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Ileostomy
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Apprehensive +++
Does anyone have an entirely happy life with their
ileostomy
? I'd be very grateful to hear from such people. Thank you.
Does anyone have an entirely happy life with their
ileostomy
? I'd be very grateful to hear from such people. Thank you.
skylark15
in
Living with a Stoma
2 months ago
Salt innovation
Because of my high output
ileostomy
I NEED salt and potassium, so they aren't issues for me like they are for most with CKD. But this is indeed revolutionary. https://www.foodandwine.com/kirin-electric-salt-spoon-reduces-salt-intake-8653512
Because of my high output
ileostomy
I NEED salt and potassium, so they aren't issues for me like they are for most with CKD. But this is indeed revolutionary. https://www.foodandwine.com/kirin-electric-salt-spoon-reduces-salt-intake-8653512
barbara55109
in
Kidney Disease
3 months ago
bowel blockage
Had an appendectomy about a year later, because my appendix were stuck to my
ileostomy
scar internally. I had pain and went to the hospital, but my surgery wasn’t emergency. I was scheduled about two weeks later for the appendectomy.
Had an appendectomy about a year later, because my appendix were stuck to my
ileostomy
scar internally. I had pain and went to the hospital, but my surgery wasn’t emergency. I was scheduled about two weeks later for the appendectomy.
Gardeningbuff
in
Bowel Disease Support
3 months ago
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Ideas please
Earlier this year I had a left hemicoletomy and
ileostomy
for bowel cancer. Over the past couple of months I have become thoroughly fatigued and have debilitating pains in my upper arm muscles and my thighs. So much so that I am unable to turn over in bed.
Earlier this year I had a left hemicoletomy and
ileostomy
for bowel cancer. Over the past couple of months I have become thoroughly fatigued and have debilitating pains in my upper arm muscles and my thighs. So much so that I am unable to turn over in bed.
Nannyjenny
in
Thyroid UK
2 months ago
radiation treatments led to perforated colon?
A life flight, three surgeries later, 3 weeks sedated and immobile in an ICU, and seven weeks in hospital rehabs, learning to deal with an
ileostomy
, and slowly recovering strength, I have learned 20% of radiation treatment PCA patients suffer radiation damage that can result in a perforated colon and
A life flight, three surgeries later, 3 weeks sedated and immobile in an ICU, and seven weeks in hospital rehabs, learning to deal with an
ileostomy
, and slowly recovering strength, I have learned 20% of radiation treatment PCA patients suffer radiation damage that can result in a perforated colon and
kreg001
in
Advanced Prostate Cancer
2 months ago
help with carpal tunnel please
I’m on Iv magnesium due to a high output
ileostomy
. I’ve had a lot of Iv fluids over the last few months and been quite unwell . I then developed what my gp has said is carpal tunnel in both wrists . I’m waiting for an appointment at the hospital.
I’m on Iv magnesium due to a high output
ileostomy
. I’ve had a lot of Iv fluids over the last few months and been quite unwell . I then developed what my gp has said is carpal tunnel in both wrists . I’m waiting for an appointment at the hospital.
Esme2007
in
Thyroid UK
4 months ago
help required - carpal tunnel
I had a huge 12 hour surgery on my tummy at the end of September and have a high output
ileostomy
, which has resulted in me having to have Iv magnesium . I’ve been having lots of fluid in hospital admissions too. I had mild symptoms looking back.
I had a huge 12 hour surgery on my tummy at the end of September and have a high output
ileostomy
, which has resulted in me having to have Iv magnesium . I’ve been having lots of fluid in hospital admissions too. I had mild symptoms looking back.
Esme2007
in
NRAS
4 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
Ileostomy
formed 1996. 13 more surgeries have performed. Due to absorption problems, + major reactions to a lot of painkilling medication, my then Colorectal Surgeon, prescribed IM Pethidine for my abdo pain.
Ileostomy
formed 1996. 13 more surgeries have performed. Due to absorption problems, + major reactions to a lot of painkilling medication, my then Colorectal Surgeon, prescribed IM Pethidine for my abdo pain.
Eegmetem
in
Pelvic Pain Support Network
5 months ago
ileostomy surgery recovery
Hi, I have had my
ileostomy
3 weeks today and whilst I love having the
ileostomy
my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
Hi, I have had my
ileostomy
3 weeks today and whilst I love having the
ileostomy
my digestive system has gone into meltdown I have terrible cramps I was dealing with very high out put for weeks even following the white diet etc the stoma nurses put me on Imodium which does help but it feels like my
MyStar86
in
Living with a Stoma
9 months ago
high ileostomy output
Hi, I recently had my
ileostomy
surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
Hi, I recently had my
ileostomy
surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
MyStar86
in
Bowel Disease Support
10 months ago
high ileostomy output
Hi, I recently had my
ileostomy
surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
Hi, I recently had my
ileostomy
surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the
MyStar86
in
Crohn's and Colitis Support
10 months ago
high ileostomy output
Hi, I recently had my
ileostomy
surgery last on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in
Hi, I recently had my
ileostomy
surgery last on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in
MyStar86
in
Living with a Stoma
10 months ago
Hello all I've had crohns and stomas since 1976 I now have short bowel and an Ileostomy
weeks in hospital because I couldn't accept mt colostomy at first I wouldn't touch it or change the bag, then after five weeks I thought I've got to accept it and get on with my life, after 46 years I've had five more resections last one 2015 where I now have only 4ft of small bowel left no colon and
ileostomy
weeks in hospital because I couldn't accept mt colostomy at first I wouldn't touch it or change the bag, then after five weeks I thought I've got to accept it and get on with my life, after 46 years I've had five more resections last one 2015 where I now have only 4ft of small bowel left no colon and
ileostomy
SoFedUp2023
in
Crohn's and Colitis Support
8 months ago
Ileostomy problems
I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my
Ileostomy
now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18 months it failed and had to have a second
Ileostomy
form. Which was actually a relief.
I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my
Ileostomy
now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18 months it failed and had to have a second
Ileostomy
form. Which was actually a relief.
SelfSoothe
in
Living with a Stoma
11 months ago
Annual transplant program appointment
Gratefully, this one had actually read my chart before coming in the room and knew and believed my CKD was from
ileostomy
dehydration. It was the first time I didn't have to play, "educate the doctor." I usually have to explain the difference between an
ileostomy
and a colostomy and more.
Gratefully, this one had actually read my chart before coming in the room and knew and believed my CKD was from
ileostomy
dehydration. It was the first time I didn't have to play, "educate the doctor." I usually have to explain the difference between an
ileostomy
and a colostomy and more.
barbara55109
in
Kidney Disease
6 months ago
eGFR moving up???
I lost my colon in 1993 and have a high output
ileostomy
and frequent dehydration. I don't have any T2 side effects, no protein in my urine, glucose in good control. My current A1C isn't even in the T2 range anymore. I had to lose weight to get on the transplant list.
I lost my colon in 1993 and have a high output
ileostomy
and frequent dehydration. I don't have any T2 side effects, no protein in my urine, glucose in good control. My current A1C isn't even in the T2 range anymore. I had to lose weight to get on the transplant list.
barbara55109
in
Kidney Disease
7 months ago
Second stint in ICU and afraid
It turns out I had ulcerative colitis which remained undiagnosed during my stay until I became so ill that I had to have emergency surgery leading me to have an
ileostomy
, so when I eventually came round after ICU I discovered I now have to poo in a bag. 🙁 Both times I was in ICU I suffered from delirium
It turns out I had ulcerative colitis which remained undiagnosed during my stay until I became so ill that I had to have emergency surgery leading me to have an
ileostomy
, so when I eventually came round after ICU I discovered I now have to poo in a bag. 🙁 Both times I was in ICU I suffered from delirium
JaneDough
in
ICUsteps
9 months ago
Change in low grade diagnosis -to high grade ovarian carcino sarcoma?
My medical team are now seeking to urgently reverse the
ileostomy
to allow chemotherapy to begin as soon as possible. Is there anyone on this forum with a similar experience or advice? I feel so scared and alone with this new diagnosis. Claire
My medical team are now seeking to urgently reverse the
ileostomy
to allow chemotherapy to begin as soon as possible. Is there anyone on this forum with a similar experience or advice? I feel so scared and alone with this new diagnosis. Claire
Happyhome24
in
My Ovacome
11 months ago
cherry stone swallowed with ileostomy !
has anyone accidentally swallowed a cherry stone with an
ileostomy
. Did it block ???
has anyone accidentally swallowed a cherry stone with an
ileostomy
. Did it block ???
Lookingahead
in
Living with a Stoma
1 year ago
Just need to talk.
hi there, Since, I really have no idea what I’m doing and having an
ileostomy
complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while.
hi there, Since, I really have no idea what I’m doing and having an
ileostomy
complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while.
AndreaBabyC
in
Kidney Disease
1 year ago
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