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Experiences with
Gaucher disease type 1 (GD1)
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holter monitor
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
hi has anyone any experience of waiting times for holter monitor results I had a 48hr holter monitor and echocardiogram 5 weeks ago this was recommended by the arrythmia clinic at my local hospital I have not seen anyone from the clinic before or after these tests and no results given yet was just wondering
Deltrot53
in
Atrial Fibrillation Support
3 months ago
AF & Bradycardia
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Hi everyone, I am wondering if you can help me, I have AF which I am in permanent and have and 31% ventricular fraction, I am waiting for a date for a cardio version with Barts, I brought a Kardia mobile, and I have been monitoring my heart rate as bpm since February, The bpms have been fluctuating
Flippy1
in
Atrial Fibrillation Support
3 months ago
Low saturation with PV and Jakavi 20
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
I have had PV since two years. Rux started december '23. Good results with HB and HCT. HB is pretty low now 7.7 for a while. My weight has increased 10% wit the same diet. My saturation is, in rest 92, with effort I can raise it to 93/94. Long test last week revealed a very good lung condition (5,7
Quitojohn
in
MPN Voice
3 months ago
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Low Volume Low PSA Metastatic PC.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
When my Oncologist refers to Low volume, Low PSA Oglimetastic PC, what is he saying about my disease? I’ve been oo Abiraterone followed by Xtandi with Lupron every 3 months and Zometa every 6.
NDJIM
in
Advanced Prostate Cancer
7 months ago
What to do.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
Have been in persistant afib after unsuccessful cardioversion 6 mths ago. On Loperessor 100/50 and eliquis. Doing only ok but almost past out after walking up two flights of stairs over weekend. Short of breath and nausea. Have been told not a good canidate for ablation.
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Study Offers New Clues to Why Most People with Autoimmune Diseases Are Women
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
[i]Caption:[/i] [i]Purple chromosomes fill the scene but a greyed-out chromosome locked up with chains labeled "Xist" is in the foreground. One of the Xist chains is covered with sharp thorns.[/i] [i]Xist molecules shut down one of two female X chromosomes to avoid toxic protein levels, but they
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
3 months ago
1st patient doesd in Phase 2 trial testing vaccine for Parkinson's
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
------------ The first patient has been dosed in a Phase 2 clinical trial testing AC Immune’s ACI-7104.056, an investigational vaccine targeting toxic alpha-synuclein forms to [u][i]
prevent nerve cell degeneration in Parkinson’s disease.
[/i][/u] AC Immune expects to complete the enrollment
PDWarrior1900
in
Cure Parkinson's
7 months ago
20 years of drinking and want to stop but don’t dare’nt get a liver test.!!
iv been drinking beer for 20 year's, 4 to 5 pints most evenings at home after work. I know I must have damaged my liver in some way, I’m not stupid.! But my problem is that I dare’nt go for a liver function test as I also suffer with heath anxiety which doesn’t help ? Not that anyone one has asked me
iv been drinking beer for 20 year's, 4 to 5 pints most evenings at home after work. I know I must have damaged my liver in some way, I’m not stupid.! But my problem is that I dare’nt go for a liver function test as I also suffer with heath anxiety which doesn’t help ? Not that anyone one has asked me
Jetcat
in
British Liver Trust
7 months ago
Becoming a grumpy old git !
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
Hi all, Just an enquiry .... one of my rare ones. It concerns a possible side effect of medication. In the last 6 months or so I have changed three precribed medication. I list these as below ....
Simvastatin
was started in mid 2007 and taken continuously until, my Surgery Pharmacist asked
BenHall1
in
Atrial Fibrillation Support
3 months ago
Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
7 months ago
eating gluten prior to biopsy
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
lauram1978
in
Gluten Free Guerrillas
6 months ago
Arx517 updates about the trial for metastatic castration resistant prostate cancer
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
”Following completion of the 21-day observation period at 3.4 mg/kg (Cohort 9), no dose limiting toxicities (DLTs) or serious adverse events (SAEs) were observed Two patients in Cohort 9 experienced rapid PSA reduction at three weeks post-treatment following the first ARX517 dose” https://www.biospace.com
Maxone73
in
Advanced Prostate Cancer
7 months ago
Putting on weight
I have under thyroid and have posted a few questions so sorry for another one. Do any if you find if you put on the slightest but of weight it triggers you to go more underactive? For example at Xmas like most people I put on a bit of weight then I feel I go underactive and then put on more weight.
I have under thyroid and have posted a few questions so sorry for another one. Do any if you find if you put on the slightest but of weight it triggers you to go more underactive? For example at Xmas like most people I put on a bit of weight then I feel I go underactive and then put on more weight.
Billy2023
in
Thyroid UK
5 months ago
RO 52 Positive
I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynaud's, rashes, splinter hemorrages, tiredness, breathlessness on exertion, (ground glass opacities in lungs, waiting on a second CT) joint aches, mild gastro issues. Am I likely to have Lupus primarily, or some other autoimmune
I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynaud's, rashes, splinter hemorrages, tiredness, breathlessness on exertion, (ground glass opacities in lungs, waiting on a second CT) joint aches, mild gastro issues. Am I likely to have Lupus primarily, or some other autoimmune
Graysonfur
in
LUPUS UK
5 months ago
Ablation
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
I have a long history of paroxysmal atrial fibrillation and have been on blood thinner medication for 10 years treating my paroxysmal episodes with PIP . However last march I went into highly symptomatic persistent AF which did not reverse before undergoing a successful cardioversion in August. I've
Midnight2022
in
Atrial Fibrillation Support
3 months ago
Advice post ablation
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
Hi-I know this subject has probably been discussed before but.......... back in May last year I was put on the waiting list for an ablation having had regular bouts of Afib which were treated successfully by using Fleccanide as a PIP. I didn,t have any Afib episodes after August but had ever increasing
afhanhound
in
Atrial Fibrillation Support
3 months ago
not PA, next steps
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
5 months ago
What is BIG DATA? Demystifying the use of patient health data in research - FREE online Event
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
Date and time: Tue, 5 Dec 2023 6pm-7.30pm
How does clinical research use our data? Is it important? Is it necessary? And how safe is it? We'll be exploring these questions - and many more - in a discussion about a new research study which is developing ways to understand fibrosis. Fibrosis
BritishLiverTrust1
Partner
in
British Liver Trust
7 months ago
I don't have a magic wand
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
Peppermints
in
LUPUS UK
5 months ago
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