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Haemolytic anaemia
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Ferrous Fumerate and pre-existing Reflux
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Hellio
in
Restless Legs Syndrome
11 months ago
Spring Covid Booster
Hi everyone, it’s a while since I posted (I’ve been recovering from a bad fall in March) but I read the posts everyday. I have a question re the latest Covid booster in the UK. I saw my Gp a few days ago on another matter and mentioned the Covid booster as I was refused during the first round. In
Hi everyone, it’s a while since I posted (I’ve been recovering from a bad fall in March) but I read the posts everyday. I have a question re the latest Covid booster in the UK. I saw my Gp a few days ago on another matter and mentioned the Covid booster as I was refused during the first round. In
Tiggy70
in
PMRGCAuk
1 year ago
Help with getting help please
I had bloods done recently as I'm experiencing extreme fatigue, shortness of breath, difficulty concentrating, generally bring uncoordinated and discombobulated. This test came back abnormal, I self inject B12 not from prescription because when I moved Dr surgery they refused to prescribe it like my
I had bloods done recently as I'm experiencing extreme fatigue, shortness of breath, difficulty concentrating, generally bring uncoordinated and discombobulated. This test came back abnormal, I self inject B12 not from prescription because when I moved Dr surgery they refused to prescribe it like my
Friedeggsontoast
in
Pernicious Anaemia Society
1 year ago
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Am I really lacking B12?
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
expatkerry
in
Pernicious Anaemia Society
1 year ago
advice re iron levels
HelloI have suffered from severe RLS for about 40 years. At the moment I am trying to control it using magnesium salt foot soaks and magnesium oil spray My question is what should my ferritin and my saturation levels be ? I requested a full blood test recently and before joining this forum I never
HelloI have suffered from severe RLS for about 40 years. At the moment I am trying to control it using magnesium salt foot soaks and magnesium oil spray My question is what should my ferritin and my saturation levels be ? I requested a full blood test recently and before joining this forum I never
kmc12
in
Restless Legs Syndrome
1 year ago
Positive IFA, Negative Parietal Cell, B-12 injections affect IFA test
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
mcg-woo
in
Pernicious Anaemia Society
1 year ago
Low iron in pregnancy; Spatone recommended - what was tested?
My daughter (euthyroid, six months pregnant, vegetarian) has just been for a check up with the midwife and has been told “your iron is low. It’s 109 and we worry if it goes below 105 so you’d better get some Spatone”. I don’t know much about iron but from this site I have learned that a full iron panel
My daughter (euthyroid, six months pregnant, vegetarian) has just been for a check up with the midwife and has been told “your iron is low. It’s 109 and we worry if it goes below 105 so you’d better get some Spatone”. I don’t know much about iron but from this site I have learned that a full iron panel
Bearo
in
Thyroid UK
1 year ago
Influences of sleep and the circadian rhythm on iron-status indices
I suspect few, if any, of us have ever really thought about iron tests varying by time of day. However much we understand with regard to thyroid, somehow I think most of us imagine iron as being more "bucket chemistry". But this paper might force us to re-assess! [i]
Influences of sleep and the circadian
I suspect few, if any, of us have ever really thought about iron tests varying by time of day. However much we understand with regard to thyroid, somehow I think most of us imagine iron as being more "bucket chemistry". But this paper might force us to re-assess! [i]
Influences of sleep and the circadian
helvella
Thyroid UK
in
Thyroid UK
11 months ago
Question about B12 injections with MTHFR mutations
Hello all,A quick question from a newbie to the forum : Do b12 injections need to be in the methylcobalamin form for them to work if you have the MTHFR and related gene mutations? Or is this not necessary? Thank you.
Hello all,A quick question from a newbie to the forum : Do b12 injections need to be in the methylcobalamin form for them to work if you have the MTHFR and related gene mutations? Or is this not necessary? Thank you.
Sneedle
in
Pernicious Anaemia Society
1 year ago
please share your thoughts
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
Lluvinlife
in
Restless Legs Syndrome
11 months ago
Blood results
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
Neurologist’s phone call
One of Dr Bagary’s team rang this afternoon. He listened to me and seemed to understand my situation.. l requested a switch from Temgesic to Subutex, but of course he will have to consult Dr Bagary which all takes time. I also discussed dosage with him as the two sorts of tablets come in different
One of Dr Bagary’s team rang this afternoon. He listened to me and seemed to understand my situation.. l requested a switch from Temgesic to Subutex, but of course he will have to consult Dr Bagary which all takes time. I also discussed dosage with him as the two sorts of tablets come in different
bedith6
in
Restless Legs Syndrome
1 year ago
Different types of injections
Long story short my im having a hard time setting an appointment with neurologist. The drs office wont issue a prescription of cyanocobalamin without an appointment. I usually take 2 injections a week to keep any nasty neurological symptoms from coming back. The way i would work that out is i would
Long story short my im having a hard time setting an appointment with neurologist. The drs office wont issue a prescription of cyanocobalamin without an appointment. I usually take 2 injections a week to keep any nasty neurological symptoms from coming back. The way i would work that out is i would
texans2002
in
Pernicious Anaemia Society
1 year ago
help on ferritin/iron
I did a medichecks iron blood test as last blood test ferritin level was low so was advised on this forum to check full iron too. Here are results Iron 27.8 ( 5.8 -34.5) TIBC 64.2 ( 45-81) UIBC 36.4 ( 24.2 - 70.1) Transferrin Saturation 43.3 (20-50) Ferritin 23.4 ( 13-150) CRP HS 0.3 ( 0-5)
I did a medichecks iron blood test as last blood test ferritin level was low so was advised on this forum to check full iron too. Here are results Iron 27.8 ( 5.8 -34.5) TIBC 64.2 ( 45-81) UIBC 36.4 ( 24.2 - 70.1) Transferrin Saturation 43.3 (20-50) Ferritin 23.4 ( 13-150) CRP HS 0.3 ( 0-5)
Hopeful129
in
Thyroid UK
1 year ago
Active b12 result
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hullaballop
in
Pernicious Anaemia Society
11 months ago
Cold Agglutinin Disease/Auto-Immune Haemolytic Anaemia coupled with Triple Positive APS
Hello everyone, I wonder if anyone else has been diagnosed wth Triple Positve APS along with Cold Agglutinin Disease (COAG). My haematologist says they are unrelated but I wonder. I have recently had rituxamab intravenous treatment for COAG since it may be that it is beng triggered by low B Cell lymphoma
Hello everyone, I wonder if anyone else has been diagnosed wth Triple Positve APS along with Cold Agglutinin Disease (COAG). My haematologist says they are unrelated but I wonder. I have recently had rituxamab intravenous treatment for COAG since it may be that it is beng triggered by low B Cell lymphoma
Colinfb
in
Hughes Syndrome APS Forum
2 years ago
Waiting on a DX
Good Day! This is my first post. I have been seeing a hematologist since the end of last year (2022). I have been unwell since 2017. I have been through so so so many tests and so so many doctors. We are finally making some progress and even thought I might be done with the hematologist (my BMB can
Good Day! This is my first post. I have been seeing a hematologist since the end of last year (2022). I have been unwell since 2017. I have been through so so so many tests and so so many doctors. We are finally making some progress and even thought I might be done with the hematologist (my BMB can
Kmow222
in
MPN Voice
1 year ago
Anemia
Hi, recent blood tests have shown that I am slightly anaemic. I was diagnosed with PMR two years ago and my inflammatory makers are still slightly raised. I am on 2mg pred and feel I am doing ok, just a bit worried by the anemia. Has anyone else been told they are anemic and is it likely related to the
Hi, recent blood tests have shown that I am slightly anaemic. I was diagnosed with PMR two years ago and my inflammatory makers are still slightly raised. I am on 2mg pred and feel I am doing ok, just a bit worried by the anemia. Has anyone else been told they are anemic and is it likely related to the
Colin-s
in
PMRGCAuk
1 year ago
Should I switch SSRIs?
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Griffo_
in
Thyroid UK
11 months ago
Folate and Vitamin B results
Good evening, these are my latest vitamin B and Folate results (both normal). As my Folate is still low should I be taking only Folate tablets or a Basic B complex like Thorne which includes Folate. I don't want to take more than is necessary. Serum vitamin B12 243 pmol/L 145 - 569 Normal Serum
Good evening, these are my latest vitamin B and Folate results (both normal). As my Folate is still low should I be taking only Folate tablets or a Basic B complex like Thorne which includes Folate. I don't want to take more than is necessary. Serum vitamin B12 243 pmol/L 145 - 569 Normal Serum
Pinkisland
in
Thyroid UK
1 year ago
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