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Double seizure, JME epilepsy, in Jan 2018, irreparable brain damage, one more seizure probably my last!
My brain seems to work faster than normal, find it very hard to get to sleep, is it due to damage! Am living on my own, but try to get to sleep, try about midnight, but whole body system far too alert, just pure fatigue, exhaustion eventually just drop off about 3-4am! Am single retired and live on my
My brain seems to work faster than normal, find it very hard to get to sleep, is it due to damage! Am living on my own, but try to get to sleep, try about midnight, but whole body system far too alert, just pure fatigue, exhaustion eventually just drop off about 3-4am! Am single retired and live on my
Adlon57
in
Epilepsy Action
1 year ago
ibuptofen?
I am about 10 weeks post aortic valve replacement. Prior to learning I had aortic valve stenosis earlier this year I always regarded ibuprofen as a superior pain killer to paracetamol. Might have something to do with a childhood in Nottingham where it was developed by Boots! Tended to use it for the
I am about 10 weeks post aortic valve replacement. Prior to learning I had aortic valve stenosis earlier this year I always regarded ibuprofen as a superior pain killer to paracetamol. Might have something to do with a childhood in Nottingham where it was developed by Boots! Tended to use it for the
Petitlady
in
British Heart Foundation
1 year ago
I stopped steroids rapidly and all PMR symptoms returned - HELP!
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Hi, I have only found this group today so I am really pleased to find ANYONE else who has PMR! I have difficult situation as I was responding really well 25mg of steroids per day, when I developed a CSR in my eye. I have had one before from Stress a couple of years ago and knew this was a risk,
Megasorearms
in
PMRGCAuk
1 year ago
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Osteochondral defect, loose bodies in the knee and Baker's cyst.
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
Hi everyone,Hope you are all managing. Since the beginning of the year, I have been experiencing tear sensation at the back of my right knee. When I told my mum she said it might be that I have added weight. That it would stop when I reduce some weight. In April, I experiened a locked knee. It was
ijeasike
in
LUPUS UK
1 year ago
Nicorandil
They are across my eyes and forehead and the back of my
head
and neck. Constant excruciating
pain
. 111 call yesterday advised to stop taking them and consult cardiologist. I can barely lift my head off the pillow.
They are across my eyes and forehead and the back of my
head
and neck. Constant excruciating
pain
. 111 call yesterday advised to stop taking them and consult cardiologist. I can barely lift my head off the pillow.
OldCrohn
in
British Heart Foundation
5 months ago
Hope, perhaps?
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
CaffeineCat
in
Endometriosis UK
1 year ago
Pred and painkillers
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Fredddie
in
PMRGCAuk
1 year ago
Increased bleeding after first scan…
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
IchigoKeikaku
in
Fertility Network UK
1 year ago
How much targeted radiation to mets?
Have aggressive metastatic cancer and mets
head
to toe. Starting to get
pain
in bones and already had one major blast of radiation to ribs. Can they keep blasting spots as they get painful, or is there a radiation limit?
Have aggressive metastatic cancer and mets
head
to toe. Starting to get
pain
in bones and already had one major blast of radiation to ribs. Can they keep blasting spots as they get painful, or is there a radiation limit?
jersy
in
Advanced Prostate Cancer
4 months ago
Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
1 year ago
Endo history lesson!!!!
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
valgal76
in
Endometriosis UK
1 year ago
37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
Hidden
in
Functional Neurological Disorder - FND Hope
1 year ago
chronic leg pain
my body has got worse 3 years , my hands cramp up , my arms ache so much the
pain
is unbearable all over . My
head
had a very deep
pain
in the side & pain in my ears throat & tongue . It’s all weird but I guess it comes with the diagnosis of fibromyalgia.
my body has got worse 3 years , my hands cramp up , my arms ache so much the
pain
is unbearable all over . My
head
had a very deep
pain
in the side & pain in my ears throat & tongue . It’s all weird but I guess it comes with the diagnosis of fibromyalgia.
Suffering2021
in
Fibromyalgia Action UK
7 months ago
Recovery time
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Gandalf2
in
Encephalitis International
1 year ago
Ankle Fusion wahey
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
i am in hospital after an an ankle fusion yesterday. Great fun. Lovely nurses 🤪 just going home. And I've had my second Oxy pill. Oh my! Do watch Painkiller if you have Netflix. It's evil big pharma and so on. This was going on when I was living in California.... Awful sights... 9mg and I'm doing
Hidden
in
PMRGCAuk
1 year ago
Need Help With Results From Blood Test
Hello everyone, I recently started having burning sensations, tingling and
pain
in my
head
, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue.
Hello everyone, I recently started having burning sensations, tingling and
pain
in my
head
, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue.
Jadaboo4
in
LUPUS UK
6 months ago
hand pain
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
the awful pain i had in my hands is just worse by the day, i thought it would go cos maybe gluten related but after setting doc she said she can see joints inflammation. nothing can be done except painkillers. now i’ve realised and admitted to myself that it is arthritis 😢 after all these years of
Junny123
in
Gluten Free Guerrillas
1 year ago
post CRR-D procedure
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
I had a CRT-D procedure test yesterday and all went well the cardiologist and nurses were amazing. I feel as though I can actually breathe normally now which is amazing. My question is how long does the wound take for the pain to ease off where you don’t have to take painkillers? Thank you, Joy
honeybubs
in
British Heart Foundation
1 year ago
Symptom Help
Morning everyone, I don’t want to sound rude, but before everyone jumps on and asks what my tests results have been lately I am waiting for a copy of them as they do not show on my hospital app. i am just posting to see if anyone has ever experienced anything similar as I am becoming extremely annoyed
Morning everyone, I don’t want to sound rude, but before everyone jumps on and asks what my tests results have been lately I am waiting for a copy of them as they do not show on my hospital app. i am just posting to see if anyone has ever experienced anything similar as I am becoming extremely annoyed
Zoey92
in
Thyroid UK
1 year ago
Journey Ditty
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
Twenty twenty was the year all went wrong that's crystal clear. Things had not been going well before that date, just to tell. Ailments I'd not had before taxed me like a plague of yore. Unknown this and unknown that caught me square and laid me flat. Muscles cramping so in pain no relief drove
cycli
in
PMRGCAuk
1 year ago
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