the public is being
ThreeWs
in
CLL Support
10 years ago
Infliximab or Humira
Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other
immunosuppressants
- azathioprine, which I couldn't tolerate and mycophenolate together with colchicine which has made no difference.
Since then I've taken advice from my Rheumatologist and, since last April, have tried a series of other
immunosuppressants
- azathioprine, which I couldn't tolerate and mycophenolate together with colchicine which has made no difference.
Meggy7791
in
Behçet's UK
10 years ago
Anyone experiencing chronic low immunoglobulins
It's taken 4 years nearly, but my amazing rheumatologists have figured out that my version of (currently) seroneg SLE + Sjögren's features leukopenia + hypogammaglobulinaemia & our head of clinc has just referred me to immunology. I think it was recent persistent kidney infections + comprehensive metabolic
It's taken 4 years nearly, but my amazing rheumatologists have figured out that my version of (currently) seroneg SLE + Sjögren's features leukopenia + hypogammaglobulinaemia & our head of clinc has just referred me to immunology. I think it was recent persistent kidney infections + comprehensive metabolic
Barnclown
in
LUPUS UK
10 years ago
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