When I was diagnosed with this cancer and looked into this forum for guidance the topic of genetic testing and its potential applications sounded like something I should investigate since I had no info on my biological father’s medical history and my mom died of cervical cancer.
My local urologist wanted nothing to do with this type of testing. He either lacked knowledge or did not want the responsibility of any genetic counseling so I was on my own.
I found a free genetic testing trial called PROMISE that would pay for it and do any genetic counseling if warranted. So I enrolled and did the testing. Super easy and really a professional experience.
I also belong to a unique community that has a very high incident of cancers. If you are interested here is the web site.
Thank you for posting this. I did the PROMISE study as well. I encourage everyone I know with PC to sign up for it. The process was super easy and I got the results back quickly.
yes anyone can apply and it is free and admission is simply a matter of completing the application.
The other is a survey applicable to prior and existing service members as who were aircrew members in the armed forces.
I included this to hopefully gain some exposure for this effort. If you go to the promise page you will find other on going research opportunities that may interest you.
Thank you for your interest in the PROMISE Registry.
Color is collaborating with the PROMISE Registry, a research study to better understand how inherited genetic mutations and other health factors affect prostate cancer. If you decide to participate in the PROMISE registry you’ll get a free clinical-grade genetic test from Color.
For anyone with prostate cancer, there are often more questions than answers. Your DNA may be the key to unlocking some of these answers for you and your family.
The goal of this study is to help researchers understand the mutations that can lead to prostate cancer in your family. It does not provide or offer any treatment for prostate cancer.
Participating in this study can help you understand the role your DNA plays in your diagnosis. It can help you and your doctor decide if new treatments or research opportunities make sense for you.
To understand whether you're eligible for the study, we will ask you some questions. If you’re eligible, you'll be able to enroll in the study.
If you’re eligible and enroll in the study:
Color will send you a hereditary genetic test kit to provide a saliva sample.
Color will test your saliva sample, and send you personalized genetic results at no cost to you. Color’s lab is CAP-accredited and CLIA-certified to ensure the integrity of the results.
Your results will help the PROMISE Registry researchers understand the genetic mutations that lead to prostate cancer.
Learn more about the PROMISE registry at prostatecancerpromise.org.
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