Hello....I am new to this and am hoping you could answer a question or two I have. I was diagnosed with Crohn's Nov 2002, emerg surgeries, ileostomy, spending a great deal of my life in the hospital or home hooked up to things just to end up going back from infection, eventually attempted resection few days later another emerg surgery and now have colostomy. So with that all said,
My first question, does anyone worry about the stoma being pushed or popped back in, like when my cats or dog step right on that spot, or if I want to lie down on my tummy, just to mention a couple things? This question never gets acknowledged when I ask.
Second question, again no acknowledgement to my question, it's my understanding that the anal still has secretions (normal) thereby requiring the mad dash to the washroom thinking you have a major painful BM to pass, just mucus and/or blood/clots (sometimes lots and lots of blood/clots) This unfortunately happens to me more than I like and there have been mishaps where it has a mind of its own decides to sneak out and all of these things happen whether I try to eat something or not. By developing the usual painful, bend over, teeth clenching pain and this pain then shoots from the top right to left and down but also down the middle across my pelvic area and includes sharp pains within my vaginal area.
Now I do have extensive amounts of scarring which I can possibly blame some of the pains I feel, but do you think the majority of the pain is caused by food trying to pass through the intestines but with all the scar tissue it has to wiggle around creates the discomfort? I don't know.
Lastly, does anyone every have sharp pains through the belly button? It sometimes feel like the one time when I had something work its way out from my insides that looked like a green bristle from a brush but finer.
I didn't know Crohn's existed until after I woke up from my coma days later, and there it was and nothing was explained to me what Crohn's is, can I die from it, can you cut it out to be rid of it, etc.....I'm so glad was have Google (sometimes too much information is bad)
Sorry for the rambling......Thank you in advance to anyone with any thoughts and comments,
ps) I have a colonoscopy scheduled for Oct, so maybe something can be determined from that.