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aspergillosis
recently diagnosed with aspergillosis , a fungus, bacterial infection but have been struggling with pneumonia every few months for 2 years now. I would appreciate any information anyone has regarding this diagnosis, medications, treatments and outcomes.
recently diagnosed with aspergillosis , a fungus, bacterial infection but have been struggling with pneumonia every few months for 2 years now. I would appreciate any information anyone has regarding this diagnosis, medications, treatments and outcomes.
DonnaMc1968
in
Cure Parkinson's
1 year ago
5 weeks after foot surgery
Well 5 weeks ago I had surgery on both feet. A toe fusion on one foot & a an amputation of the toe end on the other foot. It’s not been easy but I’m getting there. The fusion was going to be a tendon release but continuing to a fusion if the release didn’t work. That’s ok it’s what we agreed but it
Well 5 weeks ago I had surgery on both feet. A toe fusion on one foot & a an amputation of the toe end on the other foot. It’s not been easy but I’m getting there. The fusion was going to be a tendon release but continuing to a fusion if the release didn’t work. That’s ok it’s what we agreed but it
Otto11
in
NRAS
1 year ago
Chicken Pox Exposure
I’m on 3.1 mg of Prednisolone for PMR. My son has just asked us to babysit our 18 month old granddaughter, who was vaccinated against Chicken Pox ( live vaccine) 4 days ago I’m not sure if I should babysit or not. Is there any risk involved in being close to a newly vaccinated baby and if so how
I’m on 3.1 mg of Prednisolone for PMR. My son has just asked us to babysit our 18 month old granddaughter, who was vaccinated against Chicken Pox ( live vaccine) 4 days ago I’m not sure if I should babysit or not. Is there any risk involved in being close to a newly vaccinated baby and if so how
Prahran
in
PMRGCAuk
1 year ago
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Duloxetine
Hi all, I’ve been suffering with IBS-M for over 3 years now. As a result Anxiety has been exacerbated for around the same amount of time and led to mild agrophobia and severe GAD. I’ve been prescribed Duloxetine for the anxiety, and have also heard it can be beneficial for IBS suffers. However,
Hi all, I’ve been suffering with IBS-M for over 3 years now. As a result Anxiety has been exacerbated for around the same amount of time and led to mild agrophobia and severe GAD. I’ve been prescribed Duloxetine for the anxiety, and have also heard it can be beneficial for IBS suffers. However,
d0nutt
in
IBS Network
1 year ago
Valium RLS
Is anyone using Valium/diazepam or any other benzo to treat RLS? The Horizant that I’ve been using for the last year and a half isn’t working as well as it used to.
Is anyone using Valium/diazepam or any other benzo to treat RLS? The Horizant that I’ve been using for the last year and a half isn’t working as well as it used to.
tagaxel
in
Restless Legs Syndrome
1 year ago
Update on timeline for Spring 2023 COVID-19 boosters
We've updated our article on the COVID-19 vaccination programme with the dates for the Spring 2023 booster programme. A summary of the timeline: - People who are eligible will start receiving invitations to book soon (due to bank holidays you may not receive your letter until after the 11th April).
We've updated our article on the COVID-19 vaccination programme with the dates for the Spring 2023 booster programme. A summary of the timeline: - People who are eligible will start receiving invitations to book soon (due to bank holidays you may not receive your letter until after the 11th April).
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Quick update for people newly getting letters about COVID-19 treatment eligibility
Last week there was a lot of discussion from people saying they've received letters or emails telling them that they are eligible for free lateral flow tests and/or COVID-19 treatments when they hadn't been eligible before. Just a quick update to say that it was confirmed that more people have been
Last week there was a lot of discussion from people saying they've received letters or emails telling them that they are eligible for free lateral flow tests and/or COVID-19 treatments when they hadn't been eligible before. Just a quick update to say that it was confirmed that more people have been
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Nicotinamide riboside supplementation is not associated with altered methylation homeostasis in Parkinson`s disease.
https://www.cell.com/iscience/fulltext/S2589-0042(23)00355-3 Highlights • NR 1000mg/day for 30 days does not alter the global DNA methylation profile in blood • NR does not impact DNA methylation in individuals carrying common MTHFR mutations • Pathway and methylation variance analyses indicate
https://www.cell.com/iscience/fulltext/S2589-0042(23)00355-3 Highlights • NR 1000mg/day for 30 days does not alter the global DNA methylation profile in blood • NR does not impact DNA methylation in individuals carrying common MTHFR mutations • Pathway and methylation variance analyses indicate
Hidden
in
Cure Parkinson's
1 year ago
Lost a dear friend yesterday from complications of pneumonia
He had methesilioma and been hospitalised twice since Christmas with infection and pneumonia. He will be missed ❤️
He had methesilioma and been hospitalised twice since Christmas with infection and pneumonia. He will be missed ❤️
B0xermad
in
Lung Conditions Community Forum
1 year ago
Rage at GP
Sorry all I need to rant. Just back from GP appointment and I am outraged. Explained to him about my extreme levels of pain and his response was that people with "fibro" lead normal lives and that the diagnosis is given when the consultant doesn't know what's wrong with you!!! Said the pain clinic
Sorry all I need to rant. Just back from GP appointment and I am outraged. Explained to him about my extreme levels of pain and his response was that people with "fibro" lead normal lives and that the diagnosis is given when the consultant doesn't know what's wrong with you!!! Said the pain clinic
Macdoual
in
Fibromyalgia Action UK
11 months ago
Thoughts on L lysine
Hi everyone, I suffer from cold sores and I wanted to know if anybody take L lysine along with the valtrex or acyclovir ? I have been having one outbreak after another , just trying to get this to calm down. Any suggestions greatly appreciated. Thank you !
Hi everyone, I suffer from cold sores and I wanted to know if anybody take L lysine along with the valtrex or acyclovir ? I have been having one outbreak after another , just trying to get this to calm down. Any suggestions greatly appreciated. Thank you !
Jances13
in
LUPUS UK
11 months ago
"Long Covid" FYI
Listen from 20mins if you want to skip the beginning, its very technical. And apparently the video link is not working so go to Youtube and type in Professor Clancy, long covid and immunity A great interview with prof. Robert Clancy. He is a retired Australian clinical immunologist in the field
Listen from 20mins if you want to skip the beginning, its very technical. And apparently the video link is not working so go to Youtube and type in Professor Clancy, long covid and immunity A great interview with prof. Robert Clancy. He is a retired Australian clinical immunologist in the field
TonyB1972
in
AF Association
1 year ago
Looking for a Surgeon with Specific Skills
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
Anthonyve
in
Advanced Prostate Cancer
11 months ago
recent Covid infection and sle activity
hello everyone! So I’ve had sle since I was 13- it was rough then but then it was mild all along. I tested positive for Covid about 3 days ago - annoying sore throat, congestion and body aches, now feeling better but I’m starting to feel like my joints, specially my elbow and knees are aching. I’m
hello everyone! So I’ve had sle since I was 13- it was rough then but then it was mild all along. I tested positive for Covid about 3 days ago - annoying sore throat, congestion and body aches, now feeling better but I’m starting to feel like my joints, specially my elbow and knees are aching. I’m
Jamzie
in
LUPUS UK
1 year ago
anyone been tested for perimenopause?
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
ForABabyPanda
in
Endometriosis UK
1 year ago
anyone been tested for perimenopause?
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
hey - just got my period again 11 days after I started the last one. It’s not the first time in the last 2 years that I’ve had a really short period like this but it’s definitely the shortest - and I thought there was nothing y around this data that could have set it off -8 don’t have covid, haven’t
ForABabyPanda
in
Fertility Network UK
1 year ago
second vasectomy reversal- waiting results. Has anyone got a similar story?
My husband and I have been together 7 years. He had vasectomy from previous relationship, he is 11 years older than me and has a 13 y/o son. Fast forward us being together and me being only 26/27 he had a vasectomy reversal about 4 years after the vasectomy. It was successful and we have a beautiful
My husband and I have been together 7 years. He had vasectomy from previous relationship, he is 11 years older than me and has a 13 y/o son. Fast forward us being together and me being only 26/27 he had a vasectomy reversal about 4 years after the vasectomy. It was successful and we have a beautiful
Shaketheglitter
in
Fertility Network UK
11 months ago
Covid
Also know of 7 people who came away from a wedding with covid.
Also know of 7 people who came away from a wedding with covid.
Wantplaytennis
in
NRAS
1 year ago
Did Covid vaccination cause Fb/ME/CFS?
Hi everyone. Just wondering if there is anyone else out there who's Fb/ME/CFS started after their Covid vaccination!?
Hi everyone. Just wondering if there is anyone else out there who's Fb/ME/CFS started after their Covid vaccination!?
Bethenny
in
Fibromyalgia Action UK
1 year ago
frustrated with restriction of naproxen
After an unsuccessful spinal fusion surgery in 2001(and 2 more since) I’ve been taking naproxen for about 15 years and get that together with a long list of other pain meds every 3 months,I’ve now been told I can only have 2 month supply of naproxen at a time which is messing up my repeat meds routine
After an unsuccessful spinal fusion surgery in 2001(and 2 more since) I’ve been taking naproxen for about 15 years and get that together with a long list of other pain meds every 3 months,I’ve now been told I can only have 2 month supply of naproxen at a time which is messing up my repeat meds routine
Paiger1
in
NRAS
1 year ago
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