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GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
8 months ago
Covid vaccines and Lupus Flare - up
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
Everytime I get a Covid shot I get a painful Lupus Flare- up for 4 to 5 months . In the 30 years of having Lupus I have never been so sick as since I have been taking Covid shots . I am thinking I will wait at least 1 year , if not longer for another one .
seabreezegirl
in
LUpus Patients Understanding and Support
9 months ago
Hand rash/chicken pox
Doctors are so annoying and not helpful. I have taken 2 weeks off work now. I had burning red spots on my hand then started getting patchy rashes on hands then spots over my body and face -, chciken pox. Docs said hands are different to face ( my renal consultant). Done lots of blood tests and all they
Doctors are so annoying and not helpful. I have taken 2 weeks off work now. I had burning red spots on my hand then started getting patchy rashes on hands then spots over my body and face -, chciken pox. Docs said hands are different to face ( my renal consultant). Done lots of blood tests and all they
Shine54
in
LUPUS UK
8 months ago
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latest Covid vaccine
Has anyone received conflicting messages about whether or not to get the latest vaccine? My husband asked his primary nephrologist and he told him to just get the flu vaccine, then later he told him to get the Covid vaccine if he’s going to be traveling. This is the doctor who has previously told my
Has anyone received conflicting messages about whether or not to get the latest vaccine? My husband asked his primary nephrologist and he told him to just get the flu vaccine, then later he told him to get the Covid vaccine if he’s going to be traveling. This is the doctor who has previously told my
sugabear
in
Kidney Transplant
9 months ago
Covid and flu vaccination ?
Tomorrow I am due for both a covid and flu vaccination. I received a letter from the health authorities and I was offered both as I have the relevant health issues. This is the first time I fall in this category, even when taking pred. and being in the hospital for 5 days with asthma attack (covid) in
Tomorrow I am due for both a covid and flu vaccination. I received a letter from the health authorities and I was offered both as I have the relevant health issues. This is the first time I fall in this category, even when taking pred. and being in the hospital for 5 days with asthma attack (covid) in
krillemy
in
PMRGCAuk
9 months ago
Hypo with CKD & Bradycardia
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
Him A little about me, 55, female, psoriatic arthritis from a child, treated with biological Cosentxy and Methotrexate. Fatigue/weight gain led to a diagnosis of Fibromyalgia in 2018 after gallbladder removal. I was treated with high dose steroid injections. Over the next 18 months I suffered 12
SimbaT
in
Thyroid UK
9 months ago
Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
10 months ago
Hepatitis B
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
It started with yellow eyes and went south very quickly. I have had 2 weeks of hell and been very unwell. It was confirmed that I had Hep B and it really has turned my life upside down. It would be good to know others experiences.
HepBHelp
in
British Liver Trust
10 months ago
Restarting RA meds after having Covid
Hi allI had Covid and took antivirals. I tested positive on the 12th October and first tested negative on the 17th October. The nurse said I can have my Tocilizimab injection now. I am just questioning if it's too soon. I have a lot of catarrh it is clear, no infection. I am also extremely tired, getting
Hi allI had Covid and took antivirals. I tested positive on the 12th October and first tested negative on the 17th October. The nurse said I can have my Tocilizimab injection now. I am just questioning if it's too soon. I have a lot of catarrh it is clear, no infection. I am also extremely tired, getting
Mouseling
in
NRAS
9 months ago
really fed up
hi all , I’m feeding really sorry for myself 🤷🏻♀️ since Christmas I’ve been in hospital with pneumonia and pleurisy, had two lots of flu , several chest infection topped of with Covid …….. I feel so rundown and although I’m no athlete usually walk a fair bit , but I can’t get through this absolutely
hi all , I’m feeding really sorry for myself 🤷🏻♀️ since Christmas I’ve been in hospital with pneumonia and pleurisy, had two lots of flu , several chest infection topped of with Covid …….. I feel so rundown and although I’m no athlete usually walk a fair bit , but I can’t get through this absolutely
Hazel1010
in
Asthma Community Forum
1 year ago
Covid - Beware Getting Treatment - Don’t Test Positive on a Friday - Some Answers
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Well I said I would update you all regarding the ordeal I had had regarding my previous posts on this subject. Don’t want to bore you all but some may be interested in what I have managed to find out. I laid out to the NHS what I needed answers to and what they were doing about it to prevent it happening
Investigator1
in
Vasculitis UK
9 months ago
Colds
Have another really bad cough and cold (not COVID) - is this related to the immune system being reduced by pred ? I am on 6 mg after about 5 years
Have another really bad cough and cold (not COVID) - is this related to the immune system being reduced by pred ? I am on 6 mg after about 5 years
Daffodilia
in
PMRGCAuk
1 year ago
Effect of Covid on Platelets
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
I’ve had thrombocythaemia for many years and it’s been well controlled initially by Hydroxycarbamide and in more recent years by Hydroxycarbamide and Anagrelide together. At the beginning of September I developed covid and tested positive over a period of twenty days. Early in October during a face
AnneMargaretMary
in
MPN Voice
9 months ago
Online Ordering of COVID LFTs to Stop in November
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
COVID 19 Lateral Flow test kits are to be collected from a community pharmacy if the pharmacy chooses to sign up for the service from November 6th. From this date LFTs will no longer be available to order online or through the NHS 119 service.
MickUK
in
CLL Support
9 months ago
PMR & COVID Vaccine Link?
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
In another thread which I began on a different subject, the possibility of a link between PMR and COVID vaccine came up. In that thread, for the first time I saw something other than idle speculation that the vaccine and PMR might be l inked: [i]A study published[/i][u][i] in the journal Rheumatology
Mansplainer101
in
PMRGCAuk
9 months ago
blood test whilst with a cold?
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
due for a blood test later today, which I would normally have before my Rheumy visit (scheduled for next week) Come down with a blooming cold, started a few days ago - I’ve been reasonably lucky to have by passed most doing the rounds of our office 😬 - just done a COVID test to make sure and it’s come
Cfmad298601
in
PMRGCAuk
9 months ago
weird mouth symptoms on Sulfasalazine
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Charlongo79
in
NRAS
7 months ago
My GCA Update
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
I just got done with my MRIs and MRAs, so we’ll see if results show much. My blood test came back with sed rate normal (always has been) and C-reactive prrotein headed down. It went from normal in PMR, to 1.3 and then 2.0 in GCA. Now at 0.8, so barely high and heading in the right direction. Still feeling
Lenore58
in
PMRGCAuk
9 months ago
Garlic and Autoimmune
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
Thick_Blood
in
Hughes Syndrome APS Forum
10 months ago
COVID
Had COVID 9/12/2022 and still have no taste or smell. I am 71 and on no medications. I have been told to eat citrus to shock the taste buds so oranges,lemons,ginger,limes are on my daily menu. Eating BLD by texture to satisfy ion the mind. Lost 27 lbs and I am not heavy guy at 162 now…..My bride of
Had COVID 9/12/2022 and still have no taste or smell. I am 71 and on no medications. I have been told to eat citrus to shock the taste buds so oranges,lemons,ginger,limes are on my daily menu. Eating BLD by texture to satisfy ion the mind. Lost 27 lbs and I am not heavy guy at 162 now…..My bride of
oznaf
in
PMRGCAuk
9 months ago
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