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Hypomyelination and congenital cataract
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Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Is this a lupus rash
Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia, pernicious anemia, lots of back disc issues, an exploratory lap for endometriosis which came back clear, my thyroid labs are poor but in range so not medicated but I am positive for tpa antibodies. I have had a positive
Hey everyone.I'll try and keep this short. Ive been diagnosed with fibromyalgia, pernicious anemia, lots of back disc issues, an exploratory lap for endometriosis which came back clear, my thyroid labs are poor but in range so not medicated but I am positive for tpa antibodies. I have had a positive
Peppermints
in
LUPUS UK
7 months ago
Annoyed!
Morning all!Quick backdrop: I'm getting very frustrated ! I had an ablation for AF and Flutter in June 2022. No flutter since. A couple of known AF episodes few months apart ( both identifiable reasons) My EP keeps us on flecanide etc until review. Review done 6 /7months later. Due to the recent ( at
Morning all!Quick backdrop: I'm getting very frustrated ! I had an ablation for AF and Flutter in June 2022. No flutter since. A couple of known AF episodes few months apart ( both identifiable reasons) My EP keeps us on flecanide etc until review. Review done 6 /7months later. Due to the recent ( at
wilsond
in
AF Association
7 months ago
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Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
7 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
7 months ago
Just diagnosed, need recommendations
Hi all! I just learned this morning that I have BC. Biopsy diagnosis DCIS in situ. Now I must find a breast oncology surgery practice. I live in Central Florida (Orlando) and am hoping I can get some recommendations of where to consider going for treatment. Thank you!
Hi all! I just learned this morning that I have BC. Biopsy diagnosis DCIS in situ. Now I must find a breast oncology surgery practice. I live in Central Florida (Orlando) and am hoping I can get some recommendations of where to consider going for treatment. Thank you!
MidModer
in
SHARE Breast Cancer Support
9 months ago
If the metastasis is not severe (ie widespread) why not surgery first?
Hi All, I was just wondering why surgery is not more a conventional method in stage 4 metastatic breast cancer? If one has a breast tumor, and only a few areas of metastasis - why isn't surgery to remove the breast tumor, and then radation/targetted treatment on the areas of metastasis? Any insight
Hi All, I was just wondering why surgery is not more a conventional method in stage 4 metastatic breast cancer? If one has a breast tumor, and only a few areas of metastasis - why isn't surgery to remove the breast tumor, and then radation/targetted treatment on the areas of metastasis? Any insight
JustFoundOut51
in
SHARE Metastatic Breast Cancer
9 months ago
SCT journey update No.3
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
Hi all, just to give you an update on my journey towards my *Allogenic Stem cell transplant, my transplant team @ Addenbrookes Hospital are working towards me starting chemotherapy at the end of July with the transplant taking place approx one week later at start of August. I have one more appointment
LFCLove
in
MPN Voice
2 months ago
Decision time!
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
Rafflesbabe
in
SHARE Metastatic Breast Cancer
9 months ago
fatty stools
I have had IBS(D) for more than 40 years , with many flare ups along the way ! I have had numerous CT scans , bloods , colonoscopies and gastroscopes over the years all normal apart from a bit of diverticulitis ! However in the last 4 weeks I have developed an inability to digest fat , and have lots
I have had IBS(D) for more than 40 years , with many flare ups along the way ! I have had numerous CT scans , bloods , colonoscopies and gastroscopes over the years all normal apart from a bit of diverticulitis ! However in the last 4 weeks I have developed an inability to digest fat , and have lots
Mascot68
in
IBS Network
7 months ago
Varying side effects or formulations?
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
TammyCross
in
SHARE Metastatic Breast Cancer
9 months ago
How long for ANA/ENA results?
I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I think) an ANA test and I understand from googling that if the ANA is positive it then gets sent for ENA testing as well? I'm not sure what the
I've had quite a few symptoms of what my GP suspects might be a CTD, spanning back about 10 years but lots more cropping up more recently. She's requested (I think) an ANA test and I understand from googling that if the ANA is positive it then gets sent for ENA testing as well? I'm not sure what the
Helzipop
in
LUPUS UK
7 months ago
Borderline TSH during cancer treatment
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
Hi folks! Haven't been on here for some time but in the interim I have been treated for Chronic Myeloid Leukaemia. Had chemo in September last year which was successful (minus a few hiccups like fungal pneumonia that put me in ICU!) and currently on home oral chemo, antifungals and antibiotics daily
spongecat
in
Thyroid UK
2 months ago
diarrhoea, sickness and stomach pain
This is not something I normally suffer with so wondering if adrenals waking up might cause this? If not then the pate I had on Friday night was the culprit.
This is not something I normally suffer with so wondering if adrenals waking up might cause this? If not then the pate I had on Friday night was the culprit.
Golf-1
in
PMRGCAuk
7 months ago
May be deciding between Afinitor and Enhertu. Thoughts?
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Pbsoup
in
SHARE Metastatic Breast Cancer
9 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
9 months ago
Metastasis Pain
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
reconjj
in
Advanced Prostate Cancer
9 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
9 months ago
Vitamin B12 produced by gut bacteria modulates cholinergic signalling
I simply can't help but think that this has some relevance to Pernicious Anaemia. But goodness knows what! And the lack of access precludes reading it all to try to find out. Seems such an odd bit of genetics that we developed an incredibly complex system to grab a tiny bit of B12 from our food, which
I simply can't help but think that this has some relevance to Pernicious Anaemia. But goodness knows what! And the lack of access precludes reading it all to try to find out. Seems such an odd bit of genetics that we developed an incredibly complex system to grab a tiny bit of B12 from our food, which
helvella
in
Pernicious Anaemia Society
7 months ago
Worried about blood
Hi all Since September ish I have been suffering with constipation. I went to my doctors and was prescribed laxido. This helped and I was able to go toilet with no pain. I stopped taking it as I didn't want to be dependant on it but the constipation returned. I do about 90% of the time have bright red
Hi all Since September ish I have been suffering with constipation. I went to my doctors and was prescribed laxido. This helped and I was able to go toilet with no pain. I stopped taking it as I didn't want to be dependant on it but the constipation returned. I do about 90% of the time have bright red
Stomachsufferer
in
IBS Network
7 months ago
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