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Possible Problems With Bladder Cancer Treatment
My treatment now seems to be - Flexy Cystoscopy first - If anything is found then booked for admission to have tumour(s) removed. This is done with a procedure called TURBT and rigid cystoscopy. As a BTY - I am unsure if my BCG treatment has ended, or have I one more go. I am not allowed "general
My treatment now seems to be - Flexy Cystoscopy first - If anything is found then booked for admission to have tumour(s) removed. This is done with a procedure called TURBT and rigid cystoscopy. As a BTY - I am unsure if my BCG treatment has ended, or have I one more go. I am not allowed "general
Ern007
in
Lung Conditions Community Forum
5 months ago
Lung Biopsy - Lucky?
During my 1st PEt scan for PC a shadow was revealed on my lung. Subsequent to my PC treatment I did a CT scan of the area and am undergoing a biopsy of that node in a few days. The pulmonary Dr. had doubts that it was from the PC since it was so far removed from the prostate and my cancer was not advanced
During my 1st PEt scan for PC a shadow was revealed on my lung. Subsequent to my PC treatment I did a CT scan of the area and am undergoing a biopsy of that node in a few days. The pulmonary Dr. had doubts that it was from the PC since it was so far removed from the prostate and my cancer was not advanced
Eadgbe
in
Prostate Cancer Network
5 months ago
2 acoustic neuromas
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the left appears to be stable but had gamma knife on the right in September. Just wondering if there is anyone else who has this and any tips on
Operalovers
in
Acoustic Neuroma Support
5 months ago
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Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
5 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
5 months ago
Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
5 months ago
Cancerous thyroid nodules. Are they painful sometimes?
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Id be really grateful for thoughts on this please. I'm awaiting surgery on a nodule that's suspicious for follicular cancer but obviously as we know, they can't be certain until its taken out. What i want to know is, has anyone had a painful nodule that can be really sore consistently (8 months now
Aoifel73
in
Thyroid UK
5 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
5 months ago
Cataract Surgery after Trabeculectomy
Hi Everyone!Pressure rose in my eye with trabeculectomy I had a year ago. Doctor wants me to do cataract surgery before he does bleb needling. Anyone done cataract surgery after a trabeculectomy? How was it? Did it affect your bleb? Was anything special done to minimize negative consequences on the bleb
Hi Everyone!Pressure rose in my eye with trabeculectomy I had a year ago. Doctor wants me to do cataract surgery before he does bleb needling. Anyone done cataract surgery after a trabeculectomy? How was it? Did it affect your bleb? Was anything special done to minimize negative consequences on the bleb
stephanie1977
in
Glaucoma UK
1 year ago
2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
5 months ago
Clonidine for hypertension
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Peppa_pig
in
Cure Parkinson's
1 year ago
Actemra frequency query
Hi Everyone, I’m wondering if there is anyone on here who is managing their Actemra injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
Hi Everyone, I’m wondering if there is anyone on here who is managing their Actemra injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
LemonZest11
in
PMRGCAuk
1 year ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
5 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
5 months ago
Does having CLL really make you 3 times more likely to get (another) cancer, and does CLL treatment add to the risk? - Part 1
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
bennevisplace
in
CLL Support
5 months ago
Mild TI inflammation
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Sunita77
in
Bowel Disease Support
3 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
5 months ago
NUV-1511 drug-drug conjugate (DDC) to enter the clinical stage: phase 1
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
"Dosing the first patient with NUV-1511 marks a significant milestone for our proprietary DDC platform, from which we are developing potent oncology-focused chimeric small molecules designed to selectively deliver anti-cancer therapeutics to cancer cells, while mitigating effects on healthy non-target
Maxone73
in
Advanced Prostate Cancer
5 months ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
5 months ago
INSURANCE DENIED - STAGE 4 BREAST CANCER
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
Srikalakm
in
Breast Cancer India
5 months ago
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