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Unsure how to proceed after flare continues
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
I wrote awhile back about having a return of PMR symptoms after successfully (over a year and a half) tapering to 5mg and staying on that dose for two months. The weather had gotten a lot colder here in Seattle and I attributed the flare partly to that. I increased my dose to 10mg for a week and had
Donna5658
in
PMRGCAuk
1 month ago
Sustaining friendships in the 21st century
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
jeeves19
in
Cure Parkinson's
1 month ago
AASLD organization
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
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Coping
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
Rawai
in
British Liver Trust
1 month ago
Levodopa effect on AF?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
fleckynyde
in
Atrial Fibrillation Support
1 month ago
Has methotrexate caused liver damage
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
Beanyynwa
in
NRAS
1 month ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
first line treatment with bendamustin and rithoximab
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
I had 6 month first line treatment with bendamustin and rithoximab in 2022 september ended. .when i start my treatment my numbers was very high wbc 146 rbc was low in 2022 janeuary the numbers was wbc126 rbc 3.23 hgb 10.9 plt 135 LDh 920. because of high in ldh one of recent doctor said may be
09123836306
in
CLL Support
1 month ago
highest liver - don’t know why think it’s thyroid
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Hi any idea why so high Zero alcohol drugs or sex I did hve carbs for a week as needed to put on weight I had Hida scan 5 days before test - gallbladder fine I stopped all supplements except NAC for a week I used to take milk thistle before and my Enzymes were lower . Everyone warns against
Chouchou1234
in
Thyroid UK
1 month ago
PSA rise
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
Howard53545
in
Advanced Prostate Cancer
1 month ago
PSA rise due to physical activity
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
Ian99
in
Advanced Prostate Cancer
1 month ago
Concern about having more radiation to prostate after 43 external beam treatments 15 years ago
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
15 years ago my husband had 43 radiation treatments after PSA reached 50 & his 3rd biopsy showed 1 core to have cancer., Gleason was 3-3. He has had Lupron injections since then. He was on 250mg of Zytiga with food and 5 mg Prednisone for 3 years until a year ago because PSA was creeping up & he was
Pickleball38
in
Advanced Prostate Cancer
1 month ago
Fibroscan results
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
Find Your Fibrosis ScoreDisease Diagnosis Liver Stiffness Result Your Liver Cholestatic Disease 2 to 7 kPa Is normal. 7 to 9 kPa Has moderate scarring. 9 to 17 kPa Has severe scarring. 17 kPa or higher Has cirrhosis.
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Wednesday's 'Word'
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
[u][i]
Hepatocytes -
[/i][/u] These are simply the cells of the liver. Each of these cells performs all of the functions of the liver - there is no difference in what any of them do for us. Liver failure occurs when there are not enough functioning hepatocytes to do all the functions they are
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Meeting with our oncologist for castrate resistance metastatic prostate cancer
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
lgutman
in
Advanced Prostate Cancer
1 month ago
Hemorrhagic Cyst
hi everyone, i have hemorrhagic cysts, diagnosed by internal ultrasounds by the gp. Are these what endometriomas are? Any information would be appreciated 😊
hi everyone, i have hemorrhagic cysts, diagnosed by internal ultrasounds by the gp. Are these what endometriomas are? Any information would be appreciated 😊
Bk27
in
Endometriosis UK
1 month ago
new PSA
my PSA rose from .04 in Jan to now .21 so it’s moving up. I assume this is still too low for a scan to determine where pc is at. I was undetected for 2 years after radiation of pelvic area.
my PSA rose from .04 in Jan to now .21 so it’s moving up. I assume this is still too low for a scan to determine where pc is at. I was undetected for 2 years after radiation of pelvic area.
Howard53545
in
Advanced Prostate Cancer
1 month ago
Healthy liver to Cirrhosis
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
Hello, approximately two years ago I was submitted to hospital with Jaundice after a binge drinking session. I was given an Ultrasound, and told that my results were “clear” and that my liver was normal sized and regular in outline. I was released the next day and given a prescription of Thymine .
DJK78
in
British Liver Trust
1 month ago
Bechets
I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was pregnant in 2020 that I started suffering with vaginal uslers to be told it was due to my pregnancy, they continued after my son was born to
I am still very much at the beginning of my journey. I have suffered from mouth ulsers most of my life with no diagnosis or reason to why. It was when I was pregnant in 2020 that I started suffering with vaginal uslers to be told it was due to my pregnancy, they continued after my son was born to
Mummyof7
in
Behçet's UK
1 month ago
Parkinson's Patients See Hope in Novel Stem Cell Repair Method
In work funded by The Michael J. Fox Foundation for Parkinson's Research (MJFF) and Science Foundation Ireland, published this week in the Journal of Neural Engineering, the team in the College of Medicine, Nursing and Health Sciences at University of Galway have shown that transplanting the immature
In work funded by The Michael J. Fox Foundation for Parkinson's Research (MJFF) and Science Foundation Ireland, published this week in the Journal of Neural Engineering, the team in the College of Medicine, Nursing and Health Sciences at University of Galway have shown that transplanting the immature
Farooqji
in
Cure Parkinson's
1 month ago
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