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CLL and transformation to Richter Syndrome after having the flu vaccine
Help all, I have been reading the posts over the past few years, I’m so relieved to have found this support group. My father was diagnosed at 69 with CLL 9 years ago. He is now 78. He has never had treatment so far as his heamatologist said his numbers were not high enough. We live in Australia. He
Help all, I have been reading the posts over the past few years, I’m so relieved to have found this support group. My father was diagnosed at 69 with CLL 9 years ago. He is now 78. He has never had treatment so far as his heamatologist said his numbers were not high enough. We live in Australia. He
GreatDad
in
CLL Support
3 years ago
Second AZ Covid injection
I recently had my second Astrazeneca vaccination. After the first one, there was no reaction at all, even after the yearly flu jab, I get arm swelling. The second injection was a whole different ball game. The evening of the second: Teeth chattering shivers, flu like aches, weakness that was so bad
I recently had my second Astrazeneca vaccination. After the first one, there was no reaction at all, even after the yearly flu jab, I get arm swelling. The second injection was a whole different ball game. The evening of the second: Teeth chattering shivers, flu like aches, weakness that was so bad
lupie46
in
LUPUS UK
3 years ago
Liver and bacon
Hi I was just wondering if anyone knows if you can have liver and bacon with cirrhosis because I love it but not sure if I can have it also the same with bacon and onion suet pudding thanks Mary
Hi I was just wondering if anyone knows if you can have liver and bacon with cirrhosis because I love it but not sure if I can have it also the same with bacon and onion suet pudding thanks Mary
Sexy1971
in
British Liver Trust
3 years ago
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PBC and Autoimmune Hepatitis
Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over the years dispite using Urso and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with
Diagnosed with PBC 2012 last biopsy 3yrs ago stage 2. Labs not improving over the years dispite using Urso and Ocaliva combined. Now trying steroids and bone marrow suppressants incase I have autoimmune hepatitis. My Alt and Ast stabalized but still have elevated alk phos. Any body out there with
Q8Cooper
in
PBC Foundation
3 years ago
meningitis vaccine
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
Do CLL patients who have never had meningitis vaccine need two doses? I am asking about the meningitis vaccine for strains ACWY, such as Menactra, not the Hib/MenC vaccine. It looks like two doses are recommended based on google search but my Dr did not mention getting a second dose.
pth123
in
CLL Support
3 years ago
Has anyone been diagnosed with AIH wrongly?
My 20 year old son has been having blood tests for over a year (due to the pandemic all follow up appointments were cancelled) I’ve been chasing the hospital constantly to give a diagnosis but each time they’ve said do more tests. Finally last week a consultant told him he’s possibly got AIH. This has
My 20 year old son has been having blood tests for over a year (due to the pandemic all follow up appointments were cancelled) I’ve been chasing the hospital constantly to give a diagnosis but each time they’ve said do more tests. Finally last week a consultant told him he’s possibly got AIH. This has
Jess246
in
British Liver Trust
3 years ago
New thyroid bloods
Hi There I followed all the protocols advised before these bloods and I do not take b vitamins. I have come off armour 7 weeks ago. I am wanting to try and get optimal on levo and a seperate T3 if possible. I have followed advice on here to get bloods just based on Levo before adding T3. Any advice
Hi There I followed all the protocols advised before these bloods and I do not take b vitamins. I have come off armour 7 weeks ago. I am wanting to try and get optimal on levo and a seperate T3 if possible. I have followed advice on here to get bloods just based on Levo before adding T3. Any advice
Fanky
in
Thyroid UK
3 years ago
What's my next step?
Hello! I was previously a member here before I flounced off! I was diagnosed in June last year and I'm now, finally, on 125mcg of levo. My most result results are attached. I am taking 4000iu Vit D, magnesium and K2, thorne B vitamins, selenium and spatone. (B Vits stopped a week before bloods.) I'd
Hello! I was previously a member here before I flounced off! I was diagnosed in June last year and I'm now, finally, on 125mcg of levo. My most result results are attached. I am taking 4000iu Vit D, magnesium and K2, thorne B vitamins, selenium and spatone. (B Vits stopped a week before bloods.) I'd
Hidden
in
Thyroid UK
3 years ago
Previously on here expressing that i didn’t want to take my meds x
Hi everyone just wanted to update you all as I have since read the comments on my post I have rejoined as I’d left . I’ve sought help through my Tb nurse I’m now receiving the help I need as I’ve been suffered with very low mood and neuropathy in my hands caused by the medication and the guilt of infected
Hi everyone just wanted to update you all as I have since read the comments on my post I have rejoined as I’d left . I’ve sought help through my Tb nurse I’m now receiving the help I need as I’ve been suffered with very low mood and neuropathy in my hands caused by the medication and the guilt of infected
87wise
in
TB Alert
3 years ago
Shingles vaccination
I had a phone call from my GP to have a Shingles vaccine next week. I didn't manage to ask whether it will be a live or non-live vaccine. Last year I heard an acquaintance of mine with RA said she had been refused by her GP for the shingle vaccine because of RA. Anyone has the shingle vaccination
I had a phone call from my GP to have a Shingles vaccine next week. I didn't manage to ask whether it will be a live or non-live vaccine. Last year I heard an acquaintance of mine with RA said she had been refused by her GP for the shingle vaccine because of RA. Anyone has the shingle vaccination
Cien
in
NRAS
3 years ago
So tired!
It could've been worse, so I didn't mind the mild headache and I knew I would be sleepy because I was after the 1st pfizer vaccine. Energy is starting to come back tho! Yeah! ☺️ Also emailed my neuro about when to get the shingles vaccine after getting the covid vac. Cause I still have to get that
It could've been worse, so I didn't mind the mild headache and I knew I would be sleepy because I was after the 1st pfizer vaccine. Energy is starting to come back tho! Yeah! ☺️ Also emailed my neuro about when to get the shingles vaccine after getting the covid vac. Cause I still have to get that
Jesmcd2
CommunityAmbassador
in
My MSAA Community
3 years ago
Advice on increasing vitamins /energy.
Hi all, I'm writing in desperation for help. I am a mum of an 8 year old & 2 year old. I am struggling with energy & having so much mum guilt as I struggle to get up and out and keep them busy on a daily basis. My Gp/ endocrinologist have said my levels are normal but I really don't think this lack
Hi all, I'm writing in desperation for help. I am a mum of an 8 year old & 2 year old. I am struggling with energy & having so much mum guilt as I struggle to get up and out and keep them busy on a daily basis. My Gp/ endocrinologist have said my levels are normal but I really don't think this lack
georgiego
in
Thyroid UK
3 years ago
Covid vaccination?
Hi all This is a long shot but I've just been reading about the flu vaccine on here and wondering if my latest symptoms might be down to my first Covid vaccination ( AZ) in the middle of February. I started shoulder, neck stiffness, soreness last summer but ultrasound scan has shown tears in tendons
Hi all This is a long shot but I've just been reading about the flu vaccine on here and wondering if my latest symptoms might be down to my first Covid vaccination ( AZ) in the middle of February. I started shoulder, neck stiffness, soreness last summer but ultrasound scan has shown tears in tendons
Beevbops
in
PMRGCAuk
3 years ago
Thyroid or Vaccinations?
Good morning everyone. I have now worked my way upto 75mg of levothyroxine after a slow process. My current issue is I feel like the Tin Man who needs oiling. I am really stiff and in pain all over. My left ankle is quite swollen and my left foot bones hurt so much so I have been limping on occasion
Good morning everyone. I have now worked my way upto 75mg of levothyroxine after a slow process. My current issue is I feel like the Tin Man who needs oiling. I am really stiff and in pain all over. My left ankle is quite swollen and my left foot bones hurt so much so I have been limping on occasion
maplewood
in
Thyroid UK
3 years ago
Advice needed! ❤️
Hi everyone! I’m brand new here & I’m looking for help/advice. So my doctor sent me for blood tests after I had intense full body itching & I got the call that I have Hep C. I’m absolutely gutted. I was an IV addict 6 years ago so I’m assuming I caught the virus through this? I’m waiting to be referred
Hi everyone! I’m brand new here & I’m looking for help/advice. So my doctor sent me for blood tests after I had intense full body itching & I got the call that I have Hep C. I’m absolutely gutted. I was an IV addict 6 years ago so I’m assuming I caught the virus through this? I’m waiting to be referred
BadDecisions
in
Hepatitis C Trust
3 years ago
The Rice Diet Revisited- Who & what drove Dr. Kempner to invent the Rice Diet!
Dr Walter Kempner ( 1903-1997) was Nazi Refugee in Germany during world war-2, who taught in Dukes University. During 1939, he was treating his hypertension Patients with Kidney failure. Those days there was no kidney transplant , no dialysis....and the patients those days knew that the final outcome
Dr Walter Kempner ( 1903-1997) was Nazi Refugee in Germany during world war-2, who taught in Dukes University. During 1939, he was treating his hypertension Patients with Kidney failure. Those days there was no kidney transplant , no dialysis....and the patients those days knew that the final outcome
namaha
Administrator
in
Diabetes India
3 years ago
Methetrexate with covid vaccine
I had a flu jab a few months ago and for the first time ever I was told to stop taking methetrexate for 3 weeks after.Had the covid jab about a month ago but wasn't told to stop taking methetrexate, anyone been told to stop taking methetrexate with the covid jab?Thanks in advance people👍👍👍👍👍
I had a flu jab a few months ago and for the first time ever I was told to stop taking methetrexate for 3 weeks after.Had the covid jab about a month ago but wasn't told to stop taking methetrexate, anyone been told to stop taking methetrexate with the covid jab?Thanks in advance people👍👍👍👍👍
Ruskytron
in
NRAS
3 years ago
Any side effects from flu jab?
I'm new here. Diagnosed with afib 5 months ago. Still freaking out about it. I recently had a flu jab and have had lots of headaches, palpitations and dizziness. Has anyone else had this happen? I'm on a Eliquis and blood pressure meds. I'm sensitive to beta blockers, so cardiologist doesn't want me
I'm new here. Diagnosed with afib 5 months ago. Still freaking out about it. I recently had a flu jab and have had lots of headaches, palpitations and dizziness. Has anyone else had this happen? I'm on a Eliquis and blood pressure meds. I'm sensitive to beta blockers, so cardiologist doesn't want me
Wombat3
in
AF Association
3 years ago
Puzzling Results
I am puzzled about my latest results and need some help. I am 77 and was diagnosed with hypothyroidism 19 years ago when my TSH was 75. I was prescribed Thyroxine but I can't remember how much or how long I took it. I felt that it wasn't helping me , so I did my own research. I found out about NDT and
I am puzzled about my latest results and need some help. I am 77 and was diagnosed with hypothyroidism 19 years ago when my TSH was 75. I was prescribed Thyroxine but I can't remember how much or how long I took it. I felt that it wasn't helping me , so I did my own research. I found out about NDT and
dottyb09
in
Thyroid UK
3 years ago
Snoo
I have had PMR for many years and am in fact now labelled inflammatory arthritis. The signs and symptoms are the same as is the treatment on and off Pred. I had shingles badly about three years ago and this year will qualify for the shingles vaccine. Has anybody had the vaccine while on Pred and were
I have had PMR for many years and am in fact now labelled inflammatory arthritis. The signs and symptoms are the same as is the treatment on and off Pred. I had shingles badly about three years ago and this year will qualify for the shingles vaccine. Has anybody had the vaccine while on Pred and were
Snoopy7
in
PMRGCAuk
3 years ago
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