Search
Search
About
Log in
Join
Experiences with
Haemolytic anaemia
Posts
Communities
7,653 public posts
Filter results
self injections- feeling worse
New here. 57 years old and recently diagnosed in late stage PA and autoimmune atrophic gastritis. I was receiving weekly shots at doctor’s office but he prescribed cyanocobalamin and I am now self injecting at home with 1000mcg . After two weeks, I’m feeling so much worse. I’m in so much pain, with inability
New here. 57 years old and recently diagnosed in late stage PA and autoimmune atrophic gastritis. I was receiving weekly shots at doctor’s office but he prescribed cyanocobalamin and I am now self injecting at home with 1000mcg . After two weeks, I’m feeling so much worse. I’m in so much pain, with inability
Deirdre118
in
Pernicious Anaemia Society
1 year ago
Folate deficiency
Not had blood tests since before the pandemic. Just recieved my April 23 blood test results. My Serum Folate is 3.6 ug/L Deficient being <3.9 ug/L My B12 level tested at 661 ng/L (normal range 197-771) I take an oral methyl /adenosyn B12 supplement as never could get the GP to see that
Not had blood tests since before the pandemic. Just recieved my April 23 blood test results. My Serum Folate is 3.6 ug/L Deficient being <3.9 ug/L My B12 level tested at 661 ng/L (normal range 197-771) I take an oral methyl /adenosyn B12 supplement as never could get the GP to see that
LynneG
in
Pernicious Anaemia Society
1 year ago
Buprenorphine and stomach pain
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Nanpat
in
Restless Legs Syndrome
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hello, looking for advice please
Hello everyone. I’m not sure if I’m in the right place?! But here goes. Bloods taken (BlueHorizon) in May. Results Iron 10.3 (5.8-34.5) Ferritin 93.6 (13-150) Transferrin Sat 17.6 (20-50) TIBC 58.2 (45-81) CRP hs 13.58 (0-5) Medichecks in Jan Iron 14.4 (5.8-34.5) TIBC 57.6 (45-81) UIBC 43.2 (24.2-70.1
Hello everyone. I’m not sure if I’m in the right place?! But here goes. Bloods taken (BlueHorizon) in May. Results Iron 10.3 (5.8-34.5) Ferritin 93.6 (13-150) Transferrin Sat 17.6 (20-50) TIBC 58.2 (45-81) CRP hs 13.58 (0-5) Medichecks in Jan Iron 14.4 (5.8-34.5) TIBC 57.6 (45-81) UIBC 43.2 (24.2-70.1
Auders
in
Pernicious Anaemia Society
1 year ago
Why don’t I notice an increase in energy? Have had three b12 injections.
Have very low b12 and iron. Had three injections of b12 and still don’t feel any better? Schedule is for 5 more shots then recheck levels. Taking iron supplements for 5 weeks now also. Thanks
Have very low b12 and iron. Had three injections of b12 and still don’t feel any better? Schedule is for 5 more shots then recheck levels. Taking iron supplements for 5 weeks now also. Thanks
84withb12d
in
Pernicious Anaemia Society
1 year ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
11 months ago
hematocrit 23 - blood transfusion
My husband’s mylofrobisis has progressed to high risk . He was just put on jakafi at 10mg twice a day for about a month now He feels much better after changing from droxia to Jakafi and his appetite is good and not as anemic.. however we just came in from seeing his MPN doctor and his hemoglobin
My husband’s mylofrobisis has progressed to high risk . He was just put on jakafi at 10mg twice a day for about a month now He feels much better after changing from droxia to Jakafi and his appetite is good and not as anemic.. however we just came in from seeing his MPN doctor and his hemoglobin
Bainbridge
in
MPN Voice
1 year ago
New Pernicious Anemia diagnosis
Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS B12 injection due on 1st September. What do you wish you'd know sooner? What can I be doing to help myself get out from under the duvet and the cat? I can't seem to think beyond basic single tasks. Everything is so overwhelming
Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS B12 injection due on 1st September. What do you wish you'd know sooner? What can I be doing to help myself get out from under the duvet and the cat? I can't seem to think beyond basic single tasks. Everything is so overwhelming
Oneash
in
Pernicious Anaemia Society
1 year ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
1 year ago
iron supplements
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
Kowbie
in
Pernicious Anaemia Society
11 months ago
RSL - has anyone had severe side effects
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
Paul2905
in
Restless Legs Syndrome
11 months ago
Iron Bisglycinate
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
Dires
in
Restless Legs Syndrome
11 months ago
b12 and Anxiety
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
84withb12d
in
Pernicious Anaemia Society
1 year ago
MMA result
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
how long after beginning injections did you feel better?
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
Merlotponty
in
Pernicious Anaemia Society
1 year ago
Oral Iron supplements, doing it wrong!
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
WideBody
in
Restless Legs Syndrome
11 months ago
Advice on latest ferritin, VitD, vitB12 please
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Insomania
in
Thyroid UK
1 year ago
pramixipole YOU MUST READ THIS!!!!
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
Paul2905
in
Restless Legs Syndrome
11 months ago
cholesterol supplements and testing
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Lindsayf
in
Thyroid UK
1 year ago
Confusing iron panel results
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Galadriel_BG
in
Thyroid UK
11 months ago
1
...
40
41
42
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3553 results
Thyroid UK
2452 results
Restless Legs Syndrome
359 results
View top 10 communities
Sort by
Most Relevant
Newest