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Hypomyelination and congenital cataract
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Cutie Capers
Hello EveryoneI thought it was time for a fun cutie pic and i hope you all agree it delivers. This was my expression when my local hospital rang to offer me a gallbladder cancellation for 15/3 which is this coming friday!!. Just couldn't believe it really as been waiting so long. š¤it isn't changed
Hello EveryoneI thought it was time for a fun cutie pic and i hope you all agree it delivers. This was my expression when my local hospital rang to offer me a gallbladder cancellation for 15/3 which is this coming friday!!. Just couldn't believe it really as been waiting so long. š¤it isn't changed
misty14
in
LUPUS UK
5 months ago
Symptoms query
Hi all My specialist feels like I have IBS. I have had constant bloating for 7 months; eating makes it worse and my stomach is always distended regardless of whether I eat anything. Had colonoscopy and results were fine. I am waiting on results of CT scan as final check. Is it normal to have a constantly
Hi all My specialist feels like I have IBS. I have had constant bloating for 7 months; eating makes it worse and my stomach is always distended regardless of whether I eat anything. Had colonoscopy and results were fine. I am waiting on results of CT scan as final check. Is it normal to have a constantly
TwoPlusTwo24
in
IBS Network
7 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
9 months ago
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Iron, estrogen & RLS
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
Just wondering if anyone is aware of any connection between iron & estrogen (from an RLS perspective)? I'm a 73 year-old male, and I've had high-ish estrogen levels for at least the last 7 years (42-49; normal level should be below 41). I think there is some correlation between high estrogen and high
707twitcher
in
Restless Legs Syndrome
7 months ago
Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6 FCR treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles! She had me tested for herpes zoster antibodies, and for good
xpro3
in
CLL Support
5 months ago
reassurance needed please
Iām a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and havenāt eaten
Iām a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and havenāt eaten
Hannahthom
in
British Liver Trust
9 months ago
German tara
Hi everyone I've being getting a tube off biogenesis gel for dry mouth last night was the first dry mouth since afore xmas it was great I woke up at 2 my mouth completely dry no moisture at all in mouth tongue could off used it for sanding that rough had some water but still abit dry but
Hi everyone I've being getting a tube off biogenesis gel for dry mouth last night was the first dry mouth since afore xmas it was great I woke up at 2 my mouth completely dry no moisture at all in mouth tongue could off used it for sanding that rough had some water but still abit dry but
Germantara
in
Lung Conditions Community Forum
7 months ago
Fine needle aspiration š¤
Hi everyone ā¤ļø As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
Hi everyone ā¤ļø As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
birkie
in
Thyroid UK
9 months ago
Unable to do transvaginal scan
Hello, I'm new here and will try to be brief but wonder if anyone can advise me. I had a US scan last week as my ca125 result was 91. The radiographer was unable to perform a transvaginal scan though as trying to insert the probe was so very very painful for me. She attempted several times and I even
Hello, I'm new here and will try to be brief but wonder if anyone can advise me. I had a US scan last week as my ca125 result was 91. The radiographer was unable to perform a transvaginal scan though as trying to insert the probe was so very very painful for me. She attempted several times and I even
jib70
in
My Ovacome
9 months ago
Berberine and Levothyroxine
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
Hi This is my first post. I was wondering if anyone could give me advice about taking berberine with levothyroxine. I am currently taking 100mcg of levo daily. About 2 years ago I was diagnosed with Type 2 diabetes which I try and control with a low carb diet. However my blood sugar seems to be rising
treeflower1954
in
Thyroid UK
9 months ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
7 months ago
CA 27.29 Blood Testl
My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been referred to Stanford Hospital and they will explore with more imagery. I am frightened but want to get to the truth.
My CA 27.29 has continued to rise. PET Scan showed nothing abnormal. I've been referred to Stanford Hospital and they will explore with more imagery. I am frightened but want to get to the truth.
RedwoodLady
in
SHARE Metastatic Breast Cancer
9 months ago
Lupus diagnosis yesterday
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
Hello everyone, been a tricky few months. You all know what it's like.just wanted to update and i feel a bit overwhelmed. In 2020 was diagnosed with UCTD. Positive ANA. Take hydroxychloquine. Last year ENT diagnosed sjogrens, it was an urgent 2 week referral as my throat had been sore for months
BonnyB
in
LUPUS UK
7 months ago
Constipation from PARPS
Hello, I had a recurrence last year after being in remission for over 6 years. I was diagnosed as being a 3C and am BRAC2. I did really well with the chemo and now I have been taking Olaparib for a little less than 3 weeks. It's been rough especially at the beginning. They had to wait a few extra
Hello, I had a recurrence last year after being in remission for over 6 years. I was diagnosed as being a 3C and am BRAC2. I did really well with the chemo and now I have been taking Olaparib for a little less than 3 weeks. It's been rough especially at the beginning. They had to wait a few extra
Chanterelle
in
My Ovacome
7 months ago
Advice for chronic constipation
My symptoms are so much better since my laparoscopy 9 months ago but Iām still constipated all. the. time. My surgeon has told me repeatedly that heās very confident he removed all present endo and that there was none on my bowel. Iāve had a colonoscopy and MRI which have come back fine, aside from
My symptoms are so much better since my laparoscopy 9 months ago but Iām still constipated all. the. time. My surgeon has told me repeatedly that heās very confident he removed all present endo and that there was none on my bowel. Iāve had a colonoscopy and MRI which have come back fine, aside from
Sunflower117
in
Endometriosis UK
7 months ago
I am desperately in need of help!
Hi everyone, I have been suffering from IBS for 8 years now, but over the last year my condition has gotten much worse. My main symptoms are heartburn, acid reflux, indigestion, bloating, and gut spasms. I am now at a stage where I can get through the first 9 hours of the day feeling fairly OK, but
Hi everyone, I have been suffering from IBS for 8 years now, but over the last year my condition has gotten much worse. My main symptoms are heartburn, acid reflux, indigestion, bloating, and gut spasms. I am now at a stage where I can get through the first 9 hours of the day feeling fairly OK, but
Crescendo251
in
IBS Network
7 months ago
2020 pilot study on benefit of alpha blockers which I wish I had known about when I had local radiotherapy
A Pilot retrospective analysis of alpha-blockers on recurrence in men with localised prostate cancer treated with radiotherapy Open access Published: 18 May 2020 volume 10, Article number: 8191 (2020) Scientific Reports Jordan Hart, Briohny Spencer, Catherine M McDermott, Russ Chess-Williams, Donna
A Pilot retrospective analysis of alpha-blockers on recurrence in men with localised prostate cancer treated with radiotherapy Open access Published: 18 May 2020 volume 10, Article number: 8191 (2020) Scientific Reports Jordan Hart, Briohny Spencer, Catherine M McDermott, Russ Chess-Williams, Donna
Graham49
in
Advanced Prostate Cancer
9 months ago
accidental overdose of thyroxine
Iām on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. Iāve just realised today that Iāve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. Iāve rang 111 and they called
Iām on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. Iāve just realised today that Iāve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. Iāve rang 111 and they called
Tjqui00
in
Thyroid UK
7 months ago
RT without HT
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with āsomething on the right that I have been informed is possibly
I am approaching 78. My last PSA is 13,37. It was 1.4 in 2018 ie the last time I had a test. Prostate size 36 cc, prostate density 0.39. The MRI indicated a 14mm tumour fully contained within the prostate in the lower left quadrant, with āsomething on the right that I have been informed is possibly
Nordman
in
Prostate Cancer Network
9 months ago
To much gas
I had an ultrasound 3 weeks ago got letter saying I've to go for a ct scan they will send me a date out for it because there was to much overlying gas to get a fully clear picture of my liver to complete the evaluation I've had to go for a ct scan before 3 are 4 times because of gas but the person doing
I had an ultrasound 3 weeks ago got letter saying I've to go for a ct scan they will send me a date out for it because there was to much overlying gas to get a fully clear picture of my liver to complete the evaluation I've had to go for a ct scan before 3 are 4 times because of gas but the person doing
Tommy62
in
British Liver Trust
7 months ago
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