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Employer not being supportive about endometriosis / invasion of privacy
Hi all, I was wondering if anyone has any advice on how to approach having an employer who is not supportive of endometriosis / treatment, and consistently asking for a lot of detailed medical information? I’m 29, diagnosed with endo at 25. I had a surgery almost immediately after being diagnosed
Hi all, I was wondering if anyone has any advice on how to approach having an employer who is not supportive of endometriosis / treatment, and consistently asking for a lot of detailed medical information? I’m 29, diagnosed with endo at 25. I had a surgery almost immediately after being diagnosed
BlueMorpho13
in
Endometriosis UK
1 year ago
I am on the edge
I am so struggling right now. Had copper coil put in for couple of months now. Stabbing pain, periods lasting for over a week, very strong bleeding I never had before (cannot manage to get to toilet fast enough to change a pad, ruined clothes, car seat, embarrassed myself etc But the worst is to come
I am so struggling right now. Had copper coil put in for couple of months now. Stabbing pain, periods lasting for over a week, very strong bleeding I never had before (cannot manage to get to toilet fast enough to change a pad, ruined clothes, car seat, embarrassed myself etc But the worst is to come
AiZe
in
BASHH
1 year ago
Stopping Cerazette
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
Bookworm3371
in
Endometriosis UK
1 year ago
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After diagnostic laparoscopy
Hi, I had my laparoscopy 5 weeks ago and have been diagnosed with endo (12 years in the making!!). They inserted a coil at the same time as this. Since then my symptoms and pain have become 10x worse. Has anyone had this? Not sure if it is my body getting used to the coil. But I have been in so
Hi, I had my laparoscopy 5 weeks ago and have been diagnosed with endo (12 years in the making!!). They inserted a coil at the same time as this. Since then my symptoms and pain have become 10x worse. Has anyone had this? Not sure if it is my body getting used to the coil. But I have been in so
EmmaSheri
in
Endometriosis UK
1 year ago
What to expect at my next appointment?
So I had my first appointment with a nurse at my GP surgery yesterday and hallelujah someone's actually listened to me! She has referred me to gynaecology. She's told me they might do a scan but will probably tell me to go on the coil as the only treatment I'll be offered is hormonal because of my age
So I had my first appointment with a nurse at my GP surgery yesterday and hallelujah someone's actually listened to me! She has referred me to gynaecology. She's told me they might do a scan but will probably tell me to go on the coil as the only treatment I'll be offered is hormonal because of my age
Bsjrnrdr141620
in
Endometriosis UK
1 year ago
Any advice
Hi all, I guess I’m here for some advice or just to know I’m not alone as I feel like I’m completely alone at the moment and either doctors don’t want to help me, or do want to help, but can’t! Bit of back story . . . I have always had awful menstruation pain, resulting in me being prescribed the
Hi all, I guess I’m here for some advice or just to know I’m not alone as I feel like I’m completely alone at the moment and either doctors don’t want to help me, or do want to help, but can’t! Bit of back story . . . I have always had awful menstruation pain, resulting in me being prescribed the
Skybluepinkpaint
in
Endometriosis UK
1 year ago
Does IUD help endo
I have doubled in size since getting my IUD and have starved myself to loose weight I’m down 10kg but smoky bmi is still really to get surgery I really want to take it out and try my diet and exercise without it to achieve weight loss but I’m scared that the pun will be agonising again. My doctor
I have doubled in size since getting my IUD and have starved myself to loose weight I’m down 10kg but smoky bmi is still really to get surgery I really want to take it out and try my diet and exercise without it to achieve weight loss but I’m scared that the pun will be agonising again. My doctor
Littlebug77
in
Endometriosis UK
1 year ago
Post op advice
I'm 2 weeks post laparoscopy and I'm struggling quite a bit with feeling generally overwhelmed with everything. I initially went in thinking I had endo in 3 main areas, but my operation ended up being 2.5 hours longer than originally estimated and ended up having the following removed: - 4cm cysts -
I'm 2 weeks post laparoscopy and I'm struggling quite a bit with feeling generally overwhelmed with everything. I initially went in thinking I had endo in 3 main areas, but my operation ended up being 2.5 hours longer than originally estimated and ended up having the following removed: - 4cm cysts -
Leanne102
in
Endometriosis UK
1 year ago
Missed miscarriage and endo
Hi warriors, Just wanted to share my story, because I feel so low and heartbroken, and I'm sure there are women here who can relate to my experience. The loss that comes with a miscarriage is hard enough, but then when I also have endo, it's that sinking feeling that my womb is just broken and it's
Hi warriors, Just wanted to share my story, because I feel so low and heartbroken, and I'm sure there are women here who can relate to my experience. The loss that comes with a miscarriage is hard enough, but then when I also have endo, it's that sinking feeling that my womb is just broken and it's
Meriel_Owen
in
Endometriosis UK
1 year ago
pink blood discharge ( mirena coil related or endo?)
hi all, I’ve had my endometriosis surgically removed last year in June and had the coil fitted then. everything has been fine so far but has taken a while for my body to settle down with everything especially with my hormones from being on zodalex for six months and then had the mirena coil fitted
hi all, I’ve had my endometriosis surgically removed last year in June and had the coil fitted then. everything has been fine so far but has taken a while for my body to settle down with everything especially with my hormones from being on zodalex for six months and then had the mirena coil fitted
Chester28
in
Endometriosis UK
1 year ago
Mirena coil
Does anyone have experience of mirena coil? I'm approaching 50 and my GP has suggested switching to that from Gedarel (combined pill), which I've been on for years with no problems. I've never liked the idea of the coil but they won't prescribe Gedarel after 50... Hopefully I'll have reached the menopause
Does anyone have experience of mirena coil? I'm approaching 50 and my GP has suggested switching to that from Gedarel (combined pill), which I've been on for years with no problems. I've never liked the idea of the coil but they won't prescribe Gedarel after 50... Hopefully I'll have reached the menopause
hedgehog74
in
Endometriosis UK
1 year ago
Help interpreting results & likelihood of diagnosis if I saw a private practitioner.
Good afternoon, I’m at my wit’s end and would very much appreciate help interpreting recent blood tests and symptoms. I previously posted a few weeks back with details of private tests carried out with Monitor my Health on 24/1/23. They were as follows: TSH 4.74 mu/L (0.27 - 4.2) FT4 13.9 pmol/
Good afternoon, I’m at my wit’s end and would very much appreciate help interpreting recent blood tests and symptoms. I previously posted a few weeks back with details of private tests carried out with Monitor my Health on 24/1/23. They were as follows: TSH 4.74 mu/L (0.27 - 4.2) FT4 13.9 pmol/
J972
in
Thyroid UK
1 year ago
6 weeks post excision surgery and still can’t walk far.
Hi, I’m 42 years old and I had a laparoscopy with four incisions 6 weeks ago. The surgeon said endo was severe and excised it from all of my reproductive organs and from my bladder, pelvic ligaments and an artery. They also removed endo cysts from both ovaries. Apparently everything was stuck together
Hi, I’m 42 years old and I had a laparoscopy with four incisions 6 weeks ago. The surgeon said endo was severe and excised it from all of my reproductive organs and from my bladder, pelvic ligaments and an artery. They also removed endo cysts from both ovaries. Apparently everything was stuck together
Frangipani8
in
Endometriosis UK
1 year ago
Endo and Merina Coil
Hey ladies! I've just come back from my first gynaecology appointment. I've been told I have very common symptoms that point to my pain being endometriosis related (I already have pcos) I was under the impression I was there to discuss the laparoscopy my Dr referred me for, however my Gyno said that
Hey ladies! I've just come back from my first gynaecology appointment. I've been told I have very common symptoms that point to my pain being endometriosis related (I already have pcos) I was under the impression I was there to discuss the laparoscopy my Dr referred me for, however my Gyno said that
Lilmissyaz
in
Endometriosis UK
1 year ago
mirena/ levosert IUD and bleeding
I have had my coil in for 4 years now and am due for it to be removed in a years time. During the whole time i have had it fitted i have not bled, only had the occasional bit of spotting. However, in the last few months i have noticed the spotting get heavier and i am now starting to have light bleeds
I have had my coil in for 4 years now and am due for it to be removed in a years time. During the whole time i have had it fitted i have not bled, only had the occasional bit of spotting. However, in the last few months i have noticed the spotting get heavier and i am now starting to have light bleeds
Rain-01
in
BASHH
1 year ago
endometriosis and hysterectomy
Hello. I very much want a hysterectomy as I have suffered with endometriosis for years I feel like this would be the answer. I have been on prostap injections for nine months this has reduced the pain a lot as it is completely stop my periods but I am not a fan of the hormone fluctuations which caused
Hello. I very much want a hysterectomy as I have suffered with endometriosis for years I feel like this would be the answer. I have been on prostap injections for nine months this has reduced the pain a lot as it is completely stop my periods but I am not a fan of the hormone fluctuations which caused
Prettythings1
in
Endometriosis UK
1 year ago
Mirena IUD
What’s everyone’s experience with the mirena coil? I have had mine for 4 months now and had it inserted whilst I was under for my lap. I have a new symptom of stinging pains and my cramps are unbearable?! Is it worth me sticking it out? My surgeon always says it is best to stick it as it hurts having
What’s everyone’s experience with the mirena coil? I have had mine for 4 months now and had it inserted whilst I was under for my lap. I have a new symptom of stinging pains and my cramps are unbearable?! Is it worth me sticking it out? My surgeon always says it is best to stick it as it hurts having
NeedEndoSupport
in
Endometriosis UK
1 year ago
Decapeptyl injections still bleeding unsure what to do?
Hi I have just joined I am 41 years old and currently waiting for a hysterectomy for fibroid and adenomyosis. She suspects endometriosis too but needs an mri to confirm this. I have been in pain suffering for years have tried endless pills and coil which was an awful 18 months of bleeding almost constantly
Hi I have just joined I am 41 years old and currently waiting for a hysterectomy for fibroid and adenomyosis. She suspects endometriosis too but needs an mri to confirm this. I have been in pain suffering for years have tried endless pills and coil which was an awful 18 months of bleeding almost constantly
LovelyLou81
in
Endometriosis UK
1 year ago
IUD removal
I want to have my copper IUD removed and struggling to find much information about preparation for it. What are the general recommendations? Thanks
I want to have my copper IUD removed and struggling to find much information about preparation for it. What are the general recommendations? Thanks
Curly-C
in
BASHH
1 year ago
Advice.
Hi everyone, I saw a consultant yesterday via Cancer pathway GP referral, I have had horrendous heavy painful periods for as long as I can remember, I saw a consultant 4 years ago who said I had large fibroids and fitted a mirena coil. My periods never changed! It has taken over my life, so yesterday
Hi everyone, I saw a consultant yesterday via Cancer pathway GP referral, I have had horrendous heavy painful periods for as long as I can remember, I saw a consultant 4 years ago who said I had large fibroids and fitted a mirena coil. My periods never changed! It has taken over my life, so yesterday
Marj27
in
Pelvic Pain Support Network
1 year ago
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