Search
Search
About
Log in
Join
Experiences with
Gaucher disease type 3 (GD3)
Posts
Communities
46,627 public posts
Filter results
lupus or fibromyalgia
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
hi has anyone else in a similarly position my GP can’t tell whether I have fibromyalgia or lupus or a combination of the two
Pricey110
in
Fibromyalgia Action UK
2 months ago
fibromyalgia or lupus
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
hi has anyone else been diagnosed with fibromyalgia but you think it’s more likely to be Lupus. I am constantly tired and just don’t have any energy, hate direct sunlight and have constant pain in my joints. How do I get my GP to actually come to a conclusion it’s so frustrating not knowing.
Pricey110
in
LUPUS UK
2 months ago
Therio
https://therio.me/ [i] I don't know anything about the company. I met Micah seven years ago at a medical conference. He was selling Ozone generators. I ended up buying one and have been using it ever since. It's all about home-testing various conditions from Parkinson's to cancer to Alzheimer's
https://therio.me/ [i] I don't know anything about the company. I met Micah seven years ago at a medical conference. He was selling Ozone generators. I ended up buying one and have been using it ever since. It's all about home-testing various conditions from Parkinson's to cancer to Alzheimer's
kaypeeoh
in
Cure Parkinson's
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Does fear play a role with pernicious anemia?
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
25092
in
Pernicious Anaemia Society
2 months ago
Trimethoprim - ET
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
Jelbea
in
MPN Voice
6 months ago
Unsure of best option in early prostate cancer diagnosis.
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
cobrasc429
in
Advanced Prostate Cancer
6 months ago
wheat in cosmetics
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
Veggie2
in
Gluten Free Guerrillas
6 months ago
High LFT results
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
Dexter786
in
British Liver Trust
6 months ago
Blood tests whilst pregnant
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
Lottyplum
in
Thyroid UK
2 months ago
Medical lecture and Q&A - Hosted by Dr. Arvind Kaul (with guest speakers) - 15th June 9.30am
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
michaellasmith
Administrator
in
LUPUS UK
2 months ago
Provenge (only) - impact on overall survival
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
I just got insurance approval for Provenge...out of pocket is really high so now I'm doing a cost benefit analysis in my mind. I've seen many different articles showing that Provenge ALONE only extends overall survival by 4-15 months. Does that sound correct? Tall_Allen mentioned adding xofigio for
Gl448
in
Advanced Prostate Cancer
6 months ago
Effects of Omega 3 (let me remind you that walnuts have more omega 3 than fish) on cancer. Still preclinical.
Effect of omega-3 fatty acid diet on prostate cancer progression and cholesterol efflux in tumor-associated macrophages—dependence on GPR120. Preclinical. https://www.nature.com/articles/s41391-023-00745-4
Effect of omega-3 fatty acid diet on prostate cancer progression and cholesterol efflux in tumor-associated macrophages—dependence on GPR120. Preclinical. https://www.nature.com/articles/s41391-023-00745-4
Maxone73
in
Advanced Prostate Cancer
9 months ago
What is folic acid used for?
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
helvella
in
Pernicious Anaemia Society
2 months ago
Autoimmune disease?
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
Farfield
in
British Liver Trust
2 months ago
Anyone know about Dr's or consultants prescribing metformin for endometriosis?
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
Escapologygirl
in
Endometriosis UK
2 months ago
New Post, community only please
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
Dawnm10
in
Hughes Syndrome APS Forum
2 months ago
Shingles Jab
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
Stewart64
in
LUPUS UK
2 months ago
To poop or not to poop, that is the question
I am about to embark on taking a phosphorous binder. I will be taking Sevelamer or Renvela at 800mg, one tablet with meals. I only eat two meals a day. WHAT can I do to prevent constipation. I already have an issue with it because of Ozempic and being on dialysis. I had to stop eating oatmeal every day
I am about to embark on taking a phosphorous binder. I will be taking Sevelamer or Renvela at 800mg, one tablet with meals. I only eat two meals a day. WHAT can I do to prevent constipation. I already have an issue with it because of Ozempic and being on dialysis. I had to stop eating oatmeal every day
Bassetmommer
in
Kidney Dialysis
6 months ago
Anyone used Dr Dani Gordon @The London Resilience Clinic
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
Field007
in
Fibromyalgia Action UK
2 months ago
I am still struggling with treatment decisions - Help please.
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
I am struggling to decide on my treatment. The main point of conflict is HT or not, and LDR Brachytherapy (if I am eligible - because of a previous HOLEP) or IMRT. I also wonder if I should push hard for a 10-day earlier consultation at the risk of bad feeling. I welcome advice. In the UK - Referral
Nordman
in
Advanced Prostate Cancer
6 months ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
6060 results
British Liver Trust
4499 results
Advanced Prostate Cancer
4458 results
View top 10 communities
Sort by
Most Relevant
Newest