Search
Search
About
Log in
Join
Experiences with
Giant axonal neuropathy
Posts
Communities
4,041 public posts
Filter results
Urine Calcium Test tips?
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
Regenallotment
in
Thyroid UK
1 year ago
Gonal f trigger and timed intercourse missed folicle and ovulation so couldn't take my trigger injection
Hi I was taking my usual gonal f this cycle , and had day 21 day blood test came back that I had already ovulated a week ago, progesterone and estrogen are really high, so we missed a folicle somewer and completely missed the chance to trigger as I have pcos I don't ovulate myself sometimes the folicle
Hi I was taking my usual gonal f this cycle , and had day 21 day blood test came back that I had already ovulated a week ago, progesterone and estrogen are really high, so we missed a folicle somewer and completely missed the chance to trigger as I have pcos I don't ovulate myself sometimes the folicle
Dashound1
in
Fertility Network UK
1 year ago
Anti-MAG peripheral neuropathy
Has anybody been diagnosed with Anti-MAG peripheral neuropathy? I was told I had this yesterday by letter from my Neurologist after many blood tests and nerve conduction tests. Must admit I am really scared as apparently it is a rare form of neuropathy. Has anybody heard of it?
Has anybody been diagnosed with Anti-MAG peripheral neuropathy? I was told I had this yesterday by letter from my Neurologist after many blood tests and nerve conduction tests. Must admit I am really scared as apparently it is a rare form of neuropathy. Has anybody heard of it?
Karjade
in
Neuropathy Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
DOES ANYONE WITH PARKINSON'S DISEASE EXPERIENCE FESTINATION?
How do you cope? I am overwhelmed with falling everyday, two to three falls daily. Do you think the specialized PD WALKER called '' STEP 2 YOU will help to reduce or prevent the falls? Please reply if you have used this walker ,before I invest my hard earned money in it.
How do you cope? I am overwhelmed with falling everyday, two to three falls daily. Do you think the specialized PD WALKER called '' STEP 2 YOU will help to reduce or prevent the falls? Please reply if you have used this walker ,before I invest my hard earned money in it.
OREOLU
in
Cure Parkinson's
1 year ago
Bloods
Can anyone explain what these mean pleaseFull blood count Rouleaux + Lymphocytosis persists FILM REFERRED TO CONSULTANT HAEMATOLOGIST note raised esr and leukocytosis? underlying cause
Can anyone explain what these mean pleaseFull blood count Rouleaux + Lymphocytosis persists FILM REFERRED TO CONSULTANT HAEMATOLOGIST note raised esr and leukocytosis? underlying cause
pettyt65
in
Thyroid UK
1 year ago
Foot Neuropathy
Hello Warriors. Please let me say how much I appreciate all of your input to my questions about our battle against the beast. My question today has to do with the neuropathy I have in my feet that began after I completed my chemo in May of 2021. I am taking seven pills of gabapentin a day for total
Hello Warriors. Please let me say how much I appreciate all of your input to my questions about our battle against the beast. My question today has to do with the neuropathy I have in my feet that began after I completed my chemo in May of 2021. I am taking seven pills of gabapentin a day for total
Hidden
in
Advanced Prostate Cancer
1 year ago
My reaction to Crestor & Nubeqa combo. I need to make some adjustments. This study says simvastatin is best against APC. Your thoughts?
Based on these studies, do you think it's best to use simvastatin as your choice of statins? I'm using Crestor 5 mg plus 5mg Zetia and my ldl has gone down to a level, which puts me at risk of infection. Plus, my brain isnt functioning nearly as well as it used to. My current ldl is 27. This probably
Based on these studies, do you think it's best to use simvastatin as your choice of statins? I'm using Crestor 5 mg plus 5mg Zetia and my ldl has gone down to a level, which puts me at risk of infection. Plus, my brain isnt functioning nearly as well as it used to. My current ldl is 27. This probably
GeorgeGlass
in
Fight Prostate Cancer
1 year ago
Do natural supplements work to reduce high cholesterol?
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
While strictly not a PMR issue I know there are a few whose cholesterol has risen markedly since being diagnosed. I am one of them. I have always had high-ish cholesterol but my last fasting blood test showed everything else perfectly normal but my cholesterol was up. I haven't seen the results
Pr0jection
in
PMRGCAuk
1 year ago
Vitamin b12 - Tingling AFTER injection.
Hi! its 4 weeks ago i finished my vitamin b12 loading dose. I had 10 injections in total. (1 injection twice a week, so for 5 weeks) After the last injection everything started to tingle, my head, my hands and my feet. It was really extreme, so bad that I couldn't sleep. it started to burn and as soon
Hi! its 4 weeks ago i finished my vitamin b12 loading dose. I had 10 injections in total. (1 injection twice a week, so for 5 weeks) After the last injection everything started to tingle, my head, my hands and my feet. It was really extreme, so bad that I couldn't sleep. it started to burn and as soon
IrisXx
in
Pernicious Anaemia Society
1 year ago
A giant cell arteritis suffer
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
A giant cell arteritis suffer on methotrexate and prednisolone. Has anyone been on this combination as well? How long did it take you to get off the steroids as i'm still on 4mg as struggling to get off them as symptoms keep returning once I reduce down any further.
BM16
in
PMRGCAuk
1 year ago
Severe Pain
hi All,Happy new year🤗. This is the first time I’ve been on this page. I’m guessing I have PN or Perennial neuropathy. I suffer severely with pain in my pelvic area,vagina,and Anus,the pain goes all down to my feet. Now if I’m standing or walking I’m fine but when I sit or lie down I get the pain
hi All,Happy new year🤗. This is the first time I’ve been on this page. I’m guessing I have PN or Perennial neuropathy. I suffer severely with pain in my pelvic area,vagina,and Anus,the pain goes all down to my feet. Now if I’m standing or walking I’m fine but when I sit or lie down I get the pain
Breathless1943
in
Neuropathy Support
1 year ago
Going for my thrid collection🤯🤪adding luveris - anyone tried it?
Hi all my lovely friends! We've bit the bullet and decided to go for a 3rd egg collection and leave my little 2bb in the freezer! Feeling slightly mad for trying again and that I'm kidding myself but also going into it with hope and a wish! 42 is just around the corner so want my eggs harvested now.
Hi all my lovely friends! We've bit the bullet and decided to go for a 3rd egg collection and leave my little 2bb in the freezer! Feeling slightly mad for trying again and that I'm kidding myself but also going into it with hope and a wish! 42 is just around the corner so want my eggs harvested now.
Joeysjourney
in
Fertility Network UK
1 year ago
Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
1 year ago
happy new year,exercise,travel,self pity bouts
First of all best of health and best of luck tackling your heart rate in year 2023,thanks all for being there to help . Question one:is there any guide as to how to exercise,I am on sotalol, cardizem and struggle to find the level of exercise,used to exercise/hike all my life-my hobbies Two:any insight
First of all best of health and best of luck tackling your heart rate in year 2023,thanks all for being there to help . Question one:is there any guide as to how to exercise,I am on sotalol, cardizem and struggle to find the level of exercise,used to exercise/hike all my life-my hobbies Two:any insight
55zuzanka61
in
AF Association
1 year ago
Protein deficiency and B12?
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Enzalutamide & 5-year survival in mHSPC.
More from ASCO 2023 [1] [2]. "Patients in the ENZAMET trial (n = 1125) were randomized 1:1 to arm A, the control arm consisting of TS plus a standard non-steroidal antiandrogen ([NSAA] bicalutamide, nilutamide, or flutamide), or enzalutamide at 160 mg per day plus TS in arm B. " "The 5-year OS rates
More from ASCO 2023 [1] [2]. "Patients in the ENZAMET trial (n = 1125) were randomized 1:1 to arm A, the control arm consisting of TS plus a standard non-steroidal antiandrogen ([NSAA] bicalutamide, nilutamide, or flutamide), or enzalutamide at 160 mg per day plus TS in arm B. " "The 5-year OS rates
pca2004
in
Fight Prostate Cancer
1 year ago
Darolutamide & time to treatment discontinuation in nmCRPC
Further to the recent Apalutamide thred, we now have [1]: "A real-world analysis of the androgen receptor inhibitors (ARIs) darolutamide (Nubeqa), enzalutamide (Xtandi), and apalutamide (Erleada) found that darolutamide had a longer time to treatment discontinuation and longer time to progression to
Further to the recent Apalutamide thred, we now have [1]: "A real-world analysis of the androgen receptor inhibitors (ARIs) darolutamide (Nubeqa), enzalutamide (Xtandi), and apalutamide (Erleada) found that darolutamide had a longer time to treatment discontinuation and longer time to progression to
pca2004
in
Fight Prostate Cancer
1 year ago
magnesium glycinate and pregnancy
Knowing that lots of you take magnesium glycinate, have any of you taken it safely during pregnancy? Slightly off topic as I’m enquiring for my daughter who does not have a thyroid problem but is in the first trimester of pregnancy and is only sleeping about three hours a night. I suggested magnesium
Knowing that lots of you take magnesium glycinate, have any of you taken it safely during pregnancy? Slightly off topic as I’m enquiring for my daughter who does not have a thyroid problem but is in the first trimester of pregnancy and is only sleeping about three hours a night. I suggested magnesium
Bearo
in
Thyroid UK
2 years ago
Ultrasound-guided Perineural Vitamin B12 Injection for Peripheral Neuropathy
While googling yesterday I found this articlehttps://www.sciencedirect.com/science/article/pii/S0929644115000053 Has anyone else heard of this potential treatment for neuropathy? I'd be very interested in trying it on my toes.
While googling yesterday I found this articlehttps://www.sciencedirect.com/science/article/pii/S0929644115000053 Has anyone else heard of this potential treatment for neuropathy? I'd be very interested in trying it on my toes.
MoKayD
in
Pernicious Anaemia Society
2 years ago
Mystery pain
Had a scan a few weeks ago which showed slightly enlarged adrenal gland but nothing else. Slight raise in CA125 but no further increase this month. I keep getting a throbbing achey pain in my right hip which comes and goes, cant contact oncology nurses. Please tell me Im panicking for nothing !
Had a scan a few weeks ago which showed slightly enlarged adrenal gland but nothing else. Slight raise in CA125 but no further increase this month. I keep getting a throbbing achey pain in my right hip which comes and goes, cant contact oncology nurses. Please tell me Im panicking for nothing !
Rosebine2
in
My Ovacome
2 years ago
1
...
22
23
24
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
700 results
Fibromyalgia Action UK
320 results
Pernicious Anaemia Society
262 results
View top 10 communities
Sort by
Most Relevant
Newest