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Experiences with
Ileostomy
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IBD since 2009 temp ileostomy
I have been given a temp
ileostomy
for the bowel to heal, has anyone had this surgery due to a rectal prolapse before and know what it will be like once reversed? I must say life with a bag is very emotional.
I have been given a temp
ileostomy
for the bowel to heal, has anyone had this surgery due to a rectal prolapse before and know what it will be like once reversed? I must say life with a bag is very emotional.
Carli1503
in
Crohn's and Colitis Support
8 years ago
Back ache
I have to date had 4 carbo/taxol followed by extensive radical surgery in May this year resulting in an
ileostomy
too. Iv had two carbo only then two carbo/taxol/avastin. I have 1 chemo left thankfully, then 15 avastin only. Throughout the day I develop back pain if I try to do too much.
I have to date had 4 carbo/taxol followed by extensive radical surgery in May this year resulting in an
ileostomy
too. Iv had two carbo only then two carbo/taxol/avastin. I have 1 chemo left thankfully, then 15 avastin only. Throughout the day I develop back pain if I try to do too much.
Millie-c
in
My Ovacome
8 years ago
Endometriosis, Serve pain, and more problems
So, the doctors removed it but the bleeding was severe after that procedure so I had to then get the 1st
ileostomy
with the stoma bag. And after having it for 11 months after that the doctors reversed it back to normal by removing the bag. Only after 6 months later I developed an internal rupture.
So, the doctors removed it but the bleeding was severe after that procedure so I had to then get the 1st
ileostomy
with the stoma bag. And after having it for 11 months after that the doctors reversed it back to normal by removing the bag. Only after 6 months later I developed an internal rupture.
finklea50
in
Women's Health
8 years ago
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ankle and feet pain
hi i have had crohns since 1998 had a
ileostomy
in 2001. i seem to be continually having flares as have a narrowing in small bowel . I will be soon be starting a course of injections which hopefully will help.
hi i have had crohns since 1998 had a
ileostomy
in 2001. i seem to be continually having flares as have a narrowing in small bowel . I will be soon be starting a course of injections which hopefully will help.
tonyputt
in
Crohn's and Colitis Support
8 years ago
Living with Scleroderma and it's "friends"!
I have had scleroderma over 20 years, Raynaud's even longer, and since 2010 my health has declined with lots of other conditions diagnosed resulting in an emergency
ileostomy
procedure. Life can be up and down and it would sometimes be helpful to chat to like minded people!
I have had scleroderma over 20 years, Raynaud's even longer, and since 2010 my health has declined with lots of other conditions diagnosed resulting in an emergency
ileostomy
procedure. Life can be up and down and it would sometimes be helpful to chat to like minded people!
kimmo
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
kd-67
I was diagnosed with Crohn's Nov 2002, emerg surgeries,
ileostomy
, spending a great deal of my life in the hospital or home hooked up to things just to end up going back from infection, eventually attempted resection few days later another emerg surgery and now have colostomy.
I was diagnosed with Crohn's Nov 2002, emerg surgeries,
ileostomy
, spending a great deal of my life in the hospital or home hooked up to things just to end up going back from infection, eventually attempted resection few days later another emerg surgery and now have colostomy.
kd-67
in
Living with a Stoma
8 years ago
I have just today joined
The
ileostomy
is the worse thing and it does restrict me. Like everyone else I get frightened when I think of things but I suppose I am very lucky that I have lived so long after my first diagnosis. Has anyone else had the same sort of problems as me?
The
ileostomy
is the worse thing and it does restrict me. Like everyone else I get frightened when I think of things but I suppose I am very lucky that I have lived so long after my first diagnosis. Has anyone else had the same sort of problems as me?
bertiedog
in
My Cancer Community
8 years ago
Intravenous and Intraperitoneal treatment schedule. To have final cycle of chemo or not? behaviour of ileostomy after intraperitoneal chemo.
Also, I have an
ileostomy
and afer IP chemo spend all night emptying liquid from it. Is this supposed to happen? Thanks for any feedback anyone can offer.
Also, I have an
ileostomy
and afer IP chemo spend all night emptying liquid from it. Is this supposed to happen? Thanks for any feedback anyone can offer.
RonLitBer
in
My Ovacome
8 years ago
Worried regards to PIP
Ileostomy
. And was told last week that I have chronic fibromyalgia , hence why I am now on MST, and oramorph in the day if needed. Amongst other medications. Ok so have been on higher rate DLA, and lower rate care component. .
Ileostomy
. And was told last week that I have chronic fibromyalgia , hence why I am now on MST, and oramorph in the day if needed. Amongst other medications. Ok so have been on higher rate DLA, and lower rate care component. .
Cariad-65
in
Fibromyalgia Action UK
8 years ago
Hi I'm new here...
Hi I'm new here I was diagnosed with stage 3 oc 2 weeks before Christmas I had an emergency
ileostomy
on Christmas Eve I have been on chemo ( carboplatin & paclitaxel ) and I am about to start Avastin so fingers crossed this helps me.
Hi I'm new here I was diagnosed with stage 3 oc 2 weeks before Christmas I had an emergency
ileostomy
on Christmas Eve I have been on chemo ( carboplatin & paclitaxel ) and I am about to start Avastin so fingers crossed this helps me.
Janice1963
in
My Ovacome
8 years ago
GOT HERE AT LAST!
Hi My name is Paul and Ive had a permanent
ileostomy
since 2004... Over the last few Years or so I haven't payed much attention to my own health due to me caring for my sick Mum....As this has finished I would like to reconnect with similar people and to get health tips for the future.
Hi My name is Paul and Ive had a permanent
ileostomy
since 2004... Over the last few Years or so I haven't payed much attention to my own health due to me caring for my sick Mum....As this has finished I would like to reconnect with similar people and to get health tips for the future.
paulyvous25
in
Living with a Stoma
8 years ago
Still getting aches and pains
I had my
ileostomy
6 weeks ago and have been home for one month. The first two weeks of coming out were great as i had little pain at all. Then i stupidly go and push myself with a long walk and according to my doctor damaged some muscles and scar tissue.
I had my
ileostomy
6 weeks ago and have been home for one month. The first two weeks of coming out were great as i had little pain at all. Then i stupidly go and push myself with a long walk and according to my doctor damaged some muscles and scar tissue.
Ktappern
in
Living with a Stoma
8 years ago
Home after emergency ileostomy op
Hi, my name is Sonja, I'm 44 and this is my second day at home after having an emergency
ileostomy
because my ulcerative colitis went nuts.
Hi, my name is Sonja, I'm 44 and this is my second day at home after having an emergency
ileostomy
because my ulcerative colitis went nuts.
SonjaNye72
in
Living with a Stoma
8 years ago
Ileostomy and deep depression
I had total colectomy with and an
ileostomy
, with Sugarbaker procedure. They also repaired two hernias will pig skin mesh. The procedure lasted about 14 hours they had to remove all of my large intestine it had died and a quarter of my small intestine.
I had total colectomy with and an
ileostomy
, with Sugarbaker procedure. They also repaired two hernias will pig skin mesh. The procedure lasted about 14 hours they had to remove all of my large intestine it had died and a quarter of my small intestine.
TeePop2002
in
Living with a Stoma
8 years ago
Ileostomy soon....
Doctor is talking about an
ileostomy
and I am not sure what to think. Some positives and some negatives. Can't reverse the surgery so don't know how much more pain and meds I can take before I throw in the towel and do it. Any advice or personal stories when you were in my shoes is appreciated.
Doctor is talking about an
ileostomy
and I am not sure what to think. Some positives and some negatives. Can't reverse the surgery so don't know how much more pain and meds I can take before I throw in the towel and do it. Any advice or personal stories when you were in my shoes is appreciated.
Sgl41377
in
Living with a Stoma
9 years ago
ms yendole
could some 1 please help me, I had an loop
ileostomy
done in 2012, was supposed to be reversed in 2013, still waiting, when it does get done, at the same time they have to remove the gall bladder. 2yrs later they have to go back in as they didn't sew up all the holes inside of me, so now I have a giant
could some 1 please help me, I had an loop
ileostomy
done in 2012, was supposed to be reversed in 2013, still waiting, when it does get done, at the same time they have to remove the gall bladder. 2yrs later they have to go back in as they didn't sew up all the holes inside of me, so now I have a giant
yendole
in
Vasculitis UK
9 years ago
Prostap
I also have an
ileostomy
(Stoma) which they believe have compounded my issues as the adhesions are stuck to my womb, ovaries and what's left of my small bowel. I'm coping okay with the side effects re: hot flushes but today I'm having quite heavy bleeding/cramps which are worse than ever.
I also have an
ileostomy
(Stoma) which they believe have compounded my issues as the adhesions are stuck to my womb, ovaries and what's left of my small bowel. I'm coping okay with the side effects re: hot flushes but today I'm having quite heavy bleeding/cramps which are worse than ever.
JustLiz
in
Endometriosis UK
9 years ago
Absorption of thyroxine
I have an
Ileostomy
and am wondering if anyone has heard or read anything regarding poor absorption of thyroxine with a stoma. I don't know where in the gut Thyroxine is absorbed but I know that some drugs are absorbed in the colon and since I dont have one this can sometimes be a problem.
I have an
Ileostomy
and am wondering if anyone has heard or read anything regarding poor absorption of thyroxine with a stoma. I don't know where in the gut Thyroxine is absorbed but I know that some drugs are absorbed in the colon and since I dont have one this can sometimes be a problem.
Helen59
in
Thyroid UK
9 years ago
DO NOT abandon hope if you have an 'ostomy.
Ulerative Colitis @ 15y >
Ileostomy
@ 19y - now aged 73y. I was advised* that those who still had a rectal stump (& anus) have a much increased risk of CA. My stump was removed @ 29y - There was no medical follow up about this risk (maybe there is now).
Ulerative Colitis @ 15y >
Ileostomy
@ 19y - now aged 73y. I was advised* that those who still had a rectal stump (& anus) have a much increased risk of CA. My stump was removed @ 29y - There was no medical follow up about this risk (maybe there is now).
sttickle1
in
Living with a Stoma
9 years ago
Creon doseage
I have an
ileostomy
and find as I have type 2 diabetes controlled by insulin. I am suddenly putting on a lot of weight and wonder if that could be due to the pork ingredient. Also the
ileostomy
does not absorb /break down the capsules fully.
I have an
ileostomy
and find as I have type 2 diabetes controlled by insulin. I am suddenly putting on a lot of weight and wonder if that could be due to the pork ingredient. Also the
ileostomy
does not absorb /break down the capsules fully.
M-Law
in
Pancreatic Cancer Action
9 years ago
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