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Retinal Toxcity &Hydroxychloroquine
HI Everyone ,I haven't posted in a while just been jogging along quietly taking each day as it comes. I was diagnosed with Lupus in 1999 along with sjgreons .I have taken Hydroxychloriquine since diagnosis along with all the other meds associated with this disease. When first diagnosed I was being
HI Everyone ,I haven't posted in a while just been jogging along quietly taking each day as it comes. I was diagnosed with Lupus in 1999 along with sjgreons .I have taken Hydroxychloriquine since diagnosis along with all the other meds associated with this disease. When first diagnosed I was being
Mrsdoozer
in
LUPUS UK
2 years ago
After Trab worry
Hello fellow people who have had trabeculectomies. It has been 4 months since my right eye had a Trabeculectomy. Things are pretty good with a pressure of 9 which is very nice for me. I am thinking now about surgery in the other eye BUT am not keen on a Trabeculectomy. I'm afraid of the risks of
Hello fellow people who have had trabeculectomies. It has been 4 months since my right eye had a Trabeculectomy. Things are pretty good with a pressure of 9 which is very nice for me. I am thinking now about surgery in the other eye BUT am not keen on a Trabeculectomy. I'm afraid of the risks of
stephanie1977
in
Glaucoma UK
2 years ago
LUPUS
My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams, and Mepocrim tablets. She suffers with this on her face, neck, hands and arms. Please can anyone suggest anything that she can use or take that doesn't cost too much money? Thank you.
My mum suffers with Lupus. She has tried using Zerobase, several Steroid creams, and Mepocrim tablets. She suffers with this on her face, neck, hands and arms. Please can anyone suggest anything that she can use or take that doesn't cost too much money? Thank you.
Shorty09
in
LUPUS UK
2 years ago
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Simbrinza eye drops
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
TomS_GlaucomaUK
Administrator
in
Glaucoma UK
2 years ago
Sjogrens
Hi, has anyone experienced the loss of taste in there food with Sjogrens ? Any feed back would be grateful x
Hi, has anyone experienced the loss of taste in there food with Sjogrens ? Any feed back would be grateful x
Swanfull
in
NRAS
2 years ago
Rutin
Apparently Rutin is very rich in flavinoids which can help health in many ways. My husband and I ( both over 70) used to get leg cramps every week or two especially at night, since taking rutin we no longer have cramps. I think it took several months to really make a difference. It is also supposed
Apparently Rutin is very rich in flavinoids which can help health in many ways. My husband and I ( both over 70) used to get leg cramps every week or two especially at night, since taking rutin we no longer have cramps. I think it took several months to really make a difference. It is also supposed
muddledme
in
Glaucoma UK
2 years ago
Drusen/CRVO reporting to DVLA
Ive recently developed a central retinal vein occlusion in my right eye and also been told I have Drusen in both eyes. I believe this has to be reported to the DVLA. Vision in my right eye with glasses si 6/7.5 so not bad. My husband is arguing that no one has told me to report this so I don't need
Ive recently developed a central retinal vein occlusion in my right eye and also been told I have Drusen in both eyes. I believe this has to be reported to the DVLA. Vision in my right eye with glasses si 6/7.5 so not bad. My husband is arguing that no one has told me to report this so I don't need
Ecki
in
Macular Society
2 years ago
Steroid dose after operation
I am having an eye operation next week. It involves a retina peel because of a perimedial retina and an cataract operation. For a number of reasons, I am having it done under general anaesthetic. I know it will involve a steroid injection. At the moment, I am on 6.5 m . The anaesthetist has said I
I am having an eye operation next week. It involves a retina peel because of a perimedial retina and an cataract operation. For a number of reasons, I am having it done under general anaesthetic. I know it will involve a steroid injection. At the moment, I am on 6.5 m . The anaesthetist has said I
Hidcote
in
PMRGCAuk
2 years ago
How to defer DVLA test?
I have a DVLA test arranged for the 24th of this month and I have an appointment at my local SpecSavers as my eye prescription has changed since my last eye test in May. I was due to have my DVLA test last August but contacted the SpecSavers DVLA Team explaining I was having treatment for a corneal
I have a DVLA test arranged for the 24th of this month and I have an appointment at my local SpecSavers as my eye prescription has changed since my last eye test in May. I was due to have my DVLA test last August but contacted the SpecSavers DVLA Team explaining I was having treatment for a corneal
Windflower
in
Glaucoma UK
2 years ago
Article on steroid side effects (dated Nov 2018)
Albeit not a new paper but in context still significant. (??) The diagnosis of cataracts in steroid users may be because those on steroids tend to have more eye exam. (Which reminds me to book my next.) https://www.practicalpainmanagement.com/resources/news-and-research/polymyalgia-rheumatica-steroid-side-effects-new-findings
Albeit not a new paper but in context still significant. (??) The diagnosis of cataracts in steroid users may be because those on steroids tend to have more eye exam. (Which reminds me to book my next.) https://www.practicalpainmanagement.com/resources/news-and-research/polymyalgia-rheumatica-steroid-side-effects-new-findings
Exflex
in
PMRGCAuk
2 years ago
Possible UTI at time of Lucentis Injection
Hi guys, I am due to have my lucentis injection tomorrow (right eye WMD, left dry MD). I also have the symptoms of a UTI. I get them regularly due a kidney disease I have. I'll tell the hospital of course, and see my GP, but I wondered if anyone had any experience of turning up with a systemic
Hi guys, I am due to have my lucentis injection tomorrow (right eye WMD, left dry MD). I also have the symptoms of a UTI. I get them regularly due a kidney disease I have. I'll tell the hospital of course, and see my GP, but I wondered if anyone had any experience of turning up with a systemic
Sianana
in
Macular Society
2 years ago
Anyone had EMDR
Hi all like so many on here we all know how our mental health suffers following the sort of cardiac problems we all have. I’ve been told a few times due to My 2 x HT and quadruple CABG all within a month and what I’ve seen at work I probably have PTSD well that’s now been confirmed and I have to say
Hi all like so many on here we all know how our mental health suffers following the sort of cardiac problems we all have. I’ve been told a few times due to My 2 x HT and quadruple CABG all within a month and what I’ve seen at work I probably have PTSD well that’s now been confirmed and I have to say
Jako999
in
British Heart Foundation
2 years ago
Pilocarpine
I am already using Cosopt (twicde a day) and Monopost (once a day) but pressure still a bit too high so have been prescribed pilocarpine in addition (four times a day). Interested to hear from anyone who isusing Pilocarpine especially re side effects. Bit worried to read that it can cause retinal detachment
I am already using Cosopt (twicde a day) and Monopost (once a day) but pressure still a bit too high so have been prescribed pilocarpine in addition (four times a day). Interested to hear from anyone who isusing Pilocarpine especially re side effects. Bit worried to read that it can cause retinal detachment
Machicado
in
Glaucoma UK
2 years ago
COVID ... held it off as long as I could.
We came home from Sweden ..(to US). the only ones masked on the plane or in the airport save for a few people I gazed at like kindred spirits... and my husband, whose eyes were not covered by glasses. dang that cataract surgery got covid a week ago. the Sword of Damocles hung over me all week as we went
We came home from Sweden ..(to US). the only ones masked on the plane or in the airport save for a few people I gazed at like kindred spirits... and my husband, whose eyes were not covered by glasses. dang that cataract surgery got covid a week ago. the Sword of Damocles hung over me all week as we went
yogabonnie
in
PMRGCAuk
2 years ago
Hydroxychloroquine staining
I was prescribed a daily dose of hydroxychloroquine, alongside weekly methotrexate, when I was diagnosed with RA and Sjogrens 7 years ago. Two years ago I developed grey patches on the skin of my shins, which look like bruises but aren't tender to touch. I contacted my rheumatologist and sent photos
I was prescribed a daily dose of hydroxychloroquine, alongside weekly methotrexate, when I was diagnosed with RA and Sjogrens 7 years ago. Two years ago I developed grey patches on the skin of my shins, which look like bruises but aren't tender to touch. I contacted my rheumatologist and sent photos
DoraBracken
in
NRAS
2 years ago
Scaly skin on eyelid, itchy and red conjunctiva
Hi all, hope everyone is well :) I've been feeling pretty good lately, and I'm due for another blood test to determine my NDT dose soon. The puffiness in my eyes and face have continued to improve, and the difference is quite noticeable. All of that being said, however, I noticed around the beginning
Hi all, hope everyone is well :) I've been feeling pretty good lately, and I'm due for another blood test to determine my NDT dose soon. The puffiness in my eyes and face have continued to improve, and the difference is quite noticeable. All of that being said, however, I noticed around the beginning
lau99
in
Thyroid UK
2 years ago
Advice needed for eye comfort
Hello! I'm a newbie on here and recently been told I'm likely to have open angular glaucoma as I've several risk factors, these being high eye pressures, pigment dispersion, retinal detachment with secondary cataract developing (waiting on op). I've been started on monopost and tioplex to bring down
Hello! I'm a newbie on here and recently been told I'm likely to have open angular glaucoma as I've several risk factors, these being high eye pressures, pigment dispersion, retinal detachment with secondary cataract developing (waiting on op). I've been started on monopost and tioplex to bring down
AlwaysKind
in
Glaucoma UK
2 years ago
Best mobile phone for Ataxia?
hi all, my brother suffers badly with his eyes, the blurry vision has gone worse and he’s struggling to read books or watch telly. He uses an “old school” mobile phone since he cannot stand the glare from smartphone screens. What mobile phones do you recommend? I’d like to get him a new one as this
hi all, my brother suffers badly with his eyes, the blurry vision has gone worse and he’s struggling to read books or watch telly. He uses an “old school” mobile phone since he cannot stand the glare from smartphone screens. What mobile phones do you recommend? I’d like to get him a new one as this
Larobby
in
Ataxia UK
2 years ago
polymyalgia and brachytherapy
I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiting for brachytherapy treatment for the cancer but the doc is uncertain about doing this while I am on pred / any ideas?
I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiting for brachytherapy treatment for the cancer but the doc is uncertain about doing this while I am on pred / any ideas?
Limes123
in
PMRGCAuk
2 years ago
Ocular hypertension and insomnia
My glaucoma consultant is concerned that the IOP in my left eye is too high. I’ve already had a trab on my right eye and she says that if the left one doesn’t go down I will need to have a trab on that eye too. I’ve been suffering with insomnia since I got Covid about a month ago and haven’t had a good
My glaucoma consultant is concerned that the IOP in my left eye is too high. I’ve already had a trab on my right eye and she says that if the left one doesn’t go down I will need to have a trab on that eye too. I’ve been suffering with insomnia since I got Covid about a month ago and haven’t had a good
YoungontheOutside
in
Glaucoma UK
2 years ago
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