I'm getting very frustrated ! I had an ablation for AF and Flutter in June 2022. No flutter since. A couple of known AF episodes few months apart ( both identifiable reasons)
My EP keeps us on flecanide etc until review. Review done 6 /7months later. Due to the recent ( at the time) AF event of 12 hours,to remain on Flec for further 6 months. Put on list for possible RF ablation and appointment in April 2024.
Had a weird text survey from UHCW basically asking if I'm a) worse b). Do I consider if I still need RF ?etc.
I answered as best I could saying no changes from last appointment so as far as I know ( being a patient not medic!) Still need it.
Just got letter through, appointment now moved to August! Fed up.
I'm pleased to be free of AF and F,but feel its false as still on 100mg flecanide twice a day! Don't like being on such a powerful drug,one if the reasons ablation was done.
Not really a question bit of a rant ! Also:
Recently had few gastric problems ,NOT acid reflux or indigestion. More feeling full up quickly, loss of appetite, IBS.
No gall bladder as removed years ago.
Not Xmas excess as started before and been very careful with diet etc
Wary as I've had links with AF before . Had phone appointment with GP( we are lucky ours are still very accessible)
Suggested PPI Lanzaprole.
Hmm not entirely sure if I want to start these, has anyone had experience with these?
?!
Anyway,back to labelling plants in pots outside ready for moving. Contracts almost done so.....soon be flitting!
Thanks for reading if you've got this far!
Written by
wilsond
To view profiles and participate in discussions please or .
I’ve an ablation booked for 20/2😕 I was told that could need 2 Side effect of ablation can be stomach issues😕 But they should subside
Gall bladder removal can cause problems, stone s can still be produced but can get still get stuck in the bile duct😕 Maybe ablation procedure has upset it all.
I see,didn't know that about the gallstones. Interesting!I was put on lanzaprole for 6 weeks after ablation as routine for the reasons you suggest. I'll keep an eye on it.
No, not many do realise you can still make stones. A patient had had her GB removed 15yrs before she saw me for Reflexology, I found area on her foot. Her GP who I knew, laughed ha ha, ended up laughing on the other side because I was right and they’d found stones!
I know the strikes and need to reschedule those who were cancelled means they are delaying appointmnts, surgery and procedures where they can… I wonder if your saying no change is what got you ‘only’ a 4 month postponement? If you’d said you were doing ok it might have been a year?? 😖 Very disappointing though, and frustrating.
I’ve been on lansoprozole for erosive duodenitis 12 years ago, and put on it again as a preventative measure when prescribed with Apixaban 8 years ago. And it did help (though actually I preferred omeprazole, I never got on as well with lansoprazole). I have weaned myself off it now, using the suggestions from wise people on here... Personally I’d take a PPI for short term treatment as needed, as they do help me. And then I’d get off them again if I can! X
Slightly off your subject but in the end I waited 3 years 3 months for Right Shoulder inner rotator cuff repair.
3 Orthopaedics.
But still the 3rd Orthopaedic WROTE ROUTINE!
I was annoyed at that and plan to ask him now if it was really a ROUTINE JOB.
He called it post operatively a LONG and INTRICATE job.
I'll let you know what he says. He had to 'bur' off 1" bone which had a name called a spur. And restricted movement. It grew because the accident did not allow me to exercise the rotor cuff. No overarm fishing!
Its important to know how your operation is 'labelled'.
My knee did not show the ugly full thickness scare and I struggled with pain for three years. Finally our ACC oked another MRI - both the same. The knee inside was very swollen. Then a look. A full thickness tear so bad the menincous tissue was the surgeon had to cut it out. It. is stable tells me not to carry heavy items or fold other leg over!!!
Hi all AFib friends with gut issues! You might find this interesting. I’ve been having GI issues for a long time. Been on different PPIs, last one being omeprazole. But as soon as I stop taking them, the reflux is there. For two months now I have been drinking just chamomile tea, which I read helps gut issues. Was skeptical, but started making a full pot of chamomile tea for breakfast, and I drink it all, about four big cups. I HAVE NOT TAKEN ONE OF MY PILLS , since started. I try not to have coffee, but have treated myself maybe once a week for a cup! I can definitely say the ch. tea is helping!! Was worried about Holidays and all those bakings and chocolates, but I had no trouble! Sure hope you will find this helpful also! I try also to drink a cup every once in a while during the day, but don’t succeed with that so often.
I’m currently on lansoprazole as I developed digestive problems after ablation last October. I’m able to sleep much better now, out of pain. No side effects. I take a magnesium taurate supplement as PPIs are said to interfere with magnesium uptake, though don’t take my word on that. Currently waiting for the cardio nurse to check out the next step with my EP - an endoscopy probably on the cards. Do get the gastric thing checked out wilsond.
Hi Dawn. I've has about 3 of those messages in the past 18 months asking if I still want to be on the valve repair surgery list!!!Unfortunately, there wasn't a "what the heck do you muppets think" option so "yes" had to suffice.
One of my patients had her gallbladder removed but they left a bit behind and that gives her jip at times. She's also been diagnosed now with diverticulitis, which causes gastric issues. May be worth asking about that as a potential issue?
To be fair, I would prefer to be on a World cruise but accept I better have the surgery. 😁The bit they left in my patient was accidental and they're not too keen on going back in again.
Having had a gallstone attack on Boxing Day, I'd want it out if I were her. They won't remove mine until the valve is done.
I've been prescribed Lanzaprole ongoing and equivalents many times over the decades. I have coeliac disease and am prone to digestive problems. Over the past couple of years I've been increasingly suffering with digestive discomfort and had (another) endoscopy a couple of months ago which didn't find anything.
I'm unwilling to take Lanzaprole on a regular basis as it can affect absorbtion of certain vitamins but 6 weeks ago I discovered apple cider vinegar. I take 25mls a day and it's completely resolved my digestive problems which I'm very happy about! You might want to give it a try.
A comment to start your day .. without a gall bladder!
Squeeze lemon into cup or sturdy glass add hot water.
Apparently daily these works by getting juices flowing to break down food.
My grand pa's solution he had his out and as he's passed I don't know why.
At 50yrs finally mine was removed. Gall Bladder had disintegrated. I have 4 more portals to assist the surgeon to clearing out the bits of it!
So if you study what happens when the gall bladder is removed ..bile drips in over each 24hr period. The gall bladder is alerted to what contents are in the stomach. So more fat more bile is sent.
We don't have that intelligence so the bile doesn't always cover the meal we've had.
Interesting.
Try the early morning lemon drink to start your date.
cheri JOY
Also the least meds you can have the better to keep AF in check.
I can't understand why you shouldn't try CCB Dilriazem to control your rapid heart beat which does slow down the arr rhythmism due to slowing down the rate.
sorry to hear. I too had that message from uchw. It’s a little confusing. If you answer wrongly it could lead to you being discharged? Hope it all gets sorted. I was due my 3month appointment after my ablation but it was cancelled 8th dec. haven’t heard anything since.
Hmm. That's a bit of a cocktail! No wonder you're fed up. Personally- and I speak as someone with a digestive fault i.e. stomach doesn't get message to create acid- I'm not in favour of PPIs. You might find it useful to seek help from a good nutritionist. Sounds like your microbiome balance isn't working for you. And in my experience, gut disturbance can trigger AF. Have a look at some of the work done by Dr Tim Spector on the microbiome. The Zoe Programme is good - though not cheap. This might be a way forward for you while you're hanging out for your appointment.
Proton Pump Inhibitors are POISONS that should be under very careful review by the Medical Board of each country. Be very careful taking them as they have screwed up many, many people's guts sometimes irreversibly.
The acid in your gut is required to kill off any and all bugs that come with the food and drinks you consume, so lowering this acid is rather stupid if you ask me. There has to be a very good reason to do this (there are a few valid medical reasons). Unfortunately, GPs give them out as lollies at a school. If no tests at all have been done to identify your gastric issues, on what basis is your GP giving you such a horrible poison?
I would personally avoid it and recommend you read up on SIBO, SIFO, leaky gut, etc. It is interesting that many people with AF tend to have gut issues as well and I have recently found that any time I have a huge amount of bloating and gas, it causes my heart to go into AF or SVT. Pissed off to be honest, that not a single cardiologist in any country (been to many) has ever asked me about what food I eat, or anything else. That is the main issue western medicine has. Each specialist only cares about his little part of our body and gives a rat arse's about the rest. But every single organ is connected and affected by all the other organs in the body so if you are having heart issues and you also have gut issues, I would greatly suspect the gut issues to be a main trigger.
Just bear in mind that if you do take PPIs, you will end up with severe constipation, acid reflux (yes, they actually cause the damn thing they are supposed to help with), gastroparesia, dysbiosis, bloating, belching, etc. Some people also end up with vitamin and mineral deficiencies which for us AFibbers, is very bad (potassium deficiency will send all of us into a nasty AF very quickly).
The PPI drugs are fine for short term use and, in your case, to see if the problem is acid related. If it is, your GP are wiser and can treat you better. They are very useful diagnostic drugs in that sense. I am on one long term for acid reflux and wish it were otherwise but it works and I seem to have no side effects.
Gastric discomfort can take an age to settle - months at times, for me. Fullness and nausea, discomfort under the left rib; IBS on the left and right side - you name it, I get it, but rarely very painful.
I would try the PPI drug and give it a fortnight to see what happens.
Steve
Stones are bile crystals and can be formed in the liver too…can be broken down using weak apple cider vinegar (malic acid) choline inositol and milk thistle lower formation of these crystals… green apples too.
Feeling full very quickly could be due to slow stomach emptying…gastroparesis often an over tensioned pyloric valve… which can be alleviated by massage and heat.2 inches below the sternal notch and 1inch to your right .. press firmly with your knuckle and rotate this may relax and allow food to leave tummy area.Hot water bottles too can help .There are YouTube videos explaining this.. but I cannot give links to Dr Berg.
Taking PPI ‘s lower the stomach acid producing cells function.. not good for slow emptying stomachs.
Certain foods will improves gut mobility…certain combinations will slow emptying… often due to the pancreas instead.. so digestive enzymes can help … and perhaps bile salts.
Again everything is on the same nerve pathway to the vagus nerve…research vagus flossing .. deep humming often reset an over tight vagus nerve which feeds both heart and stomach .. they kind of work together in this regard.
I take omperazole since i found out i had an hiatus hernia 2 years agoIf you have an hh then the acid can cause barrets osophegus which leads to cancer
Ive been told they are for life
I had some acid reflux after my ablation
If you take them and stop without weaning off them you get a rebound acid attack so be careful
I hope you are able to read this and do some further research.
I damaged my LES by accidentally eating food that had a caustic agent several years ago.. I used PPI to help heal this after being told it would affect me for life.
My last endoscope shows everything has healed even though I stopped PPI.. I used these following methods to increase melatonin and reduce inflammation.
Have you tried to release hh using the hiatus exercises .. which can be found on YouTube..
I caused one through a bout of retching and made the thing “pop” back into place.. not always successful.
You can research melatonin’s role on the LES.. it is why we release most of it at night before we lay down.. it helps that sphincter to close.. as does a weak solution of ACV…..”before” food.
Using PPI lowers the output of stomach cell making acid .. but it also stops the LES from closing…not helpful at healing an inflamed LES.
Retrain the Les with a weak solution of Calcium Citrate after food .. the calcium causes the muscle to contract which closes the LEs the way it is supposed after food.. and Citrate rebuilds stomach acid making cells too.. they are there for a reason.
As we age we produce less melatonin.. daylight helps us make it.. certain foods contain it.. unless you take PPI which causes lower acid .. which in turn stops you gleaning all the nourishment and minerals you need to sustain health.
Eating foods balanced with both calcium and magnesium will correct acid reflux alongside PPI use.. this makes it possible to reduce dosage.Spinach.. leafy greens…walnuts are plant based sources of both Ca..Mg and melatonin.Raw ginger in small doses can reduce acid in the Oesophagus..white cabbage heals inflammation …because even though it feels spicy .. it is alkaline.
For those times you get acid reflux try using DGL licorice.. or slippery elm bark.. both increase mucus coatings to help protect the linings.
Barrett’s oesophagus occurs with repeated waves of acid reaching the zone above the LES which turns smooth cells into the same as stomach cells..it is avoidable… but even those with this condition can exercise extra methods alongside PPI.
Melatonin helps prevent cancer cells from developing too.. lots of papers on Pubmed.. available to the public.. these are peer reviewed by many doctors before publication.. so really accurate source of information when it comes to polyphenols and drugs alike.
Apologies for the long winded answer.. not everything will be new to you but it may help others who read this.
Help heal them with natural things.. it is possible to turn things back to normal.best wishes.
Have you been tested for Helicobacter Pylori ? A nasty bacteria which can cause problems PPI's help make it an ideal breeding ground. You can buy home tests online if it's quicker than going to GP . How I self diagnosed mine .
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Very frustrating… 
TantaAnna update post sixth ablation 
Full diagnosis and plan in place : comments please 
ablation or Flecainide conflicted 
Ablation update
3 year NSR anniversary
