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Hypomyelination and congenital cataract
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diabetic macular oedema or not!
I went for my review at the eye clinic today and the doctor there said she couldn’t understand why my right eye was not improving but my right eye had. She also said that it was strange as my blood sugars were very well controlled. She went off to speak to a consultant and the result of that was I am
I went for my review at the eye clinic today and the doctor there said she couldn’t understand why my right eye was not improving but my right eye had. She also said that it was strange as my blood sugars were very well controlled. She went off to speak to a consultant and the result of that was I am
Koalajane
in
Macular Society
9 months ago
Clonidine for hypertension
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Peppa_pig
in
Cure Parkinson's
1 year ago
Actemra frequency query
Hi Everyone, I’m wondering if there is anyone on here who is managing their Actemra injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
Hi Everyone, I’m wondering if there is anyone on here who is managing their Actemra injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
LemonZest11
in
PMRGCAuk
1 year ago
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Cataract Surgery after Trabeculectomy
Hi Everyone!Pressure rose in my eye with trabeculectomy I had a year ago. Doctor wants me to do cataract surgery before he does bleb needling. Anyone done cataract surgery after a trabeculectomy? How was it? Did it affect your bleb? Was anything special done to minimize negative consequences on the bleb
Hi Everyone!Pressure rose in my eye with trabeculectomy I had a year ago. Doctor wants me to do cataract surgery before he does bleb needling. Anyone done cataract surgery after a trabeculectomy? How was it? Did it affect your bleb? Was anything special done to minimize negative consequences on the bleb
stephanie1977
in
Glaucoma UK
1 year ago
Cataract surgery and anticoagulants
I'll be having cataract surgery soon and I'm wondering if any of you were told to discontinue anticoagulants before the procedure. I haven't received any instructions yet regarding medications but I'm just curious as to what to expect.
I'll be having cataract surgery soon and I'm wondering if any of you were told to discontinue anticoagulants before the procedure. I haven't received any instructions yet regarding medications but I'm just curious as to what to expect.
JudyMarieC
in
AF Association
1 year ago
Cataract Surgery and Sedation
Hi,I am on the list for Cataract Surgery which I should be having in about 3 or 4 months time.I will be having Local Anaesthetic and I have also been asked if I would like sedation,I don't know what to do is it painful without.
Hi,I am on the list for Cataract Surgery which I should be having in about 3 or 4 months time.I will be having Local Anaesthetic and I have also been asked if I would like sedation,I don't know what to do is it painful without.
Lizzyanne567
in
Glaucoma UK
1 year ago
methotrexate covid booster
hi everyone. ,due to have my spring booster sat. Always missed methotrexate injection on the Thursday before jab now read supposed to miss 2 doses after jab none before not sure now ,any advice ? Was thinking about cancelling as had cataract surgery yesterday but advised by hospital to have it anyway
hi everyone. ,due to have my spring booster sat. Always missed methotrexate injection on the Thursday before jab now read supposed to miss 2 doses after jab none before not sure now ,any advice ? Was thinking about cancelling as had cataract surgery yesterday but advised by hospital to have it anyway
Gladjake
in
NRAS
1 year ago
Stop Actemra for good?
I am down to 4.5 mg of Prednisone. Started at 15 a couple of years ago. Have had about a year of monthly Actemra infusions (monthly infusions not weekly shots). I don’t feel different after them. Why shouldn’t I stop taking them? I still have some heaviness in arms/legs and some minor pains on occasion
I am down to 4.5 mg of Prednisone. Started at 15 a couple of years ago. Have had about a year of monthly Actemra infusions (monthly infusions not weekly shots). I don’t feel different after them. Why shouldn’t I stop taking them? I still have some heaviness in arms/legs and some minor pains on occasion
Greytree
in
PMRGCAuk
1 year ago
Tough decision
I've been on AS for 5 years with Moffit had 3 biopsy's all gleason 6 except a second opinion on my first one 2 cores where changed to a 7. PSA has bounced around but highest was 6.43 this April last week 5.13. Because of my recent MRI shows growth on the lesion and possible extracasular extension. So
I've been on AS for 5 years with Moffit had 3 biopsy's all gleason 6 except a second opinion on my first one 2 cores where changed to a 7. PSA has bounced around but highest was 6.43 this April last week 5.13. Because of my recent MRI shows growth on the lesion and possible extracasular extension. So
twoodogs
in
Prostate Cancer Network
5 hours ago
Has anyone had breast cancer Mets in para aortic lymph nodes?
after a solitary bone met which has been managed for a few years, I now have breast cancer Mets in my para aortic lymph nodes. I’m on Fulvestrant.
after a solitary bone met which has been managed for a few years, I now have breast cancer Mets in my para aortic lymph nodes. I’m on Fulvestrant.
Thredbo2
in
SHARE Metastatic Breast Cancer
13 hours ago
Has anyone had breast cancer Mets in para aortic lymph nodes?
after a solitary bone met which has been managed for a few years, I now have breast cancer Mets in my para aortic lymph nodes. I’m on Fulvestrant.
after a solitary bone met which has been managed for a few years, I now have breast cancer Mets in my para aortic lymph nodes. I’m on Fulvestrant.
Thredbo2
in
SHARE Metastatic Breast Cancer
13 hours ago
LVV Update
Hello, just getting back with the latest on what appears to be a huge LVV flare. Had the PET Scan on Thursday and doc called yesterday. I have the scan but can’t really read it other than to see that there is no “hyper metabolic intra cranial lesion” or “FDG avid cervical or supraclavicular lymphadenopathy
Hello, just getting back with the latest on what appears to be a huge LVV flare. Had the PET Scan on Thursday and doc called yesterday. I have the scan but can’t really read it other than to see that there is no “hyper metabolic intra cranial lesion” or “FDG avid cervical or supraclavicular lymphadenopathy
LemonZest11
in
PMRGCAuk
17 hours ago
A recent MRI of the Abdomen
6/28/24- I am about to start calquence. I would appreciate your words of encouragement and advice. Follow-up mLeft upper pole 1.8 cm hypoenhancing solid renal lesion concerning for renal cell carcinoma, papillary subtype. Less likely differential of lymphomatous lesion. Innumerable additional
6/28/24- I am about to start calquence. I would appreciate your words of encouragement and advice. Follow-up mLeft upper pole 1.8 cm hypoenhancing solid renal lesion concerning for renal cell carcinoma, papillary subtype. Less likely differential of lymphomatous lesion. Innumerable additional
bagelstreet225
in
CLL Support
21 hours ago
CAR T-Cell Therapy Demonstrates Promising Results for mCRPC
A total of 14 patients were treated between August 2019 and July 2022. The median patient age was 62 in dose level 1 (DL1), 70 for dose level 2 (DL2), and 69 for dose level 3 (DL3). The baseline prostate-specific antigen (PSA) ranged from 16.5 ng/mL to 235.3 ng/mL. Primary end points were safety and
A total of 14 patients were treated between August 2019 and July 2022. The median patient age was 62 in dose level 1 (DL1), 70 for dose level 2 (DL2), and 69 for dose level 3 (DL3). The baseline prostate-specific antigen (PSA) ranged from 16.5 ng/mL to 235.3 ng/mL. Primary end points were safety and
God_Loves_Me
in
Advanced Prostate Cancer
1 day ago
Xeloda neck pain
On first week xeloda and I get severe neck and face pain once a day..I take a klonpin and tylenol and relieved in half hour..I don't know if anyone else has it.ROX
On first week xeloda and I get severe neck and face pain once a day..I take a klonpin and tylenol and relieved in half hour..I don't know if anyone else has it.ROX
Mcangel11
in
SHARE Metastatic Breast Cancer
1 day ago
surgery
well it’s been a while since I posted my fellow warriors Started having hip issues a couple of months ago. Did a Ct and MRI as well as X-rays. Found that the ball was gone off my left hip , then on closer inspection found that the right hip the cancer had eaten all the way thru the upper femur ?
well it’s been a while since I posted my fellow warriors Started having hip issues a couple of months ago. Did a Ct and MRI as well as X-rays. Found that the ball was gone off my left hip , then on closer inspection found that the right hip the cancer had eaten all the way thru the upper femur ?
larry_dammit
in
Advanced Prostate Cancer
1 day ago
Wondering what to do
Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which have been successful for a while. I also had surgery in 2020 when I was diagnosed. My last lot of single carbo chemo have me a stable few months
Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which have been successful for a while. I also had surgery in 2020 when I was diagnosed. My last lot of single carbo chemo have me a stable few months
BadgerBright
in
My Ovacome
1 day ago
Shirley
I MBC that had spread to bones now found two small spots on lungs. I was taking ansezole for estrogen blocker and venezico .I am ER statuses positive , HER2 negative. They say I have mutation on my cancer an wants me take a treatment PIQKAY and Fulvestrant. I am very nervous taking these. ANYONE
I MBC that had spread to bones now found two small spots on lungs. I was taking ansezole for estrogen blocker and venezico .I am ER statuses positive , HER2 negative. They say I have mutation on my cancer an wants me take a treatment PIQKAY and Fulvestrant. I am very nervous taking these. ANYONE
Moonfry
in
SHARE Metastatic Breast Cancer
2 days ago
Newly diagnosed with HCC
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
Dachshund45
in
Blue Faery Liver Cancer
3 days ago
A Secondary Primary Malignancy hit me
The doctors tell us that you don't die from CLL; you die with CLL. What they don't tell you very often is that even though it isn't the CLL that gets you, it could very well be a secondary primary malignancy caused by the CLL that does it. Bennevisplace wrote on this a few months ago; i.e. the fact
The doctors tell us that you don't die from CLL; you die with CLL. What they don't tell you very often is that even though it isn't the CLL that gets you, it could very well be a secondary primary malignancy caused by the CLL that does it. Bennevisplace wrote on this a few months ago; i.e. the fact
hhk50
in
CLL Support
3 days ago
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