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birthday, flu shot side effects and AFO update!
We’ll things have slowed down just a smidge so I thought I’d pop in for an update….. I’ll work backwards because it’s just easier. Lol, I think it’s an MS thing with me. My new AFO is still being fine tweaked. I’ve had the brace guy at my house 4 times so far. From the footplate being cut too short
We’ll things have slowed down just a smidge so I thought I’d pop in for an update….. I’ll work backwards because it’s just easier. Lol, I think it’s an MS thing with me. My new AFO is still being fine tweaked. I’ve had the brace guy at my house 4 times so far. From the footplate being cut too short
Sagesewer
in
My MSAA Community
2 years ago
Shingles vaccine
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Has anyone here has the shingles vaccine? I know that the usual one is a live vaccine but the nurse at the surgery told me that there is a two-dose non-live one I could have if it didn’t compromise my condition. I do have a haematology phone appointment coming up but not for a few weeks yet so I wondered
Garstongal
in
MPN Voice
2 years ago
broken leg
morning all am so cheesed of broke my leg last week ,had my flu jab as well as my pneumonia jab ,didn’t feel well in the night got up to go to the bathroom and collapsed,banged my head and broke my leg,my family have been great but l am now suffering from migraines drinking plenty of water any advice
morning all am so cheesed of broke my leg last week ,had my flu jab as well as my pneumonia jab ,didn’t feel well in the night got up to go to the bathroom and collapsed,banged my head and broke my leg,my family have been great but l am now suffering from migraines drinking plenty of water any advice
Bowling10
2022 July
in
Weight Loss Support
2 years ago
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GCA diagnosed February 2018 Tapering now from 5 to 4.5 Mg Prednisone and would appreciate input.
I've had a long tumultuous relationship with prednisone and would like to kick it to the curb permanently now. Eight weeks ago I had an adrenalectomy because I had a very rare Silent Pheochromocytoma. Blood tests this last week indicated that my remaining adrenal gland is doing its' job nicely and it's
I've had a long tumultuous relationship with prednisone and would like to kick it to the curb permanently now. Eight weeks ago I had an adrenalectomy because I had a very rare Silent Pheochromocytoma. Blood tests this last week indicated that my remaining adrenal gland is doing its' job nicely and it's
Blurry62
in
PMRGCAuk
2 years ago
Flu Shot
Had a PCP appt on monday afternoon to get yelled at for not getting any of my lab work or bone density test done... Told her that l hadnt been ready to deal with any of that yet, but will now. Then got the flu shhot... And holy moly... by the time i got home... l was having a hot flash from YIKES!! I
Had a PCP appt on monday afternoon to get yelled at for not getting any of my lab work or bone density test done... Told her that l hadnt been ready to deal with any of that yet, but will now. Then got the flu shhot... And holy moly... by the time i got home... l was having a hot flash from YIKES!! I
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
Rituximab
Good morning…it’s 5.00 and it appears to be Duracell bunny time after my second Rituximab infusion yesterday! Please can I ask you lovely people on RTX a couple of questions. My rheumatology department is hard to get hold off at the best of times and I would rather have opinions from fellow RA ‘warriors
Good morning…it’s 5.00 and it appears to be Duracell bunny time after my second Rituximab infusion yesterday! Please can I ask you lovely people on RTX a couple of questions. My rheumatology department is hard to get hold off at the best of times and I would rather have opinions from fellow RA ‘warriors
Nordywalker
in
NRAS
2 years ago
Liver Transplant consent letter & liver types
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
Rshc
in
British Liver Trust
2 years ago
Summary of Prof A Bianco's book and project: too long to add comment in 1 post but you can see progress
I've just received this as an interested party in Bianco's book and project. It's a long post and I have to send another with the other part of the message. Debate Continues on Combination Therapy for Hypothyroidism Miriam E. Tucker May 20, 2 It's "critically important" for clinicians
I've just received this as an interested party in Bianco's book and project. It's a long post and I have to send another with the other part of the message. Debate Continues on Combination Therapy for Hypothyroidism Miriam E. Tucker May 20, 2 It's "critically important" for clinicians
diogenes
in
Thyroid UK
2 years ago
GCA worries
I’m mildly concerned about my eyesight. I have been on Pred for over 3 years. It was started at 30mg for PMR, and GCA in the family. Down eventually to 6mg, but after husband had just died. Complete collapse of all systems, with double vision worsening, balance bad, pain, etc. so up to 15 again and
I’m mildly concerned about my eyesight. I have been on Pred for over 3 years. It was started at 30mg for PMR, and GCA in the family. Down eventually to 6mg, but after husband had just died. Complete collapse of all systems, with double vision worsening, balance bad, pain, etc. so up to 15 again and
Abbeynan82
in
PMRGCAuk
2 years ago
Docetaxel Chemo: What Helped Me…
I am on triplet therapy (ADT, darolutamide and Docetaxel) and will be continuing on to radiation in December I wanted to post this in case it might help others who are going to get Docetaxel. I just finished round six (final) of my Docetaxel infusions on 10/24. (Oct 2022, started July 2022).
I am on triplet therapy (ADT, darolutamide and Docetaxel) and will be continuing on to radiation in December I wanted to post this in case it might help others who are going to get Docetaxel. I just finished round six (final) of my Docetaxel infusions on 10/24. (Oct 2022, started July 2022).
AlvinSD
in
Advanced Prostate Cancer
2 years ago
A Dilemma
I've had PMR for just over 2 years and up until May this year I have been able to reduce my prednisolone down to 2 mg. Since May I have had 3 flares and following the Forums instructions increased the dosage by 5mg for about a week then back down to 2.5 mg which seemed to work. 3 weeks ago, I got my
I've had PMR for just over 2 years and up until May this year I have been able to reduce my prednisolone down to 2 mg. Since May I have had 3 flares and following the Forums instructions increased the dosage by 5mg for about a week then back down to 2.5 mg which seemed to work. 3 weeks ago, I got my
Callymac
in
PMRGCAuk
2 years ago
Flu jab
morning. I am on Rituximab. I took a blood test to test if the Covid injections worked for me and it showed a negligible immunity. I just wondered if anyone on Ritux had tested whether the flu jab had given any immunity. I am thinking not. I do have all these vaccines anyway.
morning. I am on Rituximab. I took a blood test to test if the Covid injections worked for me and it showed a negligible immunity. I just wondered if anyone on Ritux had tested whether the flu jab had given any immunity. I am thinking not. I do have all these vaccines anyway.
Evie3
in
NRAS
2 years ago
6th COVID jab side effects
Hello! I had my 6th vaccine 4 weeks ago. I was told it targeted 2 strains of COVID. I had that in one arm and flu jab in the other as directed by our health centre. I've had small side effects from some of the other vaccines but only lasted a few days at most. This time I am still really tired, constant
Hello! I had my 6th vaccine 4 weeks ago. I was told it targeted 2 strains of COVID. I had that in one arm and flu jab in the other as directed by our health centre. I've had small side effects from some of the other vaccines but only lasted a few days at most. This time I am still really tired, constant
emmieb-UK
in
Leukaemia Support
2 years ago
flu Jab
I had my flu jab a couple of days ago. I had it about 12.30pm. By about 6.00pm I was starting to feel very tired. I slept in the chair all evening then slept all night in bed. I got up in the morning a little bit better but after a couple of hours was really shivering. I got myself a sandwich as I didn
I had my flu jab a couple of days ago. I had it about 12.30pm. By about 6.00pm I was starting to feel very tired. I slept in the chair all evening then slept all night in bed. I got up in the morning a little bit better but after a couple of hours was really shivering. I got myself a sandwich as I didn
Mavary
in
Bone Health and Osteoporosis UK
2 years ago
Trying B vitamins
Hi everyone Im currently trying 25mcg of Levo (northstar) after reacting badly to a trail of 50mcg. I am 3 weeks in and am feeling slightly worse than before. Last time I posted it was suggested that my B vitamins were on the low side (in the low 300’s) My question is; Should I wait for blood test
Hi everyone Im currently trying 25mcg of Levo (northstar) after reacting badly to a trail of 50mcg. I am 3 weeks in and am feeling slightly worse than before. Last time I posted it was suggested that my B vitamins were on the low side (in the low 300’s) My question is; Should I wait for blood test
Artynorthener
in
Thyroid UK
2 years ago
Diabetes ?
Just had phone consult, on my monthly blood results there is a reference to diabetes! As far as I know I dont have diabetes although Ive never been tested for it! Consultant wondered if it was a mistake, should I try and get an appointment with my GP. Is there a special blood test for diabetes? My
Just had phone consult, on my monthly blood results there is a reference to diabetes! As far as I know I dont have diabetes although Ive never been tested for it! Consultant wondered if it was a mistake, should I try and get an appointment with my GP. Is there a special blood test for diabetes? My
Rosebine2
in
My Ovacome
2 years ago
New Omicron vaccines proven safe and effective
[i]
Test tube labelled "COVID-19 Omicron variant test positive" is seen in this illustration picture taken January 15, 2022.
[/i] [i]
(photo credit: REUTERS/DADO RUVIC/FILE PHOTO)
[/i] The new boosters are suited to two COVID-19 strains of the Omicron virus variant that represents the vast
[i]
Test tube labelled "COVID-19 Omicron variant test positive" is seen in this illustration picture taken January 15, 2022.
[/i] [i]
(photo credit: REUTERS/DADO RUVIC/FILE PHOTO)
[/i] The new boosters are suited to two COVID-19 strains of the Omicron virus variant that represents the vast
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Shingles vaccine to have or not to have
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
PatB1948
in
PMRGCAuk
2 years ago
Flu shot
Maybe this is a stupid question what about flu shot i do Lupron prednisone and aberaitone is it safe to add to mix of drugs I'm already taking.
Maybe this is a stupid question what about flu shot i do Lupron prednisone and aberaitone is it safe to add to mix of drugs I'm already taking.
jptss
in
Advanced Prostate Cancer
2 years ago
Even the euthyroid have problems
Hello, I am a 64 year old otherwise healthy man seeking to rule out a possible hypothyroid issue. While my test results are within classic parameters (may even be enviable to many on this forum), and I take no meds, I do have thyroid signs and symptoms (elevated cholesterol, elevated creatinine,
Hello, I am a 64 year old otherwise healthy man seeking to rule out a possible hypothyroid issue. While my test results are within classic parameters (may even be enviable to many on this forum), and I take no meds, I do have thyroid signs and symptoms (elevated cholesterol, elevated creatinine,
TeaFree
in
Thyroid UK
2 years ago
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