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Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
8 months ago
Fed Up.
Hello again, very long time, no see. I will freely admit that a huge part of my absence has been pure denial. As 2024 begins, I realise I have been a prisoner of my health problems since late 2020, when it all really kicked off probably due in no small way to our good friend Covid, both mentally and
Hello again, very long time, no see. I will freely admit that a huge part of my absence has been pure denial. As 2024 begins, I realise I have been a prisoner of my health problems since late 2020, when it all really kicked off probably due in no small way to our good friend Covid, both mentally and
Hammerhead56
in
AF Association
9 months ago
Asthma
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
E44E44
in
Asthma Community Forum
5 months ago
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frustrated with COVID
hi family. Well I got diagnosed with Covid 2 days ago. Not feeling terrible but coughing a lot with some mucous production. I noticed my skipped heart beats picked up a little bit tonight. Please help with some reassurance please…
hi family. Well I got diagnosed with Covid 2 days ago. Not feeling terrible but coughing a lot with some mucous production. I noticed my skipped heart beats picked up a little bit tonight. Please help with some reassurance please…
Rdiehl01
in
Atrial Fibrillation Support
9 months ago
Feeling poorly
Evening everyone, I have continued to feel increasingly unwell. Shoulder and neck pain continues and keeps me awake or wakes me up every night now. I sometimes wake up with sweat around my neck and chest. The steroid injection I had 13 days ago helped a bit to decrease the intensity of pain but it hasn
Evening everyone, I have continued to feel increasingly unwell. Shoulder and neck pain continues and keeps me awake or wakes me up every night now. I sometimes wake up with sweat around my neck and chest. The steroid injection I had 13 days ago helped a bit to decrease the intensity of pain but it hasn
MsWhistledown
in
Thyroid UK
9 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
10 months ago
PMR and new COVID mNRA vaccine
I was 1 month off prednisone in March 2021 when I received the second of two initial (Moderna) vaccines. PMR came back within a couple days; could not lift my arms or turn over in bed. I started back on prednisone sometime in April 2021 after blood tests showed elevated ESR and CRP. I’ve had no trouble
I was 1 month off prednisone in March 2021 when I received the second of two initial (Moderna) vaccines. PMR came back within a couple days; could not lift my arms or turn over in bed. I started back on prednisone sometime in April 2021 after blood tests showed elevated ESR and CRP. I’ve had no trouble
PUMC
in
PMRGCAuk
9 months ago
GP appointment and blood tests - will recent steroid injection skew results?
Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. Went through everything that has happened since the summer. She sent me for blood tests today which included CRP, ESR, Rheumatoid factor and various other tests relating to autoimmune conditions. She insisted I call back for
Afternoon everyone, I had a GP appointment yesterday to discuss my symptoms. Went through everything that has happened since the summer. She sent me for blood tests today which included CRP, ESR, Rheumatoid factor and various other tests relating to autoimmune conditions. She insisted I call back for
MsWhistledown
in
PMRGCAuk
9 months ago
what next?
I was diagnosed with PMR five years ago and my gp kept me on Prednisolone for two years which resulted in a catalogue of side effects including glaucoma and cataracts. My diagnosis was confirmed as RA shortly after. I have been taking methotrexate successfully since. However my condition has worsened
I was diagnosed with PMR five years ago and my gp kept me on Prednisolone for two years which resulted in a catalogue of side effects including glaucoma and cataracts. My diagnosis was confirmed as RA shortly after. I have been taking methotrexate successfully since. However my condition has worsened
Pange63
in
NRAS
9 months ago
24/7 Acid Reflux
Good day, I developed very bad acidity in July 2021 just after having Covid-19. I woke up one evening with a very bad acidic taste in my mouth and it has never gone away ever since. It feels like I have a cup of lemon juice in my mouth 24/7. I have been to numerous doctors and specialist and none seem
Good day, I developed very bad acidity in July 2021 just after having Covid-19. I woke up one evening with a very bad acidic taste in my mouth and it has never gone away ever since. It feels like I have a cup of lemon juice in my mouth 24/7. I have been to numerous doctors and specialist and none seem
Snowflake10
in
Acid Reflux Support
9 months ago
Covid
Hi all I have a dilemma facing me . As you know , I have had covid in the last few weeks and still getting over it . My sons girlfriend is having a party with about 90 people ! . My son is going to propose, which we couldn't be more happier. She had no idea . I have not said for sure I will go, they
Hi all I have a dilemma facing me . As you know , I have had covid in the last few weeks and still getting over it . My sons girlfriend is having a party with about 90 people ! . My son is going to propose, which we couldn't be more happier. She had no idea . I have not said for sure I will go, they
Stavrou1
in
CLL Support
9 months ago
Metformin reduced Long Covid
Metformin is an old but well established diabetes drug. This study found a substantial benefit with metformin to prevent long covid. The attached plot shows this 41% reduction. https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00299-2/fulltext And up to 63% if taken in time:
Metformin is an old but well established diabetes drug. This study found a substantial benefit with metformin to prevent long covid. The attached plot shows this 41% reduction. https://www.thelancet.com/journals/laninf/article/PIIS1473-3099(23)00299-2/fulltext And up to 63% if taken in time:
EPguy
in
MPN Voice
9 months ago
walking aids???
has any used a walking aid to improve balance as I walk looking at the ground and I can’t look to the side without stopping first .. flat ground is the best and uneven or incline causes pain in my old hamstring injury and the new hip pain I have developed .. I also still walk slightly to one side
has any used a walking aid to improve balance as I walk looking at the ground and I can’t look to the side without stopping first .. flat ground is the best and uneven or incline causes pain in my old hamstring injury and the new hip pain I have developed .. I also still walk slightly to one side
Teazymaid
in
Headway
3 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
5 months ago
Covid recovery
Hi, I tested positive on 15th December and was positive for 14 days. It attacked my lungs this time and was bad. From day 1 I was prescribed steroids and a 2 week course of Docyciclyne to take alongside my nebuliser. I’m now on my third course of steroids and my peak flow is still only about 310. Heart
Hi, I tested positive on 15th December and was positive for 14 days. It attacked my lungs this time and was bad. From day 1 I was prescribed steroids and a 2 week course of Docyciclyne to take alongside my nebuliser. I’m now on my third course of steroids and my peak flow is still only about 310. Heart
Dham
in
Lung Conditions Community Forum
9 months ago
Sore mouth and tongue with GCA
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Bummed24
in
PMRGCAuk
2 months ago
Low BP in afib and covid
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
Karendeena
in
AF Association
9 months ago
questions
In the summer, I noticed sporadic noises in one ear. It only happened at night, when lying down to sleep. It was almost like a deep and faint squeak. It lasted 2 days and went away. Months later, after developing a sinus cold, it returned. I did not react immediately as I thought it would pass. After
In the summer, I noticed sporadic noises in one ear. It only happened at night, when lying down to sleep. It was almost like a deep and faint squeak. It lasted 2 days and went away. Months later, after developing a sinus cold, it returned. I did not react immediately as I thought it would pass. After
Healthymetoday
in
Tinnitus UK
9 months ago
PMR symptoms after steroid injection 12 days ago
Happy New Year everyone. I hope you all had a wonderful Christmas .🎄 I posted just before Christmas about awful shoulder and neck pain and that I saw a private doctor who thinks my symptoms are PMR. He gave me a steroid injection. It has helped dampen down the pain. It was excruciating but has since
Happy New Year everyone. I hope you all had a wonderful Christmas .🎄 I posted just before Christmas about awful shoulder and neck pain and that I saw a private doctor who thinks my symptoms are PMR. He gave me a steroid injection. It has helped dampen down the pain. It was excruciating but has since
MsWhistledown
in
PMRGCAuk
9 months ago
steroid injection
Hi everyone Happy New Year to you all. Can anyone answer my question if it's safe to have a steroid injection for frozen shoulder if you have open angle glaucoma? Don't know what to do. Many thanks in advance.
Hi everyone Happy New Year to you all. Can anyone answer my question if it's safe to have a steroid injection for frozen shoulder if you have open angle glaucoma? Don't know what to do. Many thanks in advance.
callie77
in
Glaucoma UK
9 months ago
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