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Exercise and PMR
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
I am posting an update and a question. Since discovering I have PMR in Sept 2023 and starting on Pred at 15 mg, I have had a slightly bumpy start to my PMR journey. Was getting used to being on Pred when I had a visit from the Covid fairy which took a couple of weeks to clear, but I still feel I have
Indigo2417
in
PMRGCAuk
8 months ago
What would cause spontaneous prostate stimulation?
What would cause spontaneous prostate stimulation while lying on my back? When I lie down, in a few seconds it feels like someone is manually stimulating my prostate. This lasts for hours at a time and I cannot sleep. This started immediately after a nocturnal emission, and I haven't had one since, even
What would cause spontaneous prostate stimulation while lying on my back? When I lie down, in a few seconds it feels like someone is manually stimulating my prostate. This lasts for hours at a time and I cannot sleep. This started immediately after a nocturnal emission, and I haven't had one since, even
Hidden
in
Men's Health Forum
17 days ago
Free Genetic Testing Promise Trial
When I was diagnosed with this cancer and looked into this forum for guidance the topic of genetic testing and its potential applications sounded like something I should investigate since I had no info on my biological father’s medical history and my mom died of cervical cancer. My local urologist wanted
When I was diagnosed with this cancer and looked into this forum for guidance the topic of genetic testing and its potential applications sounded like something I should investigate since I had no info on my biological father’s medical history and my mom died of cervical cancer. My local urologist wanted
Mgtd
in
Advanced Prostate Cancer
18 days ago
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dengue fever vaccinate or not?
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
I started off on 15mg Pred in October and am now down to 10mg. I am off to India (Rajasthan) in February and dengue fever vaccine has been suggested. As it is a live vaccine I am not sure whether having the vaccine is worth the risk of contracting dengue. Any advice? Also big thanks to the community
Hb22
in
PMRGCAuk
7 months ago
Habituation
Hi. I'm 14 months in with T. Aged 47, male. Has several hearing checks, minor hearing loss but doesn't warrant hearing aids. My main question was about habituation. How exactly do you define this? I've got to a point were it doesn't cause me distress, it's more annoying than anything else. Is this a
Hi. I'm 14 months in with T. Aged 47, male. Has several hearing checks, minor hearing loss but doesn't warrant hearing aids. My main question was about habituation. How exactly do you define this? I've got to a point were it doesn't cause me distress, it's more annoying than anything else. Is this a
Zicaton
in
Tinnitus UK
20 days ago
first orthotics
disappointed. The podiatrist hardly looked at the foot and spent most of the appointment typing then without any measurements or gait test said he’s ordered me a pair that would arrive by post in the fullness of time. I suspect these will be no better than the well known brand I ordered online and
disappointed. The podiatrist hardly looked at the foot and spent most of the appointment typing then without any measurements or gait test said he’s ordered me a pair that would arrive by post in the fullness of time. I suspect these will be no better than the well known brand I ordered online and
Stills
in
NRAS
5 months ago
QoL-Lick the spoon
This is an IF, WHEN and NOW thought process. I know many of you have already been through this stage because of your cancer but a few people ( new members and a few regulars) haven’t embraced these ideas. How many of you have probably said to yourself IF this treatment works we’re going to go on a
This is an IF, WHEN and NOW thought process. I know many of you have already been through this stage because of your cancer but a few people ( new members and a few regulars) haven’t embraced these ideas. How many of you have probably said to yourself IF this treatment works we’re going to go on a
MouseAddams
in
Advanced Prostate Cancer
8 months ago
Covid & dosing
Hi, I tested +ve for covid this morning. It's the first time I've had it. I've had 5 vacs. My temperature is high & I'm taking paracetamol for that.My question is, should I alter my T4/NDT dose? I haven't been ill at all since I started on thyroid meds in 2015. I wondered if I should increase, decrease
Hi, I tested +ve for covid this morning. It's the first time I've had it. I've had 5 vacs. My temperature is high & I'm taking paracetamol for that.My question is, should I alter my T4/NDT dose? I haven't been ill at all since I started on thyroid meds in 2015. I wondered if I should increase, decrease
amala57
in
Thyroid UK
8 months ago
Have COVID - should I get Paxlovid/
I have CLL and in W&W and also have ET. I am 67 yrs old, fully vaccinated and otherwise in good health Tested positive yesterday for COVID. Day three of my symptoms are uncomfortable but bearable. Should I get Paxlovid?
I have CLL and in W&W and also have ET. I am 67 yrs old, fully vaccinated and otherwise in good health Tested positive yesterday for COVID. Day three of my symptoms are uncomfortable but bearable. Should I get Paxlovid?
Lambo1
in
CLL Support
8 months ago
drugs repurposing: another promising path!
not yet tested for prostate cancer (I think) but still… “But two years after starting a treatment regimen that combined ruxolitinib with the checkpoint inhibitor nivolumab—a current standard of care—87% of patients were still alive, and 46% stopped exhibiting signs of cancer progression altogether.”
not yet tested for prostate cancer (I think) but still… “But two years after starting a treatment regimen that combined ruxolitinib with the checkpoint inhibitor nivolumab—a current standard of care—87% of patients were still alive, and 46% stopped exhibiting signs of cancer progression altogether.”
Maxone73
in
Advanced Prostate Cancer
26 days ago
Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Hello, have many UK people found it easy or hard to get Buprenorphine px by GP to control pain from RLS? I have been withdrawing from Pramepexole and using only codeine however it is now not effective in controlling my pain. I have a GP appointment in a few days and was going to ask for Buprenorphine
Cookiebum24
in
Restless Legs Syndrome
3 months ago
Natural cycle FET likely to be cancelled due to ovulation on small follicle. What does this mean about my eggs/ ovaries? Having a wobble
Oh it's been a trial. Last month my cycle was cancelled due to COVID and this month, my bloods show I'm due to ovulate but follicle is only 12mm. I have been quite ill with Covid and pretty stressed getting ready to start a new job but was so hopeful to get this transfer done before Christmas but my
Oh it's been a trial. Last month my cycle was cancelled due to COVID and this month, my bloods show I'm due to ovulate but follicle is only 12mm. I have been quite ill with Covid and pretty stressed getting ready to start a new job but was so hopeful to get this transfer done before Christmas but my
Minniemouse88
in
Fertility Network UK
8 months ago
FET in 4 days and nasty cold
I am so worried now, our FET is this Thursday and some nasty cold got me this weekend. I am afraid to take any cold/flu meds so it won't mess up with my lining etc 🙈 Has anyone been not well before or during transfer and it affected the outcome?
I am so worried now, our FET is this Thursday and some nasty cold got me this weekend. I am afraid to take any cold/flu meds so it won't mess up with my lining etc 🙈 Has anyone been not well before or during transfer and it affected the outcome?
Glaedy
in
Fertility Network UK
4 months ago
Covid, strange beast.
I find Covid a bizarre virus. I have had 3 times , hospitalised once. I am in remission after stage 4 diagnosis in 2020. My wife last returned from a company business meeting in Malta attended by 500 employees. She and many of her work mates now in bed with Covid. This is the 4th time my wife has had
I find Covid a bizarre virus. I have had 3 times , hospitalised once. I am in remission after stage 4 diagnosis in 2020. My wife last returned from a company business meeting in Malta attended by 500 employees. She and many of her work mates now in bed with Covid. This is the 4th time my wife has had
stevesmith1964
in
CLL Support
8 months ago
Fod Map Diet
Good morning have been on Fodmap diet since March . Has been getting less strict as I eat some dairy but my diet is generally getting more and more restricted.Im also a Pescatarian and feel that I aren’t getting enough protein or variation . Main Symptoms are Anxiety,dizziness,tinnitus,Nausea,wind
Good morning have been on Fodmap diet since March . Has been getting less strict as I eat some dairy but my diet is generally getting more and more restricted.Im also a Pescatarian and feel that I aren’t getting enough protein or variation . Main Symptoms are Anxiety,dizziness,tinnitus,Nausea,wind
Imisspizza
in
IBS Network
8 months ago
dipyridamole
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
I’m going to try this next week when I get an Rx. Looking for any pointers from anyone who has had success with it. I gather that 225mg is a common dose for RLS (three 75mg pills). I intend to start with one pill and titrate up to three quickly if there are no issues. I’m currently using buprenorphine
707twitcher
in
Restless Legs Syndrome
3 months ago
Anyone find cold plunge or sauna helpful?
I'm six weeks in on ADT. Working to stay ahead of fatigue with resistance training and weighted vest walking as I gear up for radiation and chemo in the next few months. Anyone done any cold plunge or sauna to help battle side effects or get better sleep? What was your experience?
I'm six weeks in on ADT. Working to stay ahead of fatigue with resistance training and weighted vest walking as I gear up for radiation and chemo in the next few months. Anyone done any cold plunge or sauna to help battle side effects or get better sleep? What was your experience?
PuraVida2024
in
Advanced Prostate Cancer
1 month ago
Afib worse since Ablation
I had Covid in Oct 2022. I was 57 at the time and in really great shape. I exercise everyday, average about 15,000 steps a day and fast 2 to 3 days a week. As my Covid was winding down and I was feeling better I started having Afib Episodes for the first time in my life. They started off
I had Covid in Oct 2022. I was 57 at the time and in really great shape. I exercise everyday, average about 15,000 steps a day and fast 2 to 3 days a week. As my Covid was winding down and I was feeling better I started having Afib Episodes for the first time in my life. They started off
filmguy5
in
AF Association
9 months ago
Adrenal crisis or flare ?
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday
Cyclo5
in
Thyroid UK
9 months ago
Adrenal Crisis or a Flare?
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday afternoon
Evening all, I've been a casual observer for many months now - my PMR was 'gone' (ie in remission/on holiday/not troubling me) and I had adjusted to Adrenal Insufficiency and a likely permanent dose of Hydrocortisone and Vitamin D. I recovered from a dose of covid about 3 weeks ago. On Saturday afternoon
Cyclo5
in
PMRGCAuk
9 months ago
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