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Started Triplet Therapy this week, new doc, new (better) treatment plan!
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Gl448
in
Advanced Prostate Cancer
1 year ago
Anxiety and counseling
hi I am sorry I have not added this on, I have forgotten how but I was wondering I suffer from anxiety and stress don't know why now, I sometimes feel like I have knots in my stomach and cough a bit and sometimes feel like wretching and still have anxiety attacks and wondered if I could get counseling
hi I am sorry I have not added this on, I have forgotten how but I was wondering I suffer from anxiety and stress don't know why now, I sometimes feel like I have knots in my stomach and cough a bit and sometimes feel like wretching and still have anxiety attacks and wondered if I could get counseling
fibrogirl41
in
Fibromyalgia Action UK
1 year ago
PSA rising…..Duke Champ?
In November I posted my concerns that my psa increased from.01 to.27 after 15 months of Zytiga. Test today showed it at .67. Unfortunately, ct scans also showed spread in lymph nodes. I am certainly mCRPC now which answers my question from my last post. Also, I had a bladder tumor scraped via scope
In November I posted my concerns that my psa increased from.01 to.27 after 15 months of Zytiga. Test today showed it at .67. Unfortunately, ct scans also showed spread in lymph nodes. I am certainly mCRPC now which answers my question from my last post. Also, I had a bladder tumor scraped via scope
SimplyT
in
Advanced Prostate Cancer
1 year ago
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Life after ICU
My dad was rushed into hospital before Xmas with pneumonia and ended up on a ventilator in ICU. He was fully intubated and sedated for two weeks and for the last week and a bit has been on a trachy. I know it's a long road ahead and although he is weaning off the ventilator slowly, he is in a better
My dad was rushed into hospital before Xmas with pneumonia and ended up on a ventilator in ICU. He was fully intubated and sedated for two weeks and for the last week and a bit has been on a trachy. I know it's a long road ahead and although he is weaning off the ventilator slowly, he is in a better
Pookyal
in
ICUsteps
1 year ago
vADS presentation vs hEDS, especially on darker skin tones
I am under investigation with NHS at the moment, at my request, given I think a lot of what I have experienced over decades corresponds to EDS. The NHS physio has confirmed generalised joint hypermobility at our initial meeting, given my medical history we’re having a more extensive examination next
I am under investigation with NHS at the moment, at my request, given I think a lot of what I have experienced over decades corresponds to EDS. The NHS physio has confirmed generalised joint hypermobility at our initial meeting, given my medical history we’re having a more extensive examination next
Buffstera
in
Ehlers-Danlos Support UK
1 year ago
A New Year and Best Wishes to Everyone
This message is a positive one, so please read through to the end. I was active on the anxiety and depression boards a few years ago. I never had a history of any type of mental health issues prior to Covid, and being out-of-work during the same time period, plus dealing with a family member with
This message is a positive one, so please read through to the end. I was active on the anxiety and depression boards a few years ago. I never had a history of any type of mental health issues prior to Covid, and being out-of-work during the same time period, plus dealing with a family member with
hstroller
in
Anxiety and Depression Support
1 year ago
Please help!
My son is 8 years old. He takes medication for his ADHD. His behavior is school is fine. However, his behavior at home with me is challenging. I'm a single mom and required to do everything on my own. He is recovering counseling in school and in the community. I want to try something different for
My son is 8 years old. He takes medication for his ADHD. His behavior is school is fine. However, his behavior at home with me is challenging. I'm a single mom and required to do everything on my own. He is recovering counseling in school and in the community. I want to try something different for
Kimmie2110
in
CHADD's ADHD Parents Together
1 year ago
Gender Disappointment
Up until the time we went for a private scan, the pregnancy was going fine. It was when we found out the gender, things changed. My wife reacted to having a boy very badly. We already have a daughter. All my wife dreamed of was to have another girl, for our daughter to play with and have a best friend
Up until the time we went for a private scan, the pregnancy was going fine. It was when we found out the gender, things changed. My wife reacted to having a boy very badly. We already have a daughter. All my wife dreamed of was to have another girl, for our daughter to play with and have a best friend
Hidden
in
Action on Postpartum Psychosis
1 year ago
Another possible chemical :(
Hi guys, Apologies in advance for the long post… I think I'm having my 4th chemical pregnancy (1st with IVF after 3 natural chemicals). Had my FET on 19th Dec and OTD was yesterday at 11dp5dt. Got a few positive tests and a 1-2 weeks CB yesterday. Really tried to feel positive about the tests but
Hi guys, Apologies in advance for the long post… I think I'm having my 4th chemical pregnancy (1st with IVF after 3 natural chemicals). Had my FET on 19th Dec and OTD was yesterday at 11dp5dt. Got a few positive tests and a 1-2 weeks CB yesterday. Really tried to feel positive about the tests but
Esb27
in
Fertility Network UK
1 year ago
genetic test results
Hello CLL fellows and Specialists, Hematologists I want to share my experience here. We have been fortunate to meet Dr. Christen Chen at the Princes Margaret Cancer Hospital in Toronto. She is very kind and friendly. She has ordered several tests one of them is a FISH test and it is reported as trisomy
Hello CLL fellows and Specialists, Hematologists I want to share my experience here. We have been fortunate to meet Dr. Christen Chen at the Princes Margaret Cancer Hospital in Toronto. She is very kind and friendly. She has ordered several tests one of them is a FISH test and it is reported as trisomy
Sagarcanada
in
CLL Support
1 year ago
Attention - How Precious is it?
Good morning all and happy Christmas. I've pinched the first sentence below from something I read this week.
Our attention is powerful; it is the true gold of this world, which is why so much effort is made to capture it
. The most wonderful thing we can do for anyone is to really listen to what
Good morning all and happy Christmas. I've pinched the first sentence below from something I read this week.
Our attention is powerful; it is the true gold of this world, which is why so much effort is made to capture it
. The most wonderful thing we can do for anyone is to really listen to what
jeanjeannie50
in
Atrial Fibrillation Support
2 years ago
Xtandi failed
My dad was diagnosed in September 2016 following a TURP procedure. His initial PSA was 5.2, Gleason 4+3. Treatment so far: Casodex 150mg, reduced to Casodex 50mg (Sepetmebr 2016 - January 2019) Eligard + Casodex 50mg (January 2019 - March 2019); Eligard only (from March 2019 on) Radiation treatment
My dad was diagnosed in September 2016 following a TURP procedure. His initial PSA was 5.2, Gleason 4+3. Treatment so far: Casodex 150mg, reduced to Casodex 50mg (Sepetmebr 2016 - January 2019) Eligard + Casodex 50mg (January 2019 - March 2019); Eligard only (from March 2019 on) Radiation treatment
MyDad76
in
Advanced Prostate Cancer
2 years ago
think i need counselling???
i think i need counselling, as happy 1 minutre, crying the next at the trauma of it all. feels like i need counselling. had bereavement counselling, but that was useless...... juliet
i think i need counselling, as happy 1 minutre, crying the next at the trauma of it all. feels like i need counselling. had bereavement counselling, but that was useless...... juliet
JULIETstevens
in
Headway
2 years ago
counselling
has anyone had counselling and did it help? i had bereavement counselling, but that was pointless.TBI in 2018 but still crying randomly due to trauma of it all. think i need counselling????? have others had counselling and did it help???
has anyone had counselling and did it help? i had bereavement counselling, but that was pointless.TBI in 2018 but still crying randomly due to trauma of it all. think i need counselling????? have others had counselling and did it help???
JULIETstevens
in
Brain Aneurysm Support
2 years ago
mental health in first trimester
I’m wondering what anyone else has done to deal with first trimester stress. And in particular if anyone has any experience with contacting GP etc for support and whether it’s actually helped/ any other things tried? I’m 6w. I’m convinced that it’s a blighted ovum or otherwise already lost/ going
I’m wondering what anyone else has done to deal with first trimester stress. And in particular if anyone has any experience with contacting GP etc for support and whether it’s actually helped/ any other things tried? I’m 6w. I’m convinced that it’s a blighted ovum or otherwise already lost/ going
Hidden
in
Fertility Network UK - Pregnancy Support
2 years ago
Leaving loved ones
I am thinking about my husband of 37 years. Things are not going too well for me and although he tends to not to believe the end isn't in sight, he must be effected by all the latest events (starting trial drug next month etc). Naturally I don't like to dwell on any negative thoughts either but any
I am thinking about my husband of 37 years. Things are not going too well for me and although he tends to not to believe the end isn't in sight, he must be effected by all the latest events (starting trial drug next month etc). Naturally I don't like to dwell on any negative thoughts either but any
Claireperth
in
SHARE Metastatic Breast Cancer
2 years ago
hospital visit
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
Have I done the right thing and is ignorance bliss with this vile illness. I have gfr of 21 but everything else seems to be ok. The private consultant was very good and explained everything well. He did say though that if your gfr goes below 20 you could be talking about dialysis so now I am terrified
fartikins
in
Kidney Disease
2 years ago
Genetic testing
I am thinking of getting Prolaris genetic testing and also getting testing for the BRCA1 gene. A doctor friend told me that if the genetic testing comes back as possibility of aggressive cancer, it can influence course of treatment. Thoughts? Am I going overboard here?
I am thinking of getting Prolaris genetic testing and also getting testing for the BRCA1 gene. A doctor friend told me that if the genetic testing comes back as possibility of aggressive cancer, it can influence course of treatment. Thoughts? Am I going overboard here?
witantric
in
Prostate Cancer Network
2 years ago
Advice needed. Many thanks!
Hi everyone. Newbie here! Very soon I will have my first appointment with a consultant since my cirrhosis diagnosis in July 2022. I was wondering if any of you have some good general questions to ask a consultant that I can take with me? I've thought of a few but as I'm new to all of this and am not
Hi everyone. Newbie here! Very soon I will have my first appointment with a consultant since my cirrhosis diagnosis in July 2022. I was wondering if any of you have some good general questions to ask a consultant that I can take with me? I've thought of a few but as I'm new to all of this and am not
Spiderlass
in
British Liver Trust
2 years ago
Genetic Testing
Hi everyone, I would like to share one interesting experience related with my disease. Just a small recap, I diagnosed with FSGS this year, I am in 3a-3b phase. The problem is since I do not have any other disease, I am classified with primary FSGS. If I had any other certain cause to my kidney disease
Hi everyone, I would like to share one interesting experience related with my disease. Just a small recap, I diagnosed with FSGS this year, I am in 3a-3b phase. The problem is since I do not have any other disease, I am classified with primary FSGS. If I had any other certain cause to my kidney disease
tas1kubra
in
Kidney Disease
2 years ago
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