Search
Search
About
Log in
Join
Experiences with
Gaucher disease type 3 (GD3)
Posts
Communities
46,634 public posts
Filter results
Three Distinct MS Subtypes Identified
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
From MDedge/neurology 09April 2024
https://www.mdedge.com/neurology/article/268641/multiple-sclerosis/three-distinct-ms-subtypes-identified?ecd=WNL_EVE_240411_mdedge&icd=login_success_email_match_norm&print=1
BettysMom
in
My MSAA Community
3 months ago
Becoming mCRPC despite falling PSA
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
kennycool
in
Advanced Prostate Cancer
6 months ago
cardiologist appointment
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
Prosecco1997
in
Atrial Fibrillation Support
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My folate deficiency merry-go-round.
Hi all,I have joined here in hope of learning more about why l keep getting folate decifiency. It is currently 2.1. I become deficient usually every 7/8 months and it has been this way for about 3 years. Each time it happens, l complain to my GP that l feel exhausted, he runs blood tests and it is
Hi all,I have joined here in hope of learning more about why l keep getting folate decifiency. It is currently 2.1. I become deficient usually every 7/8 months and it has been this way for about 3 years. Each time it happens, l complain to my GP that l feel exhausted, he runs blood tests and it is
Blue_feather
in
Pernicious Anaemia Society
3 months ago
APS and Panic Attacks
Hi, I have been living with the diagnosis of APS since 2017 after a mini-stroke in my left eye, which fortunately left no damage. Recently, I switched from aspirin to warfarin after possibly experiencing another mini-stroke, though this hasn't been confirmed by tests. Sometimes, I feel dizzy, short
Hi, I have been living with the diagnosis of APS since 2017 after a mini-stroke in my left eye, which fortunately left no damage. Recently, I switched from aspirin to warfarin after possibly experiencing another mini-stroke, though this hasn't been confirmed by tests. Sometimes, I feel dizzy, short
Alessandra001
in
Hughes Syndrome APS Forum
2 months ago
Holidays
Hi all I'm going away for 6 weeks to france so I'm stocking up on meds. My question is how long can you go without apixaban in an emergency as I'm on 2 a day. Also on a small dose of bisop once a day. This is my first time away in a year since my stroke last July and a bit nervous 😓 Thank you
Hi all I'm going away for 6 weeks to france so I'm stocking up on meds. My question is how long can you go without apixaban in an emergency as I'm on 2 a day. Also on a small dose of bisop once a day. This is my first time away in a year since my stroke last July and a bit nervous 😓 Thank you
TillyBoss
in
Atrial Fibrillation Support
2 months ago
Can anyone help please?
Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Hi everyone. I am 9 years undiagnosed 🙄 my Rheumatologist thought I was a possible for Lupus but wasn't prepared to diagnose me there and then, this was 2015. I had had a positive Cryoglobulinemia blood test which was negative for Hep C, he said this was an indication of Lupus? Has anyone else got
Jodelights
in
LUPUS UK
3 months ago
All kidney tests normal EXCEPT albumin/ creatinine ratio
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
Cobalt2sister
in
Early CKD Support
6 months ago
Basal Cortisol Test Result
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
Floridafan
in
PMRGCAuk
6 months ago
Interesting Article (please read)
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
Padayn01
in
AF Association
7 months ago
night cramps
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
Hi everyone, I’m new on this forum. I was diagnosed with Rheumatoid Arthritis 3 years ago, in the family genes!, I’m currently on Methotrexate (25mg). Seem to be ok until about 2 weeks ago when I started to experience severe night cramps in my legs and feet. My consultant tells me it wasn’t a symptom
sussiewong22
in
NRAS
3 months ago
Any treatment after Lu-177 (Pluvicto)?
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
fsiefert
in
Advanced Prostate Cancer
6 months ago
2nd Ablation woes
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Twizzle1962
in
Atrial Fibrillation Support
2 months ago
Return of Armpit Odor - Yikes!!!
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
JohnInTheMiddle
in
Advanced Prostate Cancer
6 months ago
Flecainide before Cardioversion
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
Siebertgirl
in
Atrial Fibrillation Support
2 months ago
Excruciating jaw pain
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
FortyWinks
in
Advanced Prostate Cancer
2 months ago
Vasculitis (especially CNS/cerebral) and incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
vivdunstan
Volunteer
in
Vasculitis UK
2 months ago
Thankyou
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Exhiker
in
Atrial Fibrillation Support
2 months ago
iwatch setting - AF history or AF alert?
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Rainfern
in
Atrial Fibrillation Support
2 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
2 months ago
1
...
63
64
65
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
6060 results
British Liver Trust
4502 results
Advanced Prostate Cancer
4462 results
View top 10 communities
Sort by
Most Relevant
Newest