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Gaucher disease type 3 (GD3)
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Lightheadedness after AFib episode
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
Jomaur
in
Atrial Fibrillation Support
1 month ago
✨supplements✨
what supplements does everyone take and what do they help you with? I currently take magnesium+calcium, omega 3 fish oil and evening primrose oil.
what supplements does everyone take and what do they help you with? I currently take magnesium+calcium, omega 3 fish oil and evening primrose oil.
RatArt
in
Fibromyalgia Action UK
9 months ago
Walking round the close....
Well i went for my first walk round the close and felt like i had ran a marathon. I am exhausted now. I keep forgetting i have had major heart surgery. I was only in theatre for an hour yet in that time they repaired my heart. The trouble is i forget i have other health problems to deal with. I want
Well i went for my first walk round the close and felt like i had ran a marathon. I am exhausted now. I keep forgetting i have had major heart surgery. I was only in theatre for an hour yet in that time they repaired my heart. The trouble is i forget i have other health problems to deal with. I want
sylvi
in
NRAS
1 month ago
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AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
6 months ago
Supplements to help liver
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
Catsaresocute
in
British Liver Trust
6 months ago
Three Distinct MS Subtypes Identified
[i]I'm so sorry. I sent a bad link. Hopefully this one will work better.[/i]
MDedge/Neurology 09 Apr 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified
[i]I'm so sorry. I sent a bad link. Hopefully this one will work better.[/i]
MDedge/Neurology 09 Apr 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified
BettysMom
in
My MSAA Community
3 months ago
Fibroscan
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
kingsnorth
in
PBC Foundation
6 months ago
My introduction Hi
Hiya everyone. Here, as I have recently, by accident really, been to the doctor to see if I might qualify for weight loss drugs, having heard such good things about ozempic or the tablet version Rybelsus. Dr said no, I don't qualify for it. But BP was 185/172 which shows hypertensive crisis, heading
Hiya everyone. Here, as I have recently, by accident really, been to the doctor to see if I might qualify for weight loss drugs, having heard such good things about ozempic or the tablet version Rybelsus. Dr said no, I don't qualify for it. But BP was 185/172 which shows hypertensive crisis, heading
Halcyondaze
in
British Liver Trust
1 month ago
Echo results.
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Lupaal
in
Atrial Fibrillation Support
1 month ago
7 years plus
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
I was a junior high Science teacher... in 2015 my PKD became so profound that I had to quit teaching and have HD 3 times a week for 4 hours a session. The second time I had dialysis I was infiltrated severely... and wound up in hospital.. I have had a bilateral Nephrectomy and my kidneys were football
1EPXiii
in
Kidney Dialysis
6 months ago
Elevated Liver Enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Mhalpha
in
British Liver Trust
6 months ago
SOC & PSA
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
Three months post RT, my RO ordered a non-ultrasensitive PSA test with a lower limit of "<.1". I see posts of folks considering an increase from .02 to .06 a PSA doubling - obviously which would not be observable with my PSA test. This makes me wonder why: 1) Is there any good reason why an ultrasensitive
SCreader
in
Advanced Prostate Cancer
6 months ago
low resting heart rate
Hi All, I have Low resting heart rate, regardless of upping dose. I’ve upped my T3 meds from 20mcg to 25mcg and I take 100mcg of Levo and my resting hr stays at 52/51bpm my resting heart rate was the same at 15mcg T3 too. Initially when I up the dose for 2-3 days resting heart rate will increase to
Hi All, I have Low resting heart rate, regardless of upping dose. I’ve upped my T3 meds from 20mcg to 25mcg and I take 100mcg of Levo and my resting hr stays at 52/51bpm my resting heart rate was the same at 15mcg T3 too. Initially when I up the dose for 2-3 days resting heart rate will increase to
Thyroid_mum
in
Thyroid UK
1 month ago
Advice about experts at London Bridge Hospital
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
Annslack
in
Hughes Syndrome APS Forum
1 month ago
Suspect I have Addison's
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
I had a blood test yesterday and my serum cortisol was 330 nm/l.I have some hyperpigmentation & vitaligo. I think my GP was checking for Addison's. Hopefully now I can see an endocrinologist
antiloquax
in
Thyroid UK
3 months ago
Doccla Home Monitoring
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Bauldy
in
Atrial Fibrillation Support
1 month ago
Afib and Bone density supplements
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
ijregner
in
Atrial Fibrillation Support
1 month ago
No more appointments
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
Puzzled8
in
Atrial Fibrillation Support
1 month ago
Electric shock treatment
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
Lynthebin
in
AF Association
5 months ago
Stomach issues
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
Morning all, So I am just about at my wits end with chronic gastric reflux and chronic wind up and down without much smell. Sometimes I vomit with it, and now I can only eat jasmine rice and even struggle to get water down at the moment. My stomach feels like I have been beat up from the inside
M0wnt
in
LUPUS UK
3 months ago
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