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Sjorgren syndrome
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Following months of repeated eye infections, I have now been diagnosed with dry eyes, and drops certainly seem to be helping. However I came across an article on Sjorgren syndrome,. The list of symptoms include dry mouth, IBS, dry eyes, dry skin, joint problems, all of which I suffer from. I also get
Pippapot
in
MPN Voice
4 months ago
RA got worse after pneumonia
After pneumonia my ra took a turn for the worse. Could a medicine change help
After pneumonia my ra took a turn for the worse. Could a medicine change help
Vonnie69
in
NRAS
4 months ago
Help with steroid induced hyperglycaemia
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
AmberGamble
in
PMRGCAuk
4 months ago
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Azithromycin
Discharged recently from hospital after a long period of exacerbations and then pneumonia. After weeks of oral antibiotics and steroids had to have IV antibiotics. Next time I will probably have to begin IV immediately on flare up. I take 250 mg Azithromycin 3 times a week and was wondering does any
Discharged recently from hospital after a long period of exacerbations and then pneumonia. After weeks of oral antibiotics and steroids had to have IV antibiotics. Next time I will probably have to begin IV immediately on flare up. I take 250 mg Azithromycin 3 times a week and was wondering does any
kenta
in
Lung Conditions Community Forum
4 months ago
ToeNail fungus treatment and Methotrexate
I’ve recently been recommended Curanail by my footcare practitioner for a toe nail fungus condition. I wondered if any one has used this while taking weekly methotrexate, and sometimes Naproxen.My blood test results are all fine and RA is well controlled atm. Looking at the instructions it can take
I’ve recently been recommended Curanail by my footcare practitioner for a toe nail fungus condition. I wondered if any one has used this while taking weekly methotrexate, and sometimes Naproxen.My blood test results are all fine and RA is well controlled atm. Looking at the instructions it can take
L-ttie
in
NRAS
4 months ago
Night Terrors
Good morning everyone, I last posted about my night terrors , so I visited my doctor who changed the 30mg lansoprazole I was taking to 20 Esomeprazole but unfortunately still getting the disturbing night terrors feel so upset this morning the nightmare was so bad last night I was too scared to go
Good morning everyone, I last posted about my night terrors , so I visited my doctor who changed the 30mg lansoprazole I was taking to 20 Esomeprazole but unfortunately still getting the disturbing night terrors feel so upset this morning the nightmare was so bad last night I was too scared to go
lmpieroni
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
Sepsis - a timely reminder
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
[i]“The paramedics were reluctant to take me in,” he said. “They thought I should go and see my GP. I could have gone back to sleep. And I would have died I suppose. After a bit of remonstration they agreed [to take me]. No doubt at all Kati saved my life. If we had got there two hours later I would
bennevisplace
in
CLL Support
4 months ago
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
4 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
LeoTravels
in
MPN Voice
4 months ago
Kesimpta
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Jasperdoo
in
My MSAA Community
4 months ago
itch left upper back
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
Twopies
in
PMRGCAuk
5 months ago
Issues with tocilizumab?
Hello, my husband had an appointment with the Rheumatology nurse today. He is on tocilizumab but has had to have half dose as his liver blood results are too high. It is not as effective and he is developing problems with his hands. He is seeing the physiotherapist and an steroid injection was discussed
Hello, my husband had an appointment with the Rheumatology nurse today. He is on tocilizumab but has had to have half dose as his liver blood results are too high. It is not as effective and he is developing problems with his hands. He is seeing the physiotherapist and an steroid injection was discussed
strongmouse
in
NRAS
2 days ago
GCA or neck
Good evening all I am in Majorca at the moment, I have just had a 4night girlfriends break in Palma which was fun but very full on, lots of walking, late nights etc, I was diagnosed with GCA in Dec 2022, delayed temperal scan negative, I also have neck problems and symptoms I believe can be very similar
Good evening all I am in Majorca at the moment, I have just had a 4night girlfriends break in Palma which was fun but very full on, lots of walking, late nights etc, I was diagnosed with GCA in Dec 2022, delayed temperal scan negative, I also have neck problems and symptoms I believe can be very similar
Mumdadlove
in
PMRGCAuk
8 days ago
steroid injections and effect on adrenal
hi, hoping you can help me. I usually get an annual guided steroid injection in the nerves between two of my spinal vertebrates that are compressed. My question is will the steroid in this format stop my adrenals from waking up. I am currently at 5 mg daily of prednisone which I take at 6:00 am daily
hi, hoping you can help me. I usually get an annual guided steroid injection in the nerves between two of my spinal vertebrates that are compressed. My question is will the steroid in this format stop my adrenals from waking up. I am currently at 5 mg daily of prednisone which I take at 6:00 am daily
Janetknit
in
PMRGCAuk
10 days ago
Flare up after op
Hi, I had a knee arthroscopy around 12 days ago and my arthritis has flared up, mostly in the affected knee. I left it for a while in case it was just the op effects but pretty sure now that it is arthritis. Also my calf muscle has seized up, can that flare up too? Tried ringing hospital but their helpline
Hi, I had a knee arthroscopy around 12 days ago and my arthritis has flared up, mostly in the affected knee. I left it for a while in case it was just the op effects but pretty sure now that it is arthritis. Also my calf muscle has seized up, can that flare up too? Tried ringing hospital but their helpline
Fluffontoast
in
NRAS
15 days ago
Very painful steroid injection
Hello! I wanted some advice or to hear there’s light at the end of this miserable tunnel I have been getting steroid injections for the last 10 years into my toes and my thumbs. I have just had to move house and the packing put my hands into a lot of pain. So the doctor put steroids into my thumbs and
Hello! I wanted some advice or to hear there’s light at the end of this miserable tunnel I have been getting steroid injections for the last 10 years into my toes and my thumbs. I have just had to move house and the packing put my hands into a lot of pain. So the doctor put steroids into my thumbs and
Tonkie
in
NRAS
17 days ago
warning!! Long post
Thank goodness I’m a stubborn Taurine!! My rheumatology department has been stripped of staff… When I was first was diagnosed my treatment was amazing. i had a rheumatologist . A designated nurse who knew me by name easily contactable and never left me to suffer. A helpline everyday with immediate
Thank goodness I’m a stubborn Taurine!! My rheumatology department has been stripped of staff… When I was first was diagnosed my treatment was amazing. i had a rheumatologist . A designated nurse who knew me by name easily contactable and never left me to suffer. A helpline everyday with immediate
J1707-
in
NRAS
19 days ago
Osteoperosis
I have been having steroid injections in my thumbs due to osteo arthritis and wondered if these were OK to continue having as I now have osteoperosis?
I have been having steroid injections in my thumbs due to osteo arthritis and wondered if these were OK to continue having as I now have osteoperosis?
healthrls
in
Restless Legs Syndrome
20 days ago
Incomplete Behcets?!
So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria
So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria
TigerLily42
in
Behçet's UK
23 days ago
Steroid injection for knee pain
Hi I have recently been told that I need a knee replacement, but because I have had 3 stents in a blocked artery, I will have to wait 6 months for the OP! I am in quite a bit of pain and this is very dibilating, I cannot walk very far at all. I was wondering if I could have a steroid injection for the
Hi I have recently been told that I need a knee replacement, but because I have had 3 stents in a blocked artery, I will have to wait 6 months for the OP! I am in quite a bit of pain and this is very dibilating, I cannot walk very far at all. I was wondering if I could have a steroid injection for the
Bowser1966
in
Osteoarthritis Action
26 days ago
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