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FDA alert re: denosumab
This was issued specifically re: Prolia, with no mention of Xgeva. However patients should be alerted, and of course don't change your medications without first speaking to your doctor about this. https://www.fda.gov/drugs/drug-safety-and-availability/fda-adds-boxed-warning-increased-risk-severe-hypocalcemia-patients-advanced-chronic-kidney-disease
This was issued specifically re: Prolia, with no mention of Xgeva. However patients should be alerted, and of course don't change your medications without first speaking to your doctor about this. https://www.fda.gov/drugs/drug-safety-and-availability/fda-adds-boxed-warning-increased-risk-severe-hypocalcemia-patients-advanced-chronic-kidney-disease
dentaltwin
in
Advanced Prostate Cancer
4 months ago
what to do??
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
I am really struggling, I am wondering if I have hashimotos. Diagnosed with an underactive thyroid in march ( the day my dad died) just 6 months after losing my mother in law. Had gone to the drs thinking my HRT needed tweaking for my perimenopause symptoms. (Hair loss, brittle nails, weight gain, sweating
Vorney
in
Thyroid UK
7 months ago
Right phrenic nerve paralysis
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
Path from RP showed extensive perineural involvement. No other risk factors for phrenic nerve paralysis. Haven't talked to MO yet, but sure concerned it's tumor invasion. PSA still <0.04.
rfgh20
in
Advanced Prostate Cancer
4 months ago
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Interesting Article: Promising new remedies for Parkinson's disease
Update:
I read and researched as I was posting this. I am happy they put NR and PEA in their article, but I think they got a little over their skis stating they had found a "
A dynamic quartet
" [u]
Update Again! Please see Park Bear's Citicoline Warning
[/u] https://healthunlocked.com
Update:
I read and researched as I was posting this. I am happy they put NR and PEA in their article, but I think they got a little over their skis stating they had found a "
A dynamic quartet
" [u]
Update Again! Please see Park Bear's Citicoline Warning
[/u] https://healthunlocked.com
Bolt_Upright
in
Cure Parkinson's
4 months ago
Taste alteration
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Hi, Has anyone experienced loss of taste after transplant? My partner says everything tastes absolutely horrendous. Will this come back?!
Gemmax
in
British Liver Trust
2 months ago
My MO suspects that I am non-metastatic, castration resistant but will not approve any treatment until metastases develop.
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Balsam01
in
Advanced Prostate Cancer
4 months ago
‘Antibodies sometimes present and others not therefore no treatment’
I wanted to ask a question regarding tests for antibodies, including outside the standard PA ones, for example thyroid, hughes, vasculitis, lupus…… Apparently, according to my GP, my various autoimmune antibodies are positive and sometimes not over these past few years.(I certainly struggle with various
I wanted to ask a question regarding tests for antibodies, including outside the standard PA ones, for example thyroid, hughes, vasculitis, lupus…… Apparently, according to my GP, my various autoimmune antibodies are positive and sometimes not over these past few years.(I certainly struggle with various
RoseFlowerDew
in
Pernicious Anaemia Society
7 months ago
My Research into thyroid tissue growing back after TT🤔
I had full TT in 2019 due to graves thyrotoxicosis, as some members will know I had a US scan performed in 2022 for a Parathyroid adenoma, the surgeon noted a nodule of 6/7 on the left side, but nothing else.I went on to have the F18 pet scan to determine what the nodule was, but a mass of (14x7x21)
I had full TT in 2019 due to graves thyrotoxicosis, as some members will know I had a US scan performed in 2022 for a Parathyroid adenoma, the surgeon noted a nodule of 6/7 on the left side, but nothing else.I went on to have the F18 pet scan to determine what the nodule was, but a mass of (14x7x21)
birkie
in
Thyroid UK
4 months ago
Early detection: POSLUMA is the first FDA-approved radio-hybrid drug for PET imaging of prostate cancers.
Imaging tool can detect PCa even with very low PSA levels https://www.news4jax.com/health/2024/01/16/new-imaging-tool-is-lighting-up-prostate-cancer/
Imaging tool can detect PCa even with very low PSA levels https://www.news4jax.com/health/2024/01/16/new-imaging-tool-is-lighting-up-prostate-cancer/
Maxone73
in
Advanced Prostate Cancer
4 months ago
Rise in Testosterone but not PSA?
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
My dad has stage 4 prostate cancer, diagnosed in August of 2022. Gleason 4+3 Stage 4 because it went to 1 lymph node in the abdomen. After 44 rounds of radiation, receiving Eligard injections every 3 months, and 10 months on Apalutamide, his scans show no evidence of disease. ( As of Oct 2023) His
ThisIsForMyMom
in
Advanced Prostate Cancer
4 months ago
post prostatectomy psa
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
hello. I Had surgery June 13 2023 biopsy showed Gleason 8. Psa 13 perineal invasion seminal vesicle invasion post surgery pathology Gleason 7. First two ultra sensitive psa came back with less than symbol 0.02. Then my last ultra sensitive psa came back 0.02 without the less than symbol. Is this something
Elkguide
in
Advanced Prostate Cancer
4 months ago
1600 to 100 and counting
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Hi All In the summer of 2023 I was diagnosed with Stage 4 prostate cancer. My PSA test came in at 1634. I was told it was in my bones had three years to live and put on Zolodex. Since then my PSA in December 2023 is at 109 and my CT scan shows no bone or organ problems. Each test gets lower and I
Whiskeyriver
in
Advanced Prostate Cancer
4 months ago
UPDATE on my dad. A story of hope.❤️ #advancedPC
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
Hi my dad was diagnosed with advanced prostate cancer in Oct 2021. With Mets to spine, lungs, liver. He is 85. His PSA was 5000. (Today 28 months later his PSA is 0.031 and still dropping) He was told at the time he had 2 months to live. He had spinal surgery the morning after being diagnosed because
YC22
in
Advanced Prostate Cancer
2 months ago
Bas Bloem: “Is there an upside to having PD?“
https://www.mediflix.com/topics/parkinsons-disease/video/silver-linings-with-pd https://m.facebook.com/mediflixtv/videos/bas-bloem-md-phd-silver-lining-mediflix-news/ A team of researchers, including four individuals with lived experience and two scientists, posted a call on social media for experiences
https://www.mediflix.com/topics/parkinsons-disease/video/silver-linings-with-pd https://m.facebook.com/mediflixtv/videos/bas-bloem-md-phd-silver-lining-mediflix-news/ A team of researchers, including four individuals with lived experience and two scientists, posted a call on social media for experiences
Esperanto
in
Cure Parkinson's
4 months ago
Faecal loading
I have been given so many laxatives, stool softeners by my gp I am thoroughly confused and still haven’t got rid of it from September! I have Laxido, went up to 8 sachets for 2 days. Like soup. Docusate. Ispaghula Husk half a sachet a day. I have used syrup of figs, senakot, I don’t know if I
I have been given so many laxatives, stool softeners by my gp I am thoroughly confused and still haven’t got rid of it from September! I have Laxido, went up to 8 sachets for 2 days. Like soup. Docusate. Ispaghula Husk half a sachet a day. I have used syrup of figs, senakot, I don’t know if I
Laxido21
in
IBS Network
4 months ago
Luteolin, ellagic acid and punicic acid and prostate cancer metastasis
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
Ok here we go again, excuse me if this was already gone over. I know Pomegranate has stated benefits, but in combo with these other supps may increase the benefits according to this study done on patients and our favored friends, the mice- lol. For me if it can't harm and may help then why not.
85745
in
Advanced Prostate Cancer
4 months ago
Maybe because of "careful" patient selection, but still great: PSA Undetectable in First Patient Cu-67 SAR-bisPSMA
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Positive results for mCRPC, very positive. Sorry if I have already posted this (my mind is not so sharp lately...was it ever??). "The first patient with prostate cancer dosed with 2 cycles of 8GBq of 67Cu-SAR-bisPSMA has reached undetectable prostate specific antigen (PSA) levels using PET" https:/
Maxone73
in
Advanced Prostate Cancer
4 months ago
Update on study of diagnostic journeys in lupus/SLE, Sjögren's and UCTD.
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
Hi
Thanks to interviewees and organisations
I'd like thank all of those who I interviewed for this study in the last few months and to thank Lupus UK, the British Sjögren's Association, and APS Support UK for their help in publicising the study. The interviews provided really valuable insights
RupertW-SUMS
in
LUPUS UK
7 months ago
anxiety/holding down jobs
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
dolphin66stag
in
Pernicious Anaemia Society
7 months ago
nausea and vomiting
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
my husband has been on dialysis for just over 12 months now but suffers with severe nausea and vomiting. He is unable to keep food down or even attempt to eat some days . Is this a normal side effect of dialysis please and if so is there any treatment. We went to our GP but he was useless and unable
Matilda6146
in
Early CKD Support
4 months ago
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