hi to those of you that follow me on here and those who don’t just wanted to do a quick update.
So I saw Transplant consultant last month and he said I probably won’t live 5 years without a transplant. I went back yesterday as follow up as they are now seeing me monthly, and we’ll I was totally surprised with what he said.
first I had my liver scan and saw consultant afterwards and looked at my bloods and he almost fell out his chair as he said my results since last time I saw him was remarkable! He said my bloods are better then expected Billirubin has come right down now at 21 which is just at the high end of ok, p,at let’s are 72 which is really good for me they are usually around 50-60 only thing was my I need to take more vitamin B. He said due to this I can wean off the spirolactone and stop the Co-Trimoxole but still stay on Targaxan for now. Because I have varices he wants and endoscope done ASAP so that booked next week in case I need banding as he said if I have a bleed that can bring me back done to liver failure again. I’m dreading that cause I really gag and it’s booked for Friday 13th a little superticious I admit. But it seems I’m now leaning more going away from a transplant. It seems al, the fighting and hard work I’ve done has been worth it! I stuck religiously with my 3 Renopro shots a day and 1 Amyes milkshake in the morning, and have been pushing my fitness walking longer then I’m comfortable with. And just to add in 5he mix I gave up smoking last month too. I still have to see them every month so I don’t fall as he said it’s like playing snakes and ladders where I’ve been precariously taking each square a day but if I get a bleed I could land on a snake and end up at the bottom of the board again, but I’m confident in myself that I can smash this ball out of the stadium. It been a long tough road and I’m ever so thankful for all your comments you have given me in the past helping me get through each and every day and to the lovely Liver Foundation helpline nurses who have been there for me. I’m not becoming complacent though I still know I have hit the top of the mountain yet, but at least I can at least see it now. Keep with it for all those who are struggling you will get there one way or another xxx
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Harriet-sarah
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Well done…that’s really good news. I hate endoscopies too. The hardest bit is swallowing the camera-after that it’s just uncomfortable. So good luck on that -I’m sure you’ll be fine. Tremendous progress.
oh well done Harriet, this is the most uplifting post from you, I can honestly say you sound more happy and positive , infact this is best I have heard you and that warms my heart, I never really know what to say when people are down so I say nothing, especially as I am really not up with liver disease like the rest of you , I worry I will say the wrong thing…. Honestly I am so pleased for you , I know you will kick the ball out of the stadium as well, then I’ll be waiting to kick it into space for you , please keep us posted and good luck on the 13th, don’t be superstitious hun, my friend was born on the 13th and lives at number 13 and it’s been a nice number for her , good luck going forward my lovely xx
thank you everyone for all your kind lovely messages, I feel so uplifted I still haven’t come back to reality yet lol! I’m going to start and look to do an open university course soon to update me for the real world out there, as been hiding under a rock for so long, I’ve got something to add yet to this this lifetime I’m im no way done with it. Feel like Rocky! 💪💪
only through anxiety I do, they gave my heart medication to reduce risk of varices but it lowered my bp too much, so I’m taking nothing so I am at high risk until I get it checked with an endoscopy and see if any babding needs doing, which I’m getting done next week xx
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Update
Six month scanxiety.
Update on hubby 13/7/2021
feeling really anxious 
TIPPS Procedure
