Hi everyone, I am new here, yet thought I would write my first post as I am loosing sleep over it.
I was diagnosed with fibromyalgia some 10yrs ago, I have hypermobility in both ankles. Poor memory. Ileostomy. And was told last week that I have chronic fibromyalgia , hence why I am now on MST, and oramorph in the day if needed. Amongst other medications. Ok so have been on higher rate DLA, and lower rate care component. .
Next Thursday I have someone coming to my home for a face to face with regards to the PIP. And Friday a face to face with regards to the ESA I think.
All I am reading on the Internet is how sufferers of fibromyalgia are being declined , and there DLA being stopped. I can't walk unless I have my crutches , and hubby does things for me. However I am stubborn aswell. I have pool therapy 3 times a week as its non weight. Bearing . Can anyone please give me some advice as all I keep thinking now is....they are going to say I am fit for work with my memory, and I don't know how I feel from one day to another, I would be a liability .
Sorry for the winge, but am very scared now. Xx