ankle and feet pain

[tonyputt]

hi i have had crohns since 1998 had a ileostomy in 2001. i seem to be continually having flares as have a narrowing in small bowel . I will be soon be starting a course of injections which hopefully will help. However i have constant pain in my ankles and feet and knees just wondering if anyone has any idea on how i can ease this pain. I have in the past talked with a nurse specialist whose response was to just live with it !! which is kinda hard when you can hardly walk at times.

Any help would be great

Thank You

[koalaitisbare]

Had the same problem,Large tablespoon of apple cyder vinegar,same amount of honey ,teaspoon of whiskey,worked for me,!!.plus two vitamin D + calcium daily.

[tonyputt in reply to koalaitisbare]

thanks for that will give it ago although it might end up being the whole bottle of whiskey lol

[koalaitisbare in reply to tonyputt]

Used to be a heavy drinker,found over the years that alcohol in any form aggravated my condition.

[Marz in reply to koalaitisbare]

Calcium koalaitisbare in addition to VitD is not such a good idea. VitD on its own improves the uptake of calcium from your diet. However it is advisable to take VitK2 to ensure the calcium does not remain in the arteries but heads for your bones and teeth. New research out there about calcium being not all it is cracked up to be. Was yours measured before you supplemented ?

[koalaitisbare in reply to Marz]

strange then that Medi care market tablets that contain calcium and vit d.Could also be a B12 deficiency.

[Marz in reply to koalaitisbare]

Yes the GP's in the UK also prescribe a combination pill. Probably because they have not caught up with the latest research. You can check it out for yourself with Dr Google

B12 Deficiency is VERY common - anything under 500 can present with neurological symptoms ....

[koalaitisbare]

I notice from many of your posts that IBD sufferers are still being prescribed medications that have been used for the last twenty years or more.they were useless in many cases then and probably still are now,it appears little progress has been made on that front.

[willow24 Administrator]

Have you been tested for enteropathic / rheumatoid arthritis - If you can get referral to rheumatologist then they can do ultrasound scan to dtermine if its arthritis. A lot of people with CD have arthritis unfortunately

[tonyputt]

hmm ok thank you i will speak to my nurse as was told by a surgeon its the crohns playing games

[Marz in reply to tonyputt]

You may wish to read my post about B12 ...... I would have both the VitD and B12 tested - obtain the results - post here in a new post and ask for advice about supplementing .....

[Gram214]

Hello..I also have excruciating foot..ankle..and knee pain. I have been fighting Crohn since 1999 . I also have both osteo and serum neg. RA arthritis. The lower extremity problems are ever bit as bad as the intestinal one of my Crohns !

I am currently on Remicade infusions for 3 years and also take Azathioprine , prednisone, two different pain meds and still can barely stand the pain when I walk and even when I'm not on my feet ! I virtually OWN a shoe store ! Ughhhhh

Dr.s just are not concerned ...period. 😡

[Applejak617]

I have only have been diagnosed with Crohn's for almost 3 years now. My feet hurt more often than not. I take Humira. My GI and PCP can't seem to find a reason for my joint pain.😖 I have a friend that is a nurse and going through chemo. She suggested a magnesium supplement. I take 500mg and that's has helped me some, but most nights I hang out under an electric blanket for awhile before bed.

[Eixor57]

I actually got RA symptoms from taking Lialda! It was horrific so I feel for you. I’m so sorry. I only suffered a week and a half but I was wanting to never wake up as it was giving me severe fatigue, severe pain, chills, and fevers, and attacking my lungs too! 7 hours after my first Remicade infusion it all disappeared! I met a lady who said she takes 1000 mg of Tumeric capsules and that takes her joint pain away daily. I hope and pray you get relief. Maybe the one of the other 2 drugs are giving you this side effect? Have you thought about getting off of those and just continuing the Remicade only. I would try anything to see if I could get relief. Doc approval of course.