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Giant axonal neuropathy
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2nd recurrence 😢
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects at all, CA124 9-13. Was convinced I was ‘the one’ it was going to work for but in May CA125 went up by 3. Nurse wasn’t concerned, I knew!! Then
Doglover1410
in
My Ovacome
2 years ago
Peripheral Neuropathy PN Activist
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
CIPN
in
Neuropathy Support
2 years ago
Interactions between vitamin b12 and vitamin b6 tablets.
Hello everyone, I am currently on cyanocobalamin injections, can I also take vitamin b6 tablets? Response from experienced persons please.
Hello everyone, I am currently on cyanocobalamin injections, can I also take vitamin b6 tablets? Response from experienced persons please.
Agala
in
Pernicious Anaemia Society
2 years ago
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2nd Ablation inside 6 months tomorrow
hi all I had a failed Cryoblation in March and now back in tomorrow for an RF ablation . im naturally just as nervous as the 1st time and wish I could have full anaesthetic rather than just sedation again but hey ho time to man up and get on with it lol . fingers crossed it works this time and
hi all I had a failed Cryoblation in March and now back in tomorrow for an RF ablation . im naturally just as nervous as the 1st time and wish I could have full anaesthetic rather than just sedation again but hey ho time to man up and get on with it lol . fingers crossed it works this time and
mjm1971
in
AF Association
2 years ago
haemorrhoids
hi I have not wrote on here for a while just looking for some advice on haemorrhoids. Over the years I have intermittently suffered with haemorrhoids. I have just had abdo surgery about 2 weeks ago and was worried an out being constipated so I was taking 4 laxido for a few days, then 3, 2, 1 the last
hi I have not wrote on here for a while just looking for some advice on haemorrhoids. Over the years I have intermittently suffered with haemorrhoids. I have just had abdo surgery about 2 weeks ago and was worried an out being constipated so I was taking 4 laxido for a few days, then 3, 2, 1 the last
Bassem1979
in
IBS Network
2 years ago
will these hot flashes ever end ?
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Mofred
in
PMRGCAuk
2 years ago
Nerve pain in foot
Hi I had an ankle injury 8 months ago and I still have nerve pain, toes are curled under, not as bad but it it getting me down, I cant walk far, i have a risk assessment for work and worried I cant stand for too long, any advice please
Hi I had an ankle injury 8 months ago and I still have nerve pain, toes are curled under, not as bad but it it getting me down, I cant walk far, i have a risk assessment for work and worried I cant stand for too long, any advice please
Hidden
in
Pain Concern
2 years ago
A PRACTICAL GUIDE TO UNDERSTANDING KAPLAN-MEIER CURVES
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
Yalokin
in
CLL Support
2 years ago
THD for hemorroids
Has anyone had a THD for hemorroids? I am worried I might have a lot of pain afterwards and possible incontinence. I am 73 and also have polymyalgia. Many thanks
Has anyone had a THD for hemorroids? I am worried I might have a lot of pain afterwards and possible incontinence. I am 73 and also have polymyalgia. Many thanks
ithinkthisisstupid
in
IBS Network
2 years ago
OVM-200 Phase 1 clinical trial ( vaccine)
I thought I would start a new thread as the original was about the decision making but now I’m in it I realise a clean thread may help. So today is day 15 of the trial and I am getting the second dose of the vaccine ( subject to clearing the screening this morning). I will then be observed for 4 hours
I thought I would start a new thread as the original was about the decision making but now I’m in it I realise a clean thread may help. So today is day 15 of the trial and I am getting the second dose of the vaccine ( subject to clearing the screening this morning). I will then be observed for 4 hours
Brysonal
in
Fight Prostate Cancer
2 years ago
B12-supplement causing restlessness, brain fog, anhedonia and sexual dysfunction
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Sofa00
in
Pernicious Anaemia Society
2 years ago
Man Lost Ability to Walk After Taking Too Many Vitamin B6 Supplements
A man in Australia lost his ability to walk after consuming 70 times the recommended daily dose of vitamin B6, ABC Radio Melbourne reported. But 50 milligrams is much higher than the standard dose recommendation in both Australia and the US, which is 1.7 milligrams of vitamin B6 per day for men over
A man in Australia lost his ability to walk after consuming 70 times the recommended daily dose of vitamin B6, ABC Radio Melbourne reported. But 50 milligrams is much higher than the standard dose recommendation in both Australia and the US, which is 1.7 milligrams of vitamin B6 per day for men over
Hidden
in
Cure Parkinson's
2 years ago
Tens Machine
hi everyone I have had sciatica for nearly four weeks, excruciating pain in calf and lower back. Cocodamol, osteopath, physio and GP but no relief. I have ordered a tens machine and wondered if anyone else has used one and if it’s ok to use with AbFib. Thanks
hi everyone I have had sciatica for nearly four weeks, excruciating pain in calf and lower back. Cocodamol, osteopath, physio and GP but no relief. I have ordered a tens machine and wondered if anyone else has used one and if it’s ok to use with AbFib. Thanks
AbbyTabby7
in
AF Association
2 years ago
Diffuse mild atrophic gastitis.
Following an endoscopy was told I have this condition.Is this the same as intestinal metaplasia or have I not progressed that far yet.
Following an endoscopy was told I have this condition.Is this the same as intestinal metaplasia or have I not progressed that far yet.
Helliborous
in
Pernicious Anaemia Society
2 years ago
Switch to Gabapentin from Pregabalin
I am sick and tired of daytime sedation from the 150 mg of pregabalin I take. It successfully treats my PLMD along with careful attention to food/drink triggers and has for three years or so. But it is hard to imagine the rest of my life fighting to stay awake. I have tried gabapentin twice. Both
I am sick and tired of daytime sedation from the 150 mg of pregabalin I take. It successfully treats my PLMD along with careful attention to food/drink triggers and has for three years or so. But it is hard to imagine the rest of my life fighting to stay awake. I have tried gabapentin twice. Both
wantokporo
in
Restless Legs Syndrome
2 years ago
Your thoughts/experiences please about a change to a high dose of Sotalol (120mg twice a day).
I have just had my 32nd bout of AF this year but could not shift this one myself (by cycling up a hill) so went to A+E. Sheffield A+E are always very accommodating, despite being very busy, and said that I had done the right thing to go in. The Cardiolology Depatment, where I am a patient, advised
I have just had my 32nd bout of AF this year but could not shift this one myself (by cycling up a hill) so went to A+E. Sheffield A+E are always very accommodating, despite being very busy, and said that I had done the right thing to go in. The Cardiolology Depatment, where I am a patient, advised
AFCyclist
in
Atrial Fibrillation Support
2 years ago
reduction
Hospital consultant going to decide whether to switch back from Pregabalin to Gabapentin to see if it helps with the pain ,currently o 300mg of Pregabalin and 150mg Tramadol at night so last night cut out 150 mg of Pregabalin had restless legs during night which I can cope with and felt better this morning
Hospital consultant going to decide whether to switch back from Pregabalin to Gabapentin to see if it helps with the pain ,currently o 300mg of Pregabalin and 150mg Tramadol at night so last night cut out 150 mg of Pregabalin had restless legs during night which I can cope with and felt better this morning
auldreekie18
in
Restless Legs Syndrome
2 years ago
discharge during stimulation
Hi, I’m on my third cycle of stims. Precious two have resulted in no transfers as I don’t respond very well to the meds and embryos are being tested for a gene I have. Unfortunately, the only embryo that has reached testing stage had the gene. This is my last opportunity. I’m having quite a lot of
Hi, I’m on my third cycle of stims. Precious two have resulted in no transfers as I don’t respond very well to the meds and embryos are being tested for a gene I have. Unfortunately, the only embryo that has reached testing stage had the gene. This is my last opportunity. I’m having quite a lot of
Fertility_journey
in
Fertility Network UK
2 years ago
I just bought this PEMF therapy mat (pulsed electromagnetic frequency) after learning it treats PD
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PEMF is a very interesting therapy that's been around for decades. This is a 2015 study from the NIH https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4562205/ [u]"Conclusions"[/u][i]
"Electromagnetic therapy opens a new avenue for PD treatment.
[/i] [i]Each electromagnetic therapy technique described
PDWarrior1900
in
Cure Parkinson's
2 years ago
I think I’m impacted
About two years ago I was diagnosed with IBS-C. I was prescribed Lizness, which worked a little… too well. I woke up twice having pooped myself in the night. After stopping the medication, I used natural alternatives and while still having uncomfortable trips to the bathroom, they were manageable. About
About two years ago I was diagnosed with IBS-C. I was prescribed Lizness, which worked a little… too well. I woke up twice having pooped myself in the night. After stopping the medication, I used natural alternatives and while still having uncomfortable trips to the bathroom, they were manageable. About
Hdbhdb
in
IBS Network
2 years ago
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