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Genital chlamydial infection
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Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool. Does anyone use a fridge (or similar) thermometer
LeoTravels
in
MPN Voice
2 months ago
Kesimpta
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Hello, Hope everyone is ok and enjoying some sunshine. Over in the UK we aren't blessed with too much, but at the moment it is very fine :-) Anyhow, I moved over from Tecfidera to Ksimpta around 4 months ago after a particularly nasty relapse last year, and wondered if anyone else has done the same
Jasperdoo
in
My MSAA Community
2 months ago
still not 100%
I don’t have a fever and my throat only hurts when I first wake up. Then it goes away. I have so much post nasal drip so I think that’s what’s making it hurt. I was out of work for two days due to my colonoscopy, and tomorrow is looking like it’ll be a snow day due to a huge storm. I am going to try
I don’t have a fever and my throat only hurts when I first wake up. Then it goes away. I have so much post nasal drip so I think that’s what’s making it hurt. I was out of work for two days due to my colonoscopy, and tomorrow is looking like it’ll be a snow day due to a huge storm. I am going to try
Daisy425
in
Anxiety and Depression Support
5 months ago
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Covid Vaccines - Can you still book them?
Hi all, something that has slipped my mind but it’s been 6 months since I had my last Covid Vaccine. Are the Immune Deficient still eligible? If so how do we do it, is it via 119, or do we go to a walk in or are we referred (I hope not GPs hopeless) the online service doesn't allow bookings any more
Hi all, something that has slipped my mind but it’s been 6 months since I had my last Covid Vaccine. Are the Immune Deficient still eligible? If so how do we do it, is it via 119, or do we go to a walk in or are we referred (I hope not GPs hopeless) the online service doesn't allow bookings any more
Investigator1
in
Vasculitis UK
5 months ago
Mask Wearing
It is the same here in Australia. You don’t have to stay home with Covid. I think it’s very unfair and irresponsible. I wear a mask in supermarkets, doctors, pharmacies. I don’t go to crowded places anymore- such as concerts etc. I missed out on Paul McCartney when he was out here. Would loved to have
It is the same here in Australia. You don’t have to stay home with Covid. I think it’s very unfair and irresponsible. I wear a mask in supermarkets, doctors, pharmacies. I don’t go to crowded places anymore- such as concerts etc. I missed out on Paul McCartney when he was out here. Would loved to have
Doggo2
in
NRAS
5 months ago
Covid restless leg
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
Ciciskinner
in
Restless Legs Syndrome
5 months ago
scared
I slept for about 4 hours. My throat doesn’t hurt anymore but I still don’t feel amazing. I took my temp and it’s 99.1 which is causing a lot of anxiety. I did sleep under blankets and I am still under a few blankets, so maybe that’s why my temp is elevated. I’m just really anxious I hate feeling this
I slept for about 4 hours. My throat doesn’t hurt anymore but I still don’t feel amazing. I took my temp and it’s 99.1 which is causing a lot of anxiety. I did sleep under blankets and I am still under a few blankets, so maybe that’s why my temp is elevated. I’m just really anxious I hate feeling this
Daisy425
in
Anxiety and Depression Support
5 months ago
itch left upper back
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It sometimes accompanies autoimmune illnesses. I use Sarna lotion which is what I seem to recall the poster using as well. Anyone remember the name
Twopies
in
PMRGCAuk
2 months ago
covid and Thyroid tests
I have just tested positive for Covid. I am waiting for a Blue Horizon TFT kit. Can anyone advise how long I should wait before taking blood? Thanks
I have just tested positive for Covid. I am waiting for a Blue Horizon TFT kit. Can anyone advise how long I should wait before taking blood? Thanks
WeetabixSnacker
in
Thyroid UK
5 months ago
Some encouragement. If you’re looking for that.
disclaimer I will be going into detail so if you might be triggered know that it does end well. I started coming here around 2016. Anxiety had found me and I completely lost it. I let it take over and ended up spiraling for a few years. I would post how I was feeling, as many do and just hope that
disclaimer I will be going into detail so if you might be triggered know that it does end well. I started coming here around 2016. Anxiety had found me and I completely lost it. I let it take over and ended up spiraling for a few years. I would post how I was feeling, as many do and just hope that
Christory77
in
Anxiety Support
5 months ago
Latest COVID-19 guide for immunocompromised blood cancer patients from the International COVID-19 Blood Cancer Coalition (ICBCC)
The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled [i]"Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients"[/i], it aims [i]"to help you navigate and manage the risks arising from the combination
The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled [i]"Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients"[/i], it aims [i]"to help you navigate and manage the risks arising from the combination
CLLerinOz
Administrator
in
CLL Support
5 months ago
arrhythmia and the flu and Covid vaccine
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
CoCoLuna11
in
CLL Support
5 months ago
who cares for the carer?
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Sindyblue
in
Atrial Fibrillation Support
5 months ago
Covid jabs to be sold in pharmacies
hi Has anyone else any information regarding selling of Covid jabs from next month . this was in the Times this morning. This will allow people who are not eligible for NHS booster jabs to get vaccinated . They are saying the cost will be £15-£20 .
hi Has anyone else any information regarding selling of Covid jabs from next month . this was in the Times this morning. This will allow people who are not eligible for NHS booster jabs to get vaccinated . They are saying the cost will be £15-£20 .
Main1234
in
Vasculitis UK
5 months ago
Medically induced zombie looking for help!
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Is anyone else on Pregabalin and if so, how do you cope with 'zombiefying' side effects? I spend most of my working day on a computer and sometimes I feel like I can barely keep my eyes open. I'm also on Celecoxib and Topiramate.
Fibro_warrior
in
Fibromyalgia Action UK
1 year ago
Antibiotics for UTI symptoms
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
I suspect I have endometriosis after years of painful periods, painful sex and occasional bloating. My symptoms were menstruation specific. The last 2 years I have been almost been symptom free (for some unknown reason) but since Feb I have been having the classic tugging pain from my upper abdomen down
Mint_all_day
in
Endometriosis UK
2 months ago
Groups eligible for covid-19 spring booster announced
The groups eligible for the spring 2024 Covid-19 booster vaccine have now been announced. But it is not yet clear what date invitations will be sent or when they will start. You can find more information about eligible groups on our website, where we will also provide updates when the NHS releases timings
The groups eligible for the spring 2024 Covid-19 booster vaccine have now been announced. But it is not yet clear what date invitations will be sent or when they will start. You can find more information about eligible groups on our website, where we will also provide updates when the NHS releases timings
Debbie_kinsey
Administrator
in
LUPUS UK
5 months ago
Shingles and Ruxolitinib
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
I note that on the Blood Cancer web site is states that [i]Aciclovir is an anti-viral medication that prevents shingles, which can be a side effect of Ruxolitinib.[/i] [i]If you’re on Ruxolitinib, you have to be careful about your skin,[/i] I was told to be aware and careful of my skin when taking
nanmc
in
MPN Voice
2 months ago
update after Drs app.
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
saw the Dr who did listen to chest etc. and looked in throat for thrush symptons. He gave me a sputum jar for if it happens again in the next few days ,he wants mr to see the Asthma Nurse ( not much hope there) if it happens again he will send me to see a consult. He also asked who had prescribed the
MrsP70
in
Lung Conditions Community Forum
2 months ago
Cold immersion therapy for PC?
Has anyone had experience with using cold immersion, either ice baths or cold showers, to support recovery and treatment side effects?
Has anyone had experience with using cold immersion, either ice baths or cold showers, to support recovery and treatment side effects?
7OaksTom
in
Advanced Prostate Cancer
2 months ago
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