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Gaucher disease type 3 (GD3)
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Very happy with my new eating regime 🙂
So following my heart attack and 3 stents on 27th Feb 23 I have now achieved my ideal weight putting me in the middle of the healthy category. I have lost over 17 kg Down from 13 stone 7 to 10 stone 10 and a BMI of 22.8. I have also got my Blood glucose stable and back in the normal range, and Insulin
So following my heart attack and 3 stents on 27th Feb 23 I have now achieved my ideal weight putting me in the middle of the healthy category. I have lost over 17 kg Down from 13 stone 7 to 10 stone 10 and a BMI of 22.8. I have also got my Blood glucose stable and back in the normal range, and Insulin
Instructor57
in
Healthy Eating
8 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
4 months ago
Macrophages, type of immune cell, tied to lupus nephritis in children
M1 macrophages may cause more severe kidney disease in young patients Inflammatory macrophages, a type of immune cell tasked with clearing the body of harmful invaders and dead cells, may be linked to more severe lupus nephritis in children with systemic lupus erythematosus, a small study suggests.
M1 macrophages may cause more severe kidney disease in young patients Inflammatory macrophages, a type of immune cell tasked with clearing the body of harmful invaders and dead cells, may be linked to more severe lupus nephritis in children with systemic lupus erythematosus, a small study suggests.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 month ago
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Kpa results from scan
i had a fibro scan today , first one , was admitted to hospital beginning of january , with a bleed due to bacterial stomach infection when they discovered liver damage , ultrasound showed ? cirrhosis i’ve been out of hospital 5 weeks . and current ly have no symptoms my fibro scan was 17.5
i had a fibro scan today , first one , was admitted to hospital beginning of january , with a bleed due to bacterial stomach infection when they discovered liver damage , ultrasound showed ? cirrhosis i’ve been out of hospital 5 weeks . and current ly have no symptoms my fibro scan was 17.5
greensforliver
in
British Liver Trust
4 months ago
At what psa is PCa suspected?
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
my 45 year old son has a psa of 0.79. No PCa diagnosis. Should he be concerned? (Dad with PCa)
CousinGrandpa
in
Advanced Prostate Cancer
4 months ago
Radiation PSA, Orgovyx, Bone density Update 2/18/24
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
alperk
in
Advanced Prostate Cancer
4 months ago
Suboptimal Cortisol levels following Synacthen test
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
I’ve just turned 60 and used to be a sportsperson. I’ve been on predisolene for 5 1/2 years and unable to get below 5mg despite several slow attempts. My rheumy suggested a short synacthen test via Endo which was 8 months later. I barely function on 5mg with doing bare minimum, giving up my small flower
Heucera1
in
PMRGCAuk
4 months ago
Pred dose post hip operation
Hi, and thank you in advance to all who have the patience to read this long story, and the kindness to offer advice: I have so many things going on at the moment! Currently, PMR seems like the least of my problems, and I’m hoping I can ride the other medical turmoil I’m in without it raising it’s head
Hi, and thank you in advance to all who have the patience to read this long story, and the kindness to offer advice: I have so many things going on at the moment! Currently, PMR seems like the least of my problems, and I’m hoping I can ride the other medical turmoil I’m in without it raising it’s head
calibriel
in
PMRGCAuk
4 months ago
Father’s CRPCa Failed chemo (Cabazitaxel,Docetaxel) and Failed LU177
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Vishwa1890
in
Advanced Prostate Cancer
4 months ago
free from psp
My husband is free from this horrible disease. He passed away 1/24/24 at 68. I miss him horribly but I’m so glad he’s not suffering anymore. He was diagnosed with Parkinson’s in 2019 and then later with PSP in 2020. The last 1 1/2 years was really tough and if it wasn’t for my kids, this forum and
My husband is free from this horrible disease. He passed away 1/24/24 at 68. I miss him horribly but I’m so glad he’s not suffering anymore. He was diagnosed with Parkinson’s in 2019 and then later with PSP in 2020. The last 1 1/2 years was really tough and if it wasn’t for my kids, this forum and
Kathylou62
in
PSP Association
4 months ago
Metastatic prostate cancer in the lungs
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
Radical prostatectomy in 2003 with PSA of 3.9. PSA slowly rose to .07 in 2023. PET scan in May, 2023 found nodules in my lungs with the largest being 1.4 cm. Needle biopsy identified it as metastatic adenocarcinoma from prostatic origin. 5 sessions of 50Gy cyberknife treatments on the 1.4 cm nodule
S4survivor
in
Advanced Prostate Cancer
4 months ago
One month on alternative meds only
Three pluses and one negative. Breast met is gone, prostate shrunk to near normal size, nagalase dropped from 1.55 to 1.37 . The negative is PSA jumped from 14 to 22. Which is more accurate the nagalase test or the PSA?
Three pluses and one negative. Breast met is gone, prostate shrunk to near normal size, nagalase dropped from 1.55 to 1.37 . The negative is PSA jumped from 14 to 22. Which is more accurate the nagalase test or the PSA?
agnut
in
Fight Prostate Cancer
4 months ago
Methane dominant breath test - Aire 2
I purchased the FoodMarble Aire2 two weeks ago and have been logging meals and doing breath tests. Early days of course but most meals rarely go above 4 - except for one day when I experimented with 6 danish butter cookies and that scored a 6.7 after one hour! I notice that on all my readings that
I purchased the FoodMarble Aire2 two weeks ago and have been logging meals and doing breath tests. Early days of course but most meals rarely go above 4 - except for one day when I experimented with 6 danish butter cookies and that scored a 6.7 after one hour! I notice that on all my readings that
hankpym
in
IBS Network
4 months ago
prostate met to esophagus
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
on the road for 9 years. Short story.. biopsy 4+3. Surg. Found in margins, pelvic lymphs. PSA 3 after. C11 found in lymph in chest. Chemo, then zytiga, Lupron, then 37 radiation, and meds then meds a year. Non detectable NED 7 years no meds tx 6 years. PSA started going up, slowly, bout 18 mo
Kittenlover50
in
Advanced Prostate Cancer
4 months ago
Could Someone Explain The TTGIgA Test Please?
Hello! I have recently had some blood tests done due to low vitamin B12 and long term issues with iron deficiency. My GP did some tests to rule out Celiacs as a cause, and I just wondered if somebody could explain the Tissu Transglutaminase IgA test please - my result came back at 0.4 (range 0-6.9) I
Hello! I have recently had some blood tests done due to low vitamin B12 and long term issues with iron deficiency. My GP did some tests to rule out Celiacs as a cause, and I just wondered if somebody could explain the Tissu Transglutaminase IgA test please - my result came back at 0.4 (range 0-6.9) I
Hidden
in
Gluten Free Guerrillas
4 months ago
Low B12 but Negative Parietal Cell Autoantibodies
Hi! I had some blood tests done last week (a brief history - I haven’t been 100% since I had Covid 14 months ago and been suffering with extreme tiredness and fatigue.. I was found to have iron deficiency anaemia and was successfully treated last year), it has shown I have low B12 (173 - range 197-771
Hi! I had some blood tests done last week (a brief history - I haven’t been 100% since I had Covid 14 months ago and been suffering with extreme tiredness and fatigue.. I was found to have iron deficiency anaemia and was successfully treated last year), it has shown I have low B12 (173 - range 197-771
Hidden
in
Pernicious Anaemia Society
4 months ago
PSA rise
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
2 months ago my PSA was 20. I have had extensive screening done prior to starting a clinical trial on Tuesday. My PSA has gone up to 367 since then. CT scan showed no significant change and I had bone scan yesterday. Onco says it may just be increased activity of existing cancer cells and not necessarily
konichiwa12
in
Advanced Prostate Cancer
4 months ago
new and looking for resources Stage 4 metastatic. Gleason 9
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
New and concerned wife here. The Reddit group suggested to come to this form. Yesterday we got the worst news possible after waiting 3+ weeks for results. I waffle back and forth between anger, sadness and hope. My husband was diagnosed at 61 with metastatic prostate cancer. Gleason 9, it has
Sunnysailor
in
Advanced Prostate Cancer
4 months ago
PMR with type 2 diabetes
I had type two diabetes before I was diagnosed with PMR and I think this is why my GP wants me to get down as quickly as possible from prednisolone as it affects my blood sugar level. For the last three months I have been going up and down because I just cannot seem to get rid of the pain. I got as
I had type two diabetes before I was diagnosed with PMR and I think this is why my GP wants me to get down as quickly as possible from prednisolone as it affects my blood sugar level. For the last three months I have been going up and down because I just cannot seem to get rid of the pain. I got as
Elmadon
in
PMRGCAuk
9 months ago
Advice with Graves Disease
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
Hi All - I was diagnosed with Graves Disease in June 2023 and prescribed Carbimazole 20mg plus Propranolol 80mg Sustained Release. I have never actually met my endocrinologist owing to NHS strikes, so as a 60yo man I feel pretty alone with this condition as I don't know anyone else who has it. After
CharlieUK
in
Thyroid UK
4 months ago
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