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ALS and B12
I ran across an article that was interesting, if for no other reason, for its quite detailed description of B12 deficiency. Scroll down to the heading, "Vitamin B12 levels and MND/ALS". https://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-4-298
I ran across an article that was interesting, if for no other reason, for its quite detailed description of B12 deficiency. Scroll down to the heading, "Vitamin B12 levels and MND/ALS". https://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-4-298
WiscGuy
in
Pernicious Anaemia Society
8 months ago
Iron profile
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
Baz33
in
Restless Legs Syndrome
8 months ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
3 months ago
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Sitagliptin
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
CORFUORBUST
in
Restless Legs Syndrome
8 months ago
Bruxism, botulinum toxin, Hashimoto, anxiety, tension
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
Margimet
in
Thyroid UK
8 months ago
early pregnancy -Hydroxy33
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
AstiSP
in
Pernicious Anaemia Society
3 months ago
Iron deficiency problem? But told satisfactory . Please can anyone advise
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
PJDJ_08
in
Thyroid UK
8 months ago
GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
3 months ago
Non-Functional B12 Cellular Activity.
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
High neutrophil count😱
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
jointpain
in
MPN Voice
8 months ago
Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
3 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
4 months ago
low iron and tremor
I have been tremoring for the last month and today my GP freaked out at my very low normal iron blood level. He said I eat meat so he can't understand why it's so low. Anyway, I checked with Google and low iron can cause tremors so I hope this is what is wrong and I will supplement with iron tablets
I have been tremoring for the last month and today my GP freaked out at my very low normal iron blood level. He said I eat meat so he can't understand why it's so low. Anyway, I checked with Google and low iron can cause tremors so I hope this is what is wrong and I will supplement with iron tablets
MEguy
in
Thyroid UK
8 months ago
Rapid responses to recent BMJ article
Thanks to Retteacherand LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Thanks to Retteacherand LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Sleepybunny
in
Pernicious Anaemia Society
8 months ago
Iron Infusions
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
KatieG75147
in
Pernicious Anaemia Society
5 months ago
From oxy to buprenorphine
I had my iron levels tested and all is good, not a candidate for infusion. Dr. Buchfuhrer suggested I switch from oxycodone to buprenorphine and tonight I did. Was nervous to go off of Oxy as it worked, but I noticed it was wearing off earlier and earlier. At 5 mg three times a day, I didn’t want
I had my iron levels tested and all is good, not a candidate for infusion. Dr. Buchfuhrer suggested I switch from oxycodone to buprenorphine and tonight I did. Was nervous to go off of Oxy as it worked, but I noticed it was wearing off earlier and earlier. At 5 mg three times a day, I didn’t want
Marlayna67
in
Restless Legs Syndrome
8 months ago
Iron infusion
Finally after many many months I found a sympathetic GP who referred me for an infusion on NHS ..a week later and I have an appt next week.Hopefully this will give me a much needed boost my ferritin is down to 18 and my TSA 11.4 ..any side effects on my atrophic gastritis known I would be glad to be
Finally after many many months I found a sympathetic GP who referred me for an infusion on NHS ..a week later and I have an appt next week.Hopefully this will give me a much needed boost my ferritin is down to 18 and my TSA 11.4 ..any side effects on my atrophic gastritis known I would be glad to be
davina70
in
Pernicious Anaemia Society
8 months ago
Help with results please
Hello, Just trying to work out if thyroid looks ok please and doesn't need any further investigation? I know I'm iron deficient with a low ferritin level but have been supplementing for 8 weeks now and have got up from 8 ug/L to 31 ug/L and am no longer anaemic either as Hb has raised a little too
Hello, Just trying to work out if thyroid looks ok please and doesn't need any further investigation? I know I'm iron deficient with a low ferritin level but have been supplementing for 8 weeks now and have got up from 8 ug/L to 31 ug/L and am no longer anaemic either as Hb has raised a little too
Bertiepuss
in
Thyroid UK
8 months ago
PA and oral B12 supplements
I have recently been diagnosed with PA and I’ve had an initial booster course of 6x B12 injections with a plan for 3 monthly injections for life (based, I understand, on local UK NHS protocols, or how my GP has interpreted them). I was therefore wondering if there is any benefit in taking oral B12
I have recently been diagnosed with PA and I’ve had an initial booster course of 6x B12 injections with a plan for 3 monthly injections for life (based, I understand, on local UK NHS protocols, or how my GP has interpreted them). I was therefore wondering if there is any benefit in taking oral B12
Pa234aw
in
Pernicious Anaemia Society
8 months ago
B12 help
Following on from previous post I have an under active thyroid (Hashimoto’s) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didn’t tell me that. I have been supplementing B complex and sometimes B12
Following on from previous post I have an under active thyroid (Hashimoto’s) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didn’t tell me that. I have been supplementing B complex and sometimes B12
Denny39
in
Pernicious Anaemia Society
8 months ago
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