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Immune Function Improvements
Here are 3 separate videos from Patient Power by respected CLL experts explaining different aspects of our Immune Systems and what can be done to affect or cope with the problems that CLL may cause. - https://www.patientpower.info/video/can-ivig-improve-immune-function?autoplay=1 Can IVIG Improve Immune
Here are 3 separate videos from Patient Power by respected CLL experts explaining different aspects of our Immune Systems and what can be done to affect or cope with the problems that CLL may cause. - https://www.patientpower.info/video/can-ivig-improve-immune-function?autoplay=1 Can IVIG Improve Immune
lankisterguy
Volunteer
in
CLL Support
5 years ago
Careful with rituxan
I had six cycles of rituxan. You are right! Great drug. But it wiped out All of my B cells. I did not know. Just that I was sick constantly. Now, I not only can never take rituxan, but need IGG infusions every four weeks the rest of my life for decreased IGG and do not make good Immunity to immunizations
I had six cycles of rituxan. You are right! Great drug. But it wiped out All of my B cells. I did not know. Just that I was sick constantly. Now, I not only can never take rituxan, but need IGG infusions every four weeks the rest of my life for decreased IGG and do not make good Immunity to immunizations
Seaberry
in
NRAS
5 years ago
Chillax or persist in getting referred?
Rachel TSH 1.2 (Oct04); 2.2 (Apr05); 3.13 (Jun14); 4.33 (Dec15); 3.6 (Jun16); 3.116 (Jun18); 2.92 (Feb19); 2.63 (Mar19) Free T4 13.4 (Jul06); 12.7 (Dec15); 14.2 (Jun16); 11.5 (Jun18); 13.2 (Mar19) Free T3 4.4 (Jun18); 4.25 (Mar19) Endocrinology results (all February 2019) thyroid-stimulating
immunoglobulin
Rachel TSH 1.2 (Oct04); 2.2 (Apr05); 3.13 (Jun14); 4.33 (Dec15); 3.6 (Jun16); 3.116 (Jun18); 2.92 (Feb19); 2.63 (Mar19) Free T4 13.4 (Jul06); 12.7 (Dec15); 14.2 (Jun16); 11.5 (Jun18); 13.2 (Mar19) Free T3 4.4 (Jun18); 4.25 (Mar19) Endocrinology results (all February 2019) thyroid-stimulating
immunoglobulin
Cider_Woman
in
Thyroid UK
5 years ago
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Anti-Purkinge
For five days last week I had IVIg treatment I have to have blood test in August to see if it worked on Anti-Purkinge and if so the treatment will be repeated. I have Cerebella Atrophy associated with Anti-Purkinge it will take 4-6weeks to work. Has anyone else undergone this treatment and if so was
For five days last week I had IVIg treatment I have to have blood test in August to see if it worked on Anti-Purkinge and if so the treatment will be repeated. I have Cerebella Atrophy associated with Anti-Purkinge it will take 4-6weeks to work. Has anyone else undergone this treatment and if so was
Jacqui-A
in
Ataxia UK
5 years ago
Where did I go from here - if anywhere. High b12
Gp as a final shot sent off a sample of my blood to a consultant chemical pathologist for his input & he said he would check for macro b12 (b12 complexed to
immunoglobulin
- apparently!).
Gp as a final shot sent off a sample of my blood to a consultant chemical pathologist for his input & he said he would check for macro b12 (b12 complexed to
immunoglobulin
- apparently!).
Irismay
in
Pernicious Anaemia Society
5 years ago
COCO, RAIN CLOUDS AND POKÉMON HUNTING
Dear Friends, I wanted to write something a few days ago after our mutual beloved friend Barnclown (Coco) had spine surgery - to say she had come through it, bantered in a Fentanyl induced cloud with one of the surgeons, and then faced the long nights post surgery on a trauma ward. She is home now and
Dear Friends, I wanted to write something a few days ago after our mutual beloved friend Barnclown (Coco) had spine surgery - to say she had come through it, bantered in a Fentanyl induced cloud with one of the surgeons, and then faced the long nights post surgery on a trauma ward. She is home now and
lupusinflight
in
LUPUS UK
5 years ago
Understanding prognosticators early on
I've watched all the videos on Patient Power and Cll Society. I've read what I can. And now sifting through my initial blood test results is alarming me. Mind you now I haven't even yet seen the specialist--two top specialist appointments are scheduled over the next three weeks--and I don't know any
I've watched all the videos on Patient Power and Cll Society. I've read what I can. And now sifting through my initial blood test results is alarming me. Mind you now I haven't even yet seen the specialist--two top specialist appointments are scheduled over the next three weeks--and I don't know any
Sunfishjoy
in
CLL Support
5 years ago
Balance and Unsteadiness. Floaty. Help?
I had meningitis 6 months ago from IVIG medication. LP they thought it may have been viral but then later called it asceptic. I initially developed tremors, and my trunk/head kept swaying. Light flashes and falling. Those went away but now... The proprioception on my right body feels off. I'm unsteady
I had meningitis 6 months ago from IVIG medication. LP they thought it may have been viral but then later called it asceptic. I initially developed tremors, and my trunk/head kept swaying. Light flashes and falling. Those went away but now... The proprioception on my right body feels off. I'm unsteady
David_101
in
Meningitis Now
5 years ago
No Diagnosis
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second
Mybeautifulfriend
in
PSP Association
5 years ago
IVIG?
There is a nationwide shortage here for IVIG. I was receiving it every month for at least 1 year. It was helping. USA here. How is it going in UK?
There is a nationwide shortage here for IVIG. I was receiving it every month for at least 1 year. It was helping. USA here. How is it going in UK?
nanno
in
LUPUS UK
5 years ago
Listeria Hospital UK 🇬🇧 Outbrake
Well it’s all been going on AS some might know my dad was in hospital with organ failure from APRIL to May Also I suffered food poisoning wile visiting my dad and helping eat such sandwiches 🥪 Un knowing how deadly can be to those with immunity issues. Clearly as I have IGM immunity deficiency SHOULD
Well it’s all been going on AS some might know my dad was in hospital with organ failure from APRIL to May Also I suffered food poisoning wile visiting my dad and helping eat such sandwiches 🥪 Un knowing how deadly can be to those with immunity issues. Clearly as I have IGM immunity deficiency SHOULD
Hidden
in
Lung Conditions Community Forum
5 years ago
Hepb result meaning
Hi May I ask for some info what the result means. Hepbsurface ag reactive. Hepbcore total reactive. Hepbcore igm nonreactive. Hepbsurface ab non reactive. And is treatment needed or it depends what state liver is. Thank you
Hi May I ask for some info what the result means. Hepbsurface ag reactive. Hepbcore total reactive. Hepbcore igm nonreactive. Hepbsurface ab non reactive. And is treatment needed or it depends what state liver is. Thank you
Lalaloo2211
in
British Liver Trust
5 years ago
Students
Hi all, I have been asked if I would attend a Medical School based in the hospital I attend if it helps the future generation why not. I was put forward for IVIg treatment in January and I’m still waiting has anyone else had this treatment and if so did it help? I have Cerebella Atrophy only diagnosed
Hi all, I have been asked if I would attend a Medical School based in the hospital I attend if it helps the future generation why not. I was put forward for IVIg treatment in January and I’m still waiting has anyone else had this treatment and if so did it help? I have Cerebella Atrophy only diagnosed
Jacqui-A
in
Ataxia UK
5 years ago
Immunoglobulin results - lowered IgM in isolation
Hello everyone Hoping you are all as well as can be expected. I had my appointment at the Brompton and they have diagnosed small airways problems and did a ton of blood tests. Everything is in the average range apart from a strange anomaly of low IgM which is apparently rare and can indicate immune problems
Hello everyone Hoping you are all as well as can be expected. I had my appointment at the Brompton and they have diagnosed small airways problems and did a ton of blood tests. Everything is in the average range apart from a strange anomaly of low IgM which is apparently rare and can indicate immune problems
Hellodolly
in
Lung Conditions Community Forum
5 years ago
IVIG Anyone?
Hello, Has anyone had any success with ivig? I have polymyositis and was just in hospital for around a week for respiratory failure type 2, and was given 3 x 500ml of steroids, then 3 days of ivig. My oxygen was down to 70% sometimes, but mostly in the 80s. My lung function s not good, from 100% in January
Hello, Has anyone had any success with ivig? I have polymyositis and was just in hospital for around a week for respiratory failure type 2, and was given 3 x 500ml of steroids, then 3 days of ivig. My oxygen was down to 70% sometimes, but mostly in the 80s. My lung function s not good, from 100% in January
ClareR12345
in
Myositis UK
5 years ago
Silent Brittle asthma
Hi, am new to this group and hoping someone may have had similar in as much as help point me in a better direction? I have had asthma since childhood, pretty much being triggered by allergies and virus’. 9 years ago everything went haywire and I ended up being admitted for 2 weeks, out for 2 weeks then
Hi, am new to this group and hoping someone may have had similar in as much as help point me in a better direction? I have had asthma since childhood, pretty much being triggered by allergies and virus’. 9 years ago everything went haywire and I ended up being admitted for 2 weeks, out for 2 weeks then
Echoblue
in
Asthma Community Forum
5 years ago
Strange immune system bloods
My wife has SLE plus a host of other nasty stuff but recently we had IGg sub class bloods done which revealed : Low : IGg 3 and low IGg 4 the rest normal Low but just normal IGg IGm IGA She has always had low c3 and high c4 complements. Grateful for any thoughts or suggestions
My wife has SLE plus a host of other nasty stuff but recently we had IGg sub class bloods done which revealed : Low : IGg 3 and low IGg 4 the rest normal Low but just normal IGg IGm IGA She has always had low c3 and high c4 complements. Grateful for any thoughts or suggestions
jimbo1605
in
LUPUS UK
5 years ago
Encouraging fibroscan and elastography results
Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible to remain stable for decades. I’ve just had my fibroscan and shear wave elastography results, and they’re still in normal range 17 years after
Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible to remain stable for decades. I’ve just had my fibroscan and shear wave elastography results, and they’re still in normal range 17 years after
Skypony
in
PBC Foundation
5 years ago
Ibrutnib
No. 4 years ago, I developed a bleeding problem while in ibrutinib and they were going to give me a different medicine. When they screened me for the new meducine, they discovered my cancer was gone, so, I didn’t need to continue with any cancer medicine. I do, though, get IVIG and I take Bactrim and
No. 4 years ago, I developed a bleeding problem while in ibrutinib and they were going to give me a different medicine. When they screened me for the new meducine, they discovered my cancer was gone, so, I didn’t need to continue with any cancer medicine. I do, though, get IVIG and I take Bactrim and
Pepper122
in
CLL Support
5 years ago
Confused newbe re: low iron.
The hemotologist reported that if the next lab isn't good, it may be time to look at bone marrow because that's 'where the blood is formed'. But you all are talking about b12 and other things. 8/30/18 gastro doctor: mcv 75 and mch 24 ((low) and rdw 16.3 (high). 9/7 immune doctor: igg 1,2,3, and 4
The hemotologist reported that if the next lab isn't good, it may be time to look at bone marrow because that's 'where the blood is formed'. But you all are talking about b12 and other things. 8/30/18 gastro doctor: mcv 75 and mch 24 ((low) and rdw 16.3 (high). 9/7 immune doctor: igg 1,2,3, and 4
Lynne0762
in
Pernicious Anaemia Society
5 years ago
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