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Experiences with
Ileostomy
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Returning to "normal"
Hello Everyone, My Mom finished frontline treatment in January, and had surgery in March to reverse her
ileostomy
so that she no longer has to wear a bag. While she's been on the mend, she often tells me "I feel different. I can't explain it. I don't feel unwell, but I don't feel great.
Hello Everyone, My Mom finished frontline treatment in January, and had surgery in March to reverse her
ileostomy
so that she no longer has to wear a bag. While she's been on the mend, she often tells me "I feel different. I can't explain it. I don't feel unwell, but I don't feel great.
rolycof
in
My Ovacome
7 years ago
Introducing myself
Hi all Would like to introduce myself as a new member with a not so new
ileostomy
.
Hi all Would like to introduce myself as a new member with a not so new
ileostomy
.
anCnoc
in
Living with a Stoma
7 years ago
ileostomy and knee pain-no dmards
Ibuprophen works well for infalmation but my rheumy doesn't want me to take it because of my
ileostomy
. Anybody got any suggestions?
Ibuprophen works well for infalmation but my rheumy doesn't want me to take it because of my
ileostomy
. Anybody got any suggestions?
mickeysmom34472
in
NRAS
7 years ago
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A somewhat overdue update.
I can't recommend it, it's every bit as pleasant as it sounds, but the surgeon who did my
ileostomy
ordered it to ensure my bowels are healed and will tolerate eventually reversing the ostomy.
I can't recommend it, it's every bit as pleasant as it sounds, but the surgeon who did my
ileostomy
ordered it to ensure my bowels are healed and will tolerate eventually reversing the ostomy.
mogwaicat
in
My Ovacome
7 years ago
Mycophenolate mofetil, poss side effects.
I also have an
ileostomy
due to ulcerative colitis but generally feel quite well. Thanks. Debbie
I also have an
ileostomy
due to ulcerative colitis but generally feel quite well. Thanks. Debbie
newbe
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Ileostomy?
Hi I'm new here I am 39 and for the last 15years I have been suffering from a large rectocele, leviator ani syndrome, intersusepsion, Obstructive defication disorder, Ibs and anismus the only thing my consultant is offering to help is a illiostomy with no garentee that it will take away the pain, I just
Hi I'm new here I am 39 and for the last 15years I have been suffering from a large rectocele, leviator ani syndrome, intersusepsion, Obstructive defication disorder, Ibs and anismus the only thing my consultant is offering to help is a illiostomy with no garentee that it will take away the pain, I just
Becki77
in
Pain Concern
7 years ago
I.B.D
Inflammatory bowel disease, the Wife has suffered this awful disease for more than 2 years , she has had an
ileostomy
first to rest the affected area, then another op. to remove 6" long peice of large colon plus the gall bladder.
Inflammatory bowel disease, the Wife has suffered this awful disease for more than 2 years , she has had an
ileostomy
first to rest the affected area, then another op. to remove 6" long peice of large colon plus the gall bladder.
Edwintweet
in
My Ovacome
7 years ago
I.B.D.
She had to have an
ileostomy
to rest the effected large colon . About 12 months later , 6" of the large colon was removed and the gall bladder was taken due to it being inflamed. About 3 weeks back she had surgery on an anal vaginal fistula to try and seal it.
She had to have an
ileostomy
to rest the effected large colon . About 12 months later , 6" of the large colon was removed and the gall bladder was taken due to it being inflamed. About 3 weeks back she had surgery on an anal vaginal fistula to try and seal it.
Edwintweet
in
Bowel Disease Support
7 years ago
Frustrated newbie
Currently I use temp
ileostomy
. Actually I don't have any disease. I got my
ileostomy
because of there was a fistula in my colon due to hysterectomy. I undergone 2 surgeries. First surgery is to sticth the fistula but after 7 days, I experienced bleeding for 3 days.
Currently I use temp
ileostomy
. Actually I don't have any disease. I got my
ileostomy
because of there was a fistula in my colon due to hysterectomy. I undergone 2 surgeries. First surgery is to sticth the fistula but after 7 days, I experienced bleeding for 3 days.
Linakoz
in
Living with a Stoma
7 years ago
New to the community - Incurable Cancer
Diagnosed 2013 with Colorectal Cancer, Upper Anterior Resection and temporary
ileostomy
. Took 3 months off and returned to work late 2013 receiving the "all clear" after a colonoscopy early 2014. Also, diagnosed that summer with Rheumatoid Arthritis.
Diagnosed 2013 with Colorectal Cancer, Upper Anterior Resection and temporary
ileostomy
. Took 3 months off and returned to work late 2013 receiving the "all clear" after a colonoscopy early 2014. Also, diagnosed that summer with Rheumatoid Arthritis.
Pollydiana
in
My Cancer Community
7 years ago
New to here
I now a
ileostomy
bag whether it's temporary or permanent my partner and I will be able to deal with it. It's fantastic to see forums like this, I know where to go if I have cause of concern with the fact someone can help. Thank you for reading this. X
I now a
ileostomy
bag whether it's temporary or permanent my partner and I will be able to deal with it. It's fantastic to see forums like this, I know where to go if I have cause of concern with the fact someone can help. Thank you for reading this. X
Sammylou189
in
IBS Network
7 years ago
End of treatment !
Anyway, subsequently, graded stage 3c high grade serous.. matching
ileostomy
!!! Didn't think I would even see Christmas to be honest! Lovely Oncologist today, very optimistic and realistic!
Anyway, subsequently, graded stage 3c high grade serous.. matching
ileostomy
!!! Didn't think I would even see Christmas to be honest! Lovely Oncologist today, very optimistic and realistic!
Shire62
in
My Ovacome
7 years ago
Glad to be here...
I suffered severe Crohn's and have an
ileostomy
....no large colon. I believe my stress added to the disease. Just here to exchange ideas and support. Thank you!
I suffered severe Crohn's and have an
ileostomy
....no large colon. I believe my stress added to the disease. Just here to exchange ideas and support. Thank you!
inez54
in
Anxiety Support
7 years ago
Long term Zoladex use
I had the surgery and ended up with an
ileostomy
for 6 month while my bowel recovered. They tried taking me off the Zoladex but my body couldn't cope without it and I was symptomatic again very quickly so they put me on it for 12 months.
I had the surgery and ended up with an
ileostomy
for 6 month while my bowel recovered. They tried taking me off the Zoladex but my body couldn't cope without it and I was symptomatic again very quickly so they put me on it for 12 months.
Shelleybear
in
Endometriosis UK
8 years ago
Newbie with a Permanent Stoma
I discussed the options with my consultant and it was agreed that the most appropriate option going forward was to have a procedure called a pan-proctocolectomy with end
ileostomy
which involved removing the colon, rectum and anus and creating an opening in my belly for the stoma.
I discussed the options with my consultant and it was agreed that the most appropriate option going forward was to have a procedure called a pan-proctocolectomy with end
ileostomy
which involved removing the colon, rectum and anus and creating an opening in my belly for the stoma.
Howlinwolf999
in
Living with a Stoma
8 years ago
bowels
hi I had bowel cancer 2yrs ago I had an
ileostomy
bag for 6 months, since the reversal i have been having problems for the last 6 months i have been constantly constipated please is anyone else having the same problems
hi I had bowel cancer 2yrs ago I had an
ileostomy
bag for 6 months, since the reversal i have been having problems for the last 6 months i have been constantly constipated please is anyone else having the same problems
sylvi1
in
IBS Network
8 years ago
Home from the op !
This of course may due due to the discomfort from my tummy and my new
ileostomy
! ( this is to be reversed hopefully) I was also wondering if after having been diagnosed NED, do we all have to go on to a preventative medication?
This of course may due due to the discomfort from my tummy and my new
ileostomy
! ( this is to be reversed hopefully) I was also wondering if after having been diagnosed NED, do we all have to go on to a preventative medication?
Shire62
in
My Ovacome
8 years ago
Ileostomy and Behcets
I was wondering if there is anyone on here that has Behcets and an
ileostomy
, or vasculitis and how do you cope.
I was wondering if there is anyone on here that has Behcets and an
ileostomy
, or vasculitis and how do you cope.
Cathomp
in
Vasculitis UK
8 years ago
New here -boyfriend had ileostomy 10 weeks ago
Following a flare up of UC (5 years in remission no problems) my boyfriend had an emergency subtotal colectomy and now has an
ileostomy
. Hadn't had any build up or preparation for this op so all a big shock.
Following a flare up of UC (5 years in remission no problems) my boyfriend had an emergency subtotal colectomy and now has an
ileostomy
. Hadn't had any build up or preparation for this op so all a big shock.
Bec_carer1
in
Living with a Stoma
8 years ago
Intro
I've also just had my central line removed and hopefully some time next year I hope to have my
Ileostomy
reversed.
I've also just had my central line removed and hopefully some time next year I hope to have my
Ileostomy
reversed.
Suzy-Max
in
Colon Cancer Connected
8 years ago
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