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Haemolytic anaemia
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Bloods tests results
I've had some private tests done. These are the results Gastrin 12.6 ng/l (13-115) Gastric Parietal cell abs negative Intrinsic factor abs <1 <6 normal MMA (serum) 37.4 ug/l <32 So I have B12 defiency, but not PA. Any comments welcome
I've had some private tests done. These are the results Gastrin 12.6 ng/l (13-115) Gastric Parietal cell abs negative Intrinsic factor abs <1 <6 normal MMA (serum) 37.4 ug/l <32 So I have B12 defiency, but not PA. Any comments welcome
diamondgirl9022
in
Pernicious Anaemia Society
1 year ago
Anaemia after 7years from op
Hi, Has anyone been anaemic after surgery? After 7 years I have now got anaemia. Dr sent me back to consultant and I have had PET scan, endoscopy and colonoscopy. Within 2 weeks which is brilliant service. Having a further CT as colonoscopy wasn’t successful due to my weird anatomy. Consultant said
Hi, Has anyone been anaemic after surgery? After 7 years I have now got anaemia. Dr sent me back to consultant and I have had PET scan, endoscopy and colonoscopy. Within 2 weeks which is brilliant service. Having a further CT as colonoscopy wasn’t successful due to my weird anatomy. Consultant said
kiddy
in
Oesophageal & Gastric Cancer
1 year ago
Question about methylated vits and Vit B6.
Does anyone know anything about methylated vitamins - I feel worse when I take them, but I’m confused about this as I’ve MTHFR mutations and it’s meant to help! I also worry B6 is part of my neuro issues. My levels stay very high even without supplementing - I have a very good diet (or maybe I can’
Does anyone know anything about methylated vitamins - I feel worse when I take them, but I’m confused about this as I’ve MTHFR mutations and it’s meant to help! I also worry B6 is part of my neuro issues. My levels stay very high even without supplementing - I have a very good diet (or maybe I can’
MrsTuft
in
Pernicious Anaemia Society
1 year ago
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Any value seeing a gastroenterologist for ET belly bloat?
Greetings All, I've made an appointment to consult with a visiting gastroenterologist for my permanent belly bloat and weight gain (about 4 kg over the past 2 years). I have a hunch this has been caused by the hydroxycarbamide. I'm on a low dose of 500mg/day now and platelets are normal. The belly
Greetings All, I've made an appointment to consult with a visiting gastroenterologist for my permanent belly bloat and weight gain (about 4 kg over the past 2 years). I have a hunch this has been caused by the hydroxycarbamide. I'm on a low dose of 500mg/day now and platelets are normal. The belly
Hidden
in
MPN Voice
1 year ago
antibody test
I have an anti body test this week. Is there anything I should stop before the test. I had my b12 injection on Monday. The antibody test is on Saturday. I’m folate deficient, so need to take 5mg everyday
I have an anti body test this week. Is there anything I should stop before the test. I had my b12 injection on Monday. The antibody test is on Saturday. I’m folate deficient, so need to take 5mg everyday
qwertystar
in
Thyroid UK
1 year ago
Struggling with polyneuropathy - knowledgeable member expertise needed
Hello lovely peeps! I'm new to this forum and PA and my learning curve is akin to a mountaineous climb atm. In need of reassurance/patient 'expert' knowledge/experience. Science bods with questioning minds most welcome! I'm in week 5 of initial loading doses (1mg hydrox, EOD), making 16 so far, but
Hello lovely peeps! I'm new to this forum and PA and my learning curve is akin to a mountaineous climb atm. In need of reassurance/patient 'expert' knowledge/experience. Science bods with questioning minds most welcome! I'm in week 5 of initial loading doses (1mg hydrox, EOD), making 16 so far, but
Mixteca
in
Pernicious Anaemia Society
1 year ago
Another ignorant GP - "is PA forever?" he asked
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
Firstly, I must say, I feel lucky and greatful that I have been able to get my b12 on prescription since being diagnosed with PA 7 years ago, I self inject twice per week. However, it has not been without challenges i.e. paying a private Neurologist (in 2020) to confirming to my GP that I need twice
HKAnne
in
Pernicious Anaemia Society
1 year ago
Re:Red burning palms.
Hi,.Had all my blood tests back after being tested for Polythycemia, all was normal,so glad about that..Has anyone heard of Palmar Erythema?It's a thyroid Autoimmune condition that can affect the hands.Im hoping to see the Doctor in 2 weeks time to see if it could possibly be that and if they can actually
Hi,.Had all my blood tests back after being tested for Polythycemia, all was normal,so glad about that..Has anyone heard of Palmar Erythema?It's a thyroid Autoimmune condition that can affect the hands.Im hoping to see the Doctor in 2 weeks time to see if it could possibly be that and if they can actually
sylus_911
in
Thyroid UK
1 year ago
Has anyone ever had an Iron infusion?
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
doingitfordad
in
Thyroid UK
1 year ago
Blood results
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Dires
in
Restless Legs Syndrome
1 year ago
Low folate struggling to walk
Good evening my folate vit d is low I am struggling to walk 😪 I have horrific joint muscles pain shake weakness I have pin needle type pain in my legs all over my body I am struggling to walk to toilet been stuck in bed for weeks i also have pots mast cell activation syndrome . Just these symptoms seem
Good evening my folate vit d is low I am struggling to walk 😪 I have horrific joint muscles pain shake weakness I have pin needle type pain in my legs all over my body I am struggling to walk to toilet been stuck in bed for weeks i also have pots mast cell activation syndrome . Just these symptoms seem
Merkat90
in
Pernicious Anaemia Society
1 year ago
First blood results in - can you help me understand them?
Hello I started with symptoms in Nov & started carbizamole 1x10mg in Jan, with 10mg x 2 a day. Drs blood test confirmed over active thyroid & this was followed up at the hospital last week. Got my hospital results back but no idea what they mean. I’m also getting some private tests done. These were
Hello I started with symptoms in Nov & started carbizamole 1x10mg in Jan, with 10mg x 2 a day. Drs blood test confirmed over active thyroid & this was followed up at the hospital last week. Got my hospital results back but no idea what they mean. I’m also getting some private tests done. These were
BFGsgirl
in
Thyroid UK
1 year ago
Displaying signs of anemia but bloods are negative.
I've attached the rest of my blood results that were delayed. (Had to reply to myself because I don't know how to add more than one). My doctor said that she can't see anything wrong in my blood tests, but I'm experiencing signs of anemia. I forgot to mention in my original post that the whites of my
I've attached the rest of my blood results that were delayed. (Had to reply to myself because I don't know how to add more than one). My doctor said that she can't see anything wrong in my blood tests, but I'm experiencing signs of anemia. I forgot to mention in my original post that the whites of my
JBLOVELL
in
Thyroid UK
1 year ago
Time needed to show hematological changes after started b12 injections?
in Sweden guidelines says if iron def, and if the diagnosis of b12 def is correct you will have lowered iron in four days after starting treatement as a proof of the b12 def diagnosis. As I now after 4 months with eod injections have a decline in iron and got iron sub, as well as lowering mcv from
in Sweden guidelines says if iron def, and if the diagnosis of b12 def is correct you will have lowered iron in four days after starting treatement as a proof of the b12 def diagnosis. As I now after 4 months with eod injections have a decline in iron and got iron sub, as well as lowering mcv from
Annaunge
in
Pernicious Anaemia Society
1 year ago
new results after iron transfusion-help pls
Hi I’ve had an iron transfusion and retested. My ferritin has gone from rock bottom to beautiful. I’d like help with the rest of the results. I’m taking levo AM 150mcg. The usual protocols were followed for testing. I no longer take T3. Thank you
Hi I’ve had an iron transfusion and retested. My ferritin has gone from rock bottom to beautiful. I’d like help with the rest of the results. I’m taking levo AM 150mcg. The usual protocols were followed for testing. I no longer take T3. Thank you
Emuflea
in
Thyroid UK
1 year ago
Pressure in head
Is this a b12 thing? I've been injecting for a few months. Methylcobalamin. I have ME and have had a pressure in my forehead feeling on and off for years, e.g. I rest my forehead against kitchen cupboards for relief... Washing up is a good opportunity! But now that's got more continuous, and all over
Is this a b12 thing? I've been injecting for a few months. Methylcobalamin. I have ME and have had a pressure in my forehead feeling on and off for years, e.g. I rest my forehead against kitchen cupboards for relief... Washing up is a good opportunity! But now that's got more continuous, and all over
Sunnysidoop
in
Pernicious Anaemia Society
1 year ago
Folic acid deficiency with high hemoglobin
hi everyone, So been back and forth the doctors for as long as I can remember with a long list of symptoms! Fatigue, pins & needles, burning in hands and feet, headaches, low mood, shortness of breath, stomach issues, light headedness. Latest blood tests showed a folate deficiency (2.8 Range is
hi everyone, So been back and forth the doctors for as long as I can remember with a long list of symptoms! Fatigue, pins & needles, burning in hands and feet, headaches, low mood, shortness of breath, stomach issues, light headedness. Latest blood tests showed a folate deficiency (2.8 Range is
widgetcook
in
Pernicious Anaemia Society
1 year ago
Recommendation for b12 supplement -feeling overwhelmed
What are you recommendation to start vit b12 supplements? Forum advised me to start with b12 and add B complex after a few weeks. Have I got that right? I’m currently awaiting results from GP on antibody test for B12. I’m not sure what is being tested exactly. And because I’ve been waiting so long
What are you recommendation to start vit b12 supplements? Forum advised me to start with b12 and add B complex after a few weeks. Have I got that right? I’m currently awaiting results from GP on antibody test for B12. I’m not sure what is being tested exactly. And because I’ve been waiting so long
Dandelions
in
Thyroid UK
1 year ago
Help with iron bloods
Hi, SeasideSusiehumanbean I was wondering if you can kindly help me with my latest iron results. I am on 100 mcg levo. ferritin blood - 23.5 Haemoglobin- 147 White cell count - 5.6 Platelets - 4.70 Haematrocit - 0.425 MCV - 90.4 MCH - 31.3 MCHC - 346 RDW - 11.2 Lymphocytes 2.5 Neutrophils
Hi, SeasideSusiehumanbean I was wondering if you can kindly help me with my latest iron results. I am on 100 mcg levo. ferritin blood - 23.5 Haemoglobin- 147 White cell count - 5.6 Platelets - 4.70 Haematrocit - 0.425 MCV - 90.4 MCH - 31.3 MCHC - 346 RDW - 11.2 Lymphocytes 2.5 Neutrophils
Denny39
in
Thyroid UK
1 year ago
Anaemia following venesection for PV…advice
Hi folks. I hope everyone is having a great week and getting ready for that well deserved weekend break. I am looking for some advice from you guys. It seems I am now anaemic which is slowly developing following my last venesection in November. My HCT went went down to 36… I felt fine at this level
Hi folks. I hope everyone is having a great week and getting ready for that well deserved weekend break. I am looking for some advice from you guys. It seems I am now anaemic which is slowly developing following my last venesection in November. My HCT went went down to 36… I felt fine at this level
LittleLuna
in
MPN Voice
1 year ago
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