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When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
3 months ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
6 months ago
APS or sticky blood syndrome
having suffered from PA for 20-30 years was sort of resigned to my fate of suffering from painful arms /hands and general lack of energy , anyway I then develop a Deep Vein Thrombosis in my calf muscle which I am advised could be caused by APS - also an auto immune response - was give Apixaban for
having suffered from PA for 20-30 years was sort of resigned to my fate of suffering from painful arms /hands and general lack of energy , anyway I then develop a Deep Vein Thrombosis in my calf muscle which I am advised could be caused by APS - also an auto immune response - was give Apixaban for
pj1954
in
Pernicious Anaemia Society
6 months ago
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Somatic tinnitus
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Sassyjax1
in
Tinnitus UK
6 months ago
Prednisolene
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Portopetro
in
PMRGCAuk
6 months ago
after gallbladder op in septemmber
hi after i had my gallbladder op in september i felt fine a few weeks after i felt like i was rushing to the toilet more id feel like my bladder was full and id rush urgently than i would do a fair drop of urine more than normal and it happens more so i took my urine in incase i had a urine infection
hi after i had my gallbladder op in september i felt fine a few weeks after i felt like i was rushing to the toilet more id feel like my bladder was full and id rush urgently than i would do a fair drop of urine more than normal and it happens more so i took my urine in incase i had a urine infection
Mrshappyme
in
Pelvic Pain Support Network
6 months ago
GENERALLY! Is there a correct sleeping position, right recovery position, left recovery position, back, high back support, v pillow, etc?
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
On an ordinary mattress, sleeping on one side, especially if overweight [now slightly👌], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
Adlon57
in
Healthy Evidence
6 months ago
V + O and elevate blood pressure, A1C and tricglyerides
My blood pressure and triglycerides were all in outstanding form a year ago. I started V + O 8 months ago and my most recent labs showed A1C up from 4.1 to 5.1 Blood pressures from 100-110/60-70 to 140-160/80-100 Triglycerides from less than 100 up to 500. My weight is the same, my diet has
My blood pressure and triglycerides were all in outstanding form a year ago. I started V + O 8 months ago and my most recent labs showed A1C up from 4.1 to 5.1 Blood pressures from 100-110/60-70 to 140-160/80-100 Triglycerides from less than 100 up to 500. My weight is the same, my diet has
skipro
in
CLL Support
6 months ago
Switching from Gabapentin to Horizant?
I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing..my plan is to switch to Horizant/Gabapentin enacarbil. Does anyone know how much Gabapentin I need to be taking, in order to switch to 600mg of Horizant? I'm looking for a website that will give me this specific info
I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing..my plan is to switch to Horizant/Gabapentin enacarbil. Does anyone know how much Gabapentin I need to be taking, in order to switch to 600mg of Horizant? I'm looking for a website that will give me this specific info
pianoplayerPLMD
in
Restless Legs Syndrome
6 months ago
Propafenone Back!!!
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
frazeej
in
AF Association
6 months ago
Eight measures that can slow ageing by up to six years - healthy sleep and regular exercise may slow pace of body’s biological ageing
The Guardian : https://www.theguardian.com/science/2023/nov/06/scientists-name-eight-measures-that-can-slow-ageing-by-up-to-six-years Scientists name eight measures that can slow ageing by up to six years Measures including healthy sleep and regular exercise may slow pace of body’s biological ageing
The Guardian : https://www.theguardian.com/science/2023/nov/06/scientists-name-eight-measures-that-can-slow-ageing-by-up-to-six-years Scientists name eight measures that can slow ageing by up to six years Measures including healthy sleep and regular exercise may slow pace of body’s biological ageing
lankisterguy
Volunteer
in
CLL Support
6 months ago
Interesting Dynamic
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
Least I think so. If I felt as good as I have in the two months at any time prior I would have been ecstatic. Now that has become the standard I understand I am feeling and doing better and still have a long way to go. I am starting to have the head space to start the grieving process of my loss
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Flare up
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Jocelyn344
in
PMRGCAuk
6 months ago
Fluid at back of eye
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hidden
in
Glaucoma UK
6 months ago
This is a two part item-
Part one is for all United States Military veterans- have you heard about the about this? They’ve almost reached their goal. “VA's Million Veteran Program (MVP) is a national research program looking at how genes, lifestyle, military experiences, and exposures affect health and wellness in Veterans
Part one is for all United States Military veterans- have you heard about the about this? They’ve almost reached their goal. “VA's Million Veteran Program (MVP) is a national research program looking at how genes, lifestyle, military experiences, and exposures affect health and wellness in Veterans
MouseAddams
in
Advanced Prostate Cancer
6 months ago
Next instalment
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
Before I start my next task, either proofreading or, dread the thought, cleaning the car, here`s the next instalment. Chris. One of mum's best friends from childhood was, without a doubt, Lydia, a confident who in later life became Aunty Lyds to all of us. Their friendship through their teenage years
LissacFrance
in
Lung Conditions Community Forum
1 month ago
Impact of brief CBT on chronic pain and anxiety
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
Hello, My name is Audrey and I am a student at Pepperdine University. I am doing a research study about the impact of brief Cognitive Behavioral Therapy on people with chronic pain and anxiety. I would appreciate it if you could take a few minutes to complete both parts. It will also expose you to a
audreycosta
in
Pain Concern
1 month ago
5 courses of antibiotics
Hi. I have been prone to uti's for 50 years and recently had a very bad uti which took 5 different antibiotics to treat. I can't get to see a GP (Uk) only been able to get an appointment with the surgery paramedic. I've just finished a week of Nitrofurantoin which settled the symptoms, but now 2 days
Hi. I have been prone to uti's for 50 years and recently had a very bad uti which took 5 different antibiotics to treat. I can't get to see a GP (Uk) only been able to get an appointment with the surgery paramedic. I've just finished a week of Nitrofurantoin which settled the symptoms, but now 2 days
Lunadoo
in
Bladder Health UK
6 months ago
Is blood pressure medication making your tinnitus worse?
Hi all, I have had tinnitus for 30 years after playing in a loud band. I've recently been diagnosed with high blood pressure and been prescribed Doxazosin which has sent the volume of my tinnitus through the roof. I was wondering if anyone else had similar experiences?
Hi all, I have had tinnitus for 30 years after playing in a loud band. I've recently been diagnosed with high blood pressure and been prescribed Doxazosin which has sent the volume of my tinnitus through the roof. I was wondering if anyone else had similar experiences?
Greenman2019
in
Tinnitus UK
6 months ago
Urodynamics procedure?
Hello 👋 First post on this board so I'll give a brief back story. I'm 32 and have 4 kids under 6. I had a ventouse birth with my 3rd baby which resulted in a moderate cystocele and rectocele. Since then I've had another baby, a year worth of physio and now my prolapse(s??) have gotten worse and the
Hello 👋 First post on this board so I'll give a brief back story. I'm 32 and have 4 kids under 6. I had a ventouse birth with my 3rd baby which resulted in a moderate cystocele and rectocele. Since then I've had another baby, a year worth of physio and now my prolapse(s??) have gotten worse and the
Mummybear0213
in
Pelvic Pain Support Network
6 months ago
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