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Gaucher disease type 1 (GD1)
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Ambroxol update
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
CuriousMe12
in
Cure Parkinson's
7 months ago
questions after tadiotherapy?
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
pj1121
in
Advanced Prostate Cancer
7 months ago
husband with CRPC needing advice
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Betsyhrd
in
Advanced Prostate Cancer
7 months ago
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I just need to vent!
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Bramble2000
in
PMRGCAuk
7 months ago
Pain when breathing and short of breathe post ablation update
Thanks guys fir all your advice .I ended up at a n e after ringing 111 for advice. They red flagged me and did an immediate ecg to rule out a heart attack. Followed by bloods and a xray of my lungs .. All tests can back normal and they couldn't find and concerns . So I was sent hone and it's a mystery
Thanks guys fir all your advice .I ended up at a n e after ringing 111 for advice. They red flagged me and did an immediate ecg to rule out a heart attack. Followed by bloods and a xray of my lungs .. All tests can back normal and they couldn't find and concerns . So I was sent hone and it's a mystery
Sunnyann
in
Atrial Fibrillation Support
4 months ago
help !
last couple days Iv had serve chest pains it’s right in the middle of my chest and now it’s round my back like ribs feels all tight! When I press down it hurts so much and I’m getting shortness of breathe but I don’t think it’s a heart attack but I’m panicking it is! When I google it says it could be
last couple days Iv had serve chest pains it’s right in the middle of my chest and now it’s round my back like ribs feels all tight! When I press down it hurts so much and I’m getting shortness of breathe but I don’t think it’s a heart attack but I’m panicking it is! When I google it says it could be
Kaaayla
in
Anxiety Support
4 months ago
Recommendations for Endos in/near Berkshire
Just wondered if anyone has any recommendations for endos in or around Berkshire if they could pm me. I have seen one recently who has said he doesn't think I've ever had a thyroid problem as I was borderline when diagnosed but still have many symptoms. My TSH is very low but I am on a combination
Just wondered if anyone has any recommendations for endos in or around Berkshire if they could pm me. I have seen one recently who has said he doesn't think I've ever had a thyroid problem as I was borderline when diagnosed but still have many symptoms. My TSH is very low but I am on a combination
JRosemaryW
in
Thyroid UK
5 months ago
Bisoprolol and Mechanism of Action- Breathlessness
So I am on a tiny, baby dose of Bisporolol (1.25mg) after taking 2.5/made me dizzy and have pauses after PACs. I am getting this weird breathlessness. It is so hard to explain. I hiked a trail in our woods today with ko problem, but then sat on the couch and watched a movie and felt like I couldnt
So I am on a tiny, baby dose of Bisporolol (1.25mg) after taking 2.5/made me dizzy and have pauses after PACs. I am getting this weird breathlessness. It is so hard to explain. I hiked a trail in our woods today with ko problem, but then sat on the couch and watched a movie and felt like I couldnt
MeganMN
in
Atrial Fibrillation Support
4 months ago
Hashimoto's & Multiple Sclerosis (apologies for two posts in very quick succession!)
Hello - first off, sorry for making two posts in quick succession asking for help! As I mentioned in my first question about an Endo Department, there has been a 'twist' in my Hashi's (I actually have Ord's: autoimmune thyroid disease with no goitre) story... Over the course of several blood tests,
Hello - first off, sorry for making two posts in quick succession asking for help! As I mentioned in my first question about an Endo Department, there has been a 'twist' in my Hashi's (I actually have Ord's: autoimmune thyroid disease with no goitre) story... Over the course of several blood tests,
ERIC107
in
Thyroid UK
5 months ago
Methotrexate
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Teddie111
in
NRAS
5 months ago
Medication for Vasculitis
Hi. I have had Vasculitis for four years and my current medication is Prednisolone 5.5 mg daily and Methotextrate Injection 25mg weekly. Following the onset of my illness I now have to use a wheeled walker to get around and can no longer drive a motor vehicle.
Hi. I have had Vasculitis for four years and my current medication is Prednisolone 5.5 mg daily and Methotextrate Injection 25mg weekly. Following the onset of my illness I now have to use a wheeled walker to get around and can no longer drive a motor vehicle.
oscar294
in
Vasculitis UK
4 months ago
Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
5 months ago
Remission now flare.
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
pool0009
in
NRAS
5 months ago
help - prostate cancer with bone metastasis in bones - patient 70 years old - PERU
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
DiegoFerruaPE
in
Advanced Prostate Cancer
7 months ago
Hello
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Tray68
in
LUPUS UK
5 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
5 months ago
What dosage are Carvedilol users on?
Afternoon, I've switched off bisoprolol onto Carvedilol and am still getting some episodes of Afib/ flutter with a high heart rate during exercise. I started on 3.25mg Carvedilol twice daily, now on 6.5mg twice daily, the next logical step is to jump to 12.5 mg twice daily. Just trying to see what
Afternoon, I've switched off bisoprolol onto Carvedilol and am still getting some episodes of Afib/ flutter with a high heart rate during exercise. I started on 3.25mg Carvedilol twice daily, now on 6.5mg twice daily, the next logical step is to jump to 12.5 mg twice daily. Just trying to see what
kitenski
in
Atrial Fibrillation Support
4 months ago
lupus
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
Pea_m
in
LUPUS UK
5 months ago
Statins
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
Profound15
in
Atrial Fibrillation Support
4 months ago
Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
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