I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has taken me a long time to get back to where I was. I have an extremely stressful job as head of two schools on separate sites, and have taken the really difficult decision to resign at the end of the school year as the level of work and stress really not helping. Huge decision and currently not got another job to go to but just couldn’t continue as I was.
I have been receiving a lot of emails from Dr Dani at the London Resilience Clinic. Lots of the issues they discuss matches my conditions and wondered if anyone has used them. Assessment etc not cheap, and concerned that I will get hooked in and will end up costing a significant amount- if it works it would be worth it. Just a bit wary. Any thoughts welcome.
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Field007
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Isn't not heard anything about anyone using this clinic. Some positive things on their website and something's I am not keen on. £400 for an initial consult is a lot of money.
Might be worth considering asking your GP for a referral to the Guys and St. Thomas's fibro clinic. One off appointment but when I attended I saw 4 different specialists, rheumatologist, physio, psychologist and one other I can't remember as it was several years ago. It was such a relief to talk to people who understood fibro, believed what I said and I actually cried with relief after I saw them. They then put together a plan of action for my GP. Wasn't easy getting the referral as my GP said they couldn't do anything she couldn't do. I had a battle with her, put my request in writing (always best to do it as it then forms part of your notes, verbal requests often don't get recorded). Follow up your letter with a telephone consult and that should get you what you request, if you choose this route.
I got a referral there about 2017/2018 and only saw a physio and psychologist. I had originally been diagnosed with Fibro back in 2009 there by Professor Davies. He is no longer alive. Do they still do the residential pain management course? Would be interested to know about the plan of action they put together for you. They seemed to be very anti any painkillers/drugs. I was told I wasn’t suitable for the residential course at that time.
No idea on the residential course. I am not local to the hospital. The action plan was various medications (none of which I could tolerate unfortunately) another pain management course nearer to home, some spinal injections, psychology support. Another OT assessment for work, to continue with the chiropractor. Didn't seem too impressed with my hypnotherapy but I continue with it as I feel benefit from it. Like all things fibro what works for one may not work for another. I enjoy my hypnotherapy and feel great afterwards so I will continue for as long as I can afford it and feel the benefit.
She has written a book you could read before paying for an individual assessment. That might help you decide if this approach would be helpful? The Resilience Blueprint.
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