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new blood tests
Hct is lower again to 37 and Hgb 11.5, iron panel still anemic. New Blood Test. Anion Gap. Normal range per lab. 6-22 My test result was 3 Anyone have any insight? thank you
Hct is lower again to 37 and Hgb 11.5, iron panel still anemic. New Blood Test. Anion Gap. Normal range per lab. 6-22 My test result was 3 Anyone have any insight? thank you
Pickleball11
in
MPN Voice
8 months ago
Worried out of my mind
I have been self injecting for several years as I was initially given B12 loading doses and 1 injection every 3 months when I was initially diagnosed with a B12 level of 153. I was then taken off injections and told that I should never have been given them in the first place and couldn’t get them reinstated
I have been self injecting for several years as I was initially given B12 loading doses and 1 injection every 3 months when I was initially diagnosed with a B12 level of 153. I was then taken off injections and told that I should never have been given them in the first place and couldn’t get them reinstated
Hayley31
in
Pernicious Anaemia Society
4 months ago
windyway
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? I’ve talked my dr into every 2 months is this enough ? I’m having heart palpitations/ irregular fast heart beats is this connected? I’ve read this
Windyway
in
Pernicious Anaemia Society
4 months ago
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Supplimenting Vit B12 and Folate - how much?
Hello,My recent blood test shows: Ferritin 107ug/l (30-250) B12 377ng/l (200-900) Folate 4.7ug/l (3-20.50) (they forgot to test for Thyroid, so I have got to book in again for that...) I have checked previous messages and think that my Folate is low and B12 could be improved. There are supplements
Hello,My recent blood test shows: Ferritin 107ug/l (30-250) B12 377ng/l (200-900) Folate 4.7ug/l (3-20.50) (they forgot to test for Thyroid, so I have got to book in again for that...) I have checked previous messages and think that my Folate is low and B12 could be improved. There are supplements
GrowingVeg
in
Thyroid UK
8 months ago
Help with next appointment following loading doses
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I don’t have the actual results other than the B12). I didn’t have any really noticeable response
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both “normal” but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I don’t have the actual results other than the B12). I didn’t have any really noticeable response
GW1000
in
Pernicious Anaemia Society
8 months ago
blood count results?
Hi everyone! 😊 I was just wondering whether any of you wonderful intellectual people can read these blood results and maybe give me an insight to what they actually mean and if they are ok!? Iron is what I am most interested in… I am currently awaiting my yearly full vitamin panel blood test -
Hi everyone! 😊 I was just wondering whether any of you wonderful intellectual people can read these blood results and maybe give me an insight to what they actually mean and if they are ok!? Iron is what I am most interested in… I am currently awaiting my yearly full vitamin panel blood test -
ThyroidObsessed
in
Thyroid UK
8 months ago
Serum ferritin level & RBC count help please
Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate 210mg twice per day) is still pretty low and ‘could’ maybe be the reason I’m still feeling exhausted/heavy tired legs?? Thank you in advance
Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate 210mg twice per day) is still pretty low and ‘could’ maybe be the reason I’m still feeling exhausted/heavy tired legs?? Thank you in advance
CandiR
in
Pernicious Anaemia Society
8 months ago
High B12 - more tests needed?
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
AnotherEarlyRiser
in
Pernicious Anaemia Society
8 months ago
MPN specialist Claire Harrison
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Wilbob
in
MPN Voice
8 months ago
B12 result after 6 months…
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
4 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
Extra doses!
Hi everyone, Out of interest, does anymore here who has B12 deficiency and pernicious anaemia, self adminster extra doses? The reason I ask, is for a long time now, I have been having my jabs every three months. Previous to that, it was every two months, as according to my then endcronologist, it
Hi everyone, Out of interest, does anymore here who has B12 deficiency and pernicious anaemia, self adminster extra doses? The reason I ask, is for a long time now, I have been having my jabs every three months. Previous to that, it was every two months, as according to my then endcronologist, it
JOLLYDOLLY
in
Pernicious Anaemia Society
4 months ago
B12 and nerve regeneration
Starting in the 1990s, and continuing until my diagnosis with B12 deficiency in 2021, I had a series of problems with piriformis syndrome, sciatic nerve pain, and similar involvements with leg nerves. In searching around for related B12 information in Google Scholar I came across this article: https:
Starting in the 1990s, and continuing until my diagnosis with B12 deficiency in 2021, I had a series of problems with piriformis syndrome, sciatic nerve pain, and similar involvements with leg nerves. In searching around for related B12 information in Google Scholar I came across this article: https:
WiscGuy
in
Pernicious Anaemia Society
8 months ago
Pernicious Anemia treatment
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
merfi
in
Pernicious Anaemia Society
4 months ago
Platelets increase
My mun was diagnosed with thrombocytosis around 3 yrs ago. She has been on Hydresan for these years but during the past two blood tests she had to take her platelets went up to 600 in the first one and the second one was 700..We will contact her doctor but is this something to worry about? Ever since
My mun was diagnosed with thrombocytosis around 3 yrs ago. She has been on Hydresan for these years but during the past two blood tests she had to take her platelets went up to 600 in the first one and the second one was 700..We will contact her doctor but is this something to worry about? Ever since
PHGR
in
MPN Voice
8 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
4 months ago
NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
4 months ago
B12 or something else?
Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not wanting to diagnose myself, I felt I had little choice given the GP situation, plus my daughters are B12 deficient, and had the same symptoms as myself
Hi About 2-3 years ago, during lockdown when it was difficult/impossible to see a GP, I started taking B12 supplements 3-4 times weekly. Whilst not wanting to diagnose myself, I felt I had little choice given the GP situation, plus my daughters are B12 deficient, and had the same symptoms as myself
Justine_Case
in
Pernicious Anaemia Society
8 months ago
Recently diagnosed with pernicious anaemia
Uk 49 yrs old ...over the years ive been back and forth to drs as been tired and and have been told iron deficient and taken tablets but july 23 after i visited drs and seen a nurse as i was severely lethargic and had jaundice she got me booked me into ambulatory care in hospital were I went every
Uk 49 yrs old ...over the years ive been back and forth to drs as been tired and and have been told iron deficient and taken tablets but july 23 after i visited drs and seen a nurse as i was severely lethargic and had jaundice she got me booked me into ambulatory care in hospital were I went every
Tay10r
in
Pernicious Anaemia Society
8 months ago
Fibro or B12 deficiency??
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Blueoxo
in
Fibromyalgia Action UK
4 months ago
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