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Dienogest (Natazia, Visanne)
Hi ladies and those who menstruate. I was diagnosed 2 years ago on the 31st of this month and had a combination excision & ablation to remove endometriosis from my pelvis wall, ligaments and pouch of Douglas as well as hysterscopy and insertion of the coil. Sadly I only had 6 months of relief (until
Hi ladies and those who menstruate. I was diagnosed 2 years ago on the 31st of this month and had a combination excision & ablation to remove endometriosis from my pelvis wall, ligaments and pouch of Douglas as well as hysterscopy and insertion of the coil. Sadly I only had 6 months of relief (until
LEH199
in
Endometriosis UK
1 year ago
Period after coil removal
Hi I have endometriosis and adenomyosis and I’ve just had my coil removed to try for a baby. I got my coil out about a month ago and I was due my period 2 weeks ago and it’s still not come. I did a pregnancy test last week and then again today after a week. Both were negative. Has anyone else experienced
Hi I have endometriosis and adenomyosis and I’ve just had my coil removed to try for a baby. I got my coil out about a month ago and I was due my period 2 weeks ago and it’s still not come. I did a pregnancy test last week and then again today after a week. Both were negative. Has anyone else experienced
Buddyboo18
in
Endometriosis UK
1 year ago
Mirena coil and double desogestrel. Is it too much?
hi, first time posting. Short version - I currently have the coil in and my dr has just told me to double my desogestrel. Firstly, I’m worried about the safety of this? Secondly I really don’t feel I’m coping with the hormone overload. Has anybody else had this treatment before? Is it sustainable? Will
hi, first time posting. Short version - I currently have the coil in and my dr has just told me to double my desogestrel. Firstly, I’m worried about the safety of this? Secondly I really don’t feel I’m coping with the hormone overload. Has anybody else had this treatment before? Is it sustainable? Will
Overtherainbow123
in
Endometriosis UK
1 year ago
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Copper IUD and Endometriosis link
Hi, I’m curious to find out if having the copper coil (non hormonal one - not Mirena) may have triggered my endometriosis. Especially where mine was (uteral ligaments - behind the womb). Just wondered if anyone else has had a Copper coil and since suffered with Endo?
Hi, I’m curious to find out if having the copper coil (non hormonal one - not Mirena) may have triggered my endometriosis. Especially where mine was (uteral ligaments - behind the womb). Just wondered if anyone else has had a Copper coil and since suffered with Endo?
Irma-T
in
Endometriosis UK
1 year ago
Fibrotic Endometriosis
I have had an absolute joke of an endo journey. To cut a long story short - after years of scans, a coil for 'treatment', pain etc... I finally had a lap 1.5 yrs ago and was told i didn't have it - I had an mri a few months after the lap. The consultant wouldn't show me the report, even though I asked
I have had an absolute joke of an endo journey. To cut a long story short - after years of scans, a coil for 'treatment', pain etc... I finally had a lap 1.5 yrs ago and was told i didn't have it - I had an mri a few months after the lap. The consultant wouldn't show me the report, even though I asked
Ethel-Cloud
in
Endometriosis UK
1 year ago
9 weeks post op, still pain on one side, dark shade around kidney? Also new endometrioma found 😔
So at 6 weeks I posted about pain to one side, I was finally send to SAU yesterday for bloods and an ultrasound, my back is so tender to touch and they have found a dark spot in my kidney area? They don't know what it is but sent me home with a lot of pain killers and the promise of a CT scan to take
So at 6 weeks I posted about pain to one side, I was finally send to SAU yesterday for bloods and an ultrasound, my back is so tender to touch and they have found a dark spot in my kidney area? They don't know what it is but sent me home with a lot of pain killers and the promise of a CT scan to take
Pinkybow
in
Endometriosis UK
1 year ago
MRI result: no appointment set to discuss my results over two months later. Looking for private consultant recommendations in Surrey area
Hi everyone, It has been two months since I was emailed a very brief description of my MRI results. I have yet to be given an appointment to discuss them. Everytime I ring the gynecologist I am told an appointment has been "requested", which is what I was also told two months ago. The MRI has shown that
Hi everyone, It has been two months since I was emailed a very brief description of my MRI results. I have yet to be given an appointment to discuss them. Everytime I ring the gynecologist I am told an appointment has been "requested", which is what I was also told two months ago. The MRI has shown that
MoominBabe92
in
Endometriosis UK
1 year ago
Zoladex wearing off??
Hi all, I've been on Zoladex since march last year , last week I had my 16th and final jab. Since January I've been getting alot of the Endo flare ups but they haven't been as intense as previous. So whilst painful I could still function to some degree. Last night however I had some spotting and pain
Hi all, I've been on Zoladex since march last year , last week I had my 16th and final jab. Since January I've been getting alot of the Endo flare ups but they haven't been as intense as previous. So whilst painful I could still function to some degree. Last night however I had some spotting and pain
AMJ88
in
Endometriosis UK
1 year ago
Copper IUD
Just looking for advice really, I was on the depo injection after having my baby but it sent me crazy and major hormone overload so i came off of it. I had a copper coil inserted between of march so 8 weeks ago and I haven't stopped bleeding since, not one day. Is this normal and will it settle? I'm
Just looking for advice really, I was on the depo injection after having my baby but it sent me crazy and major hormone overload so i came off of it. I had a copper coil inserted between of march so 8 weeks ago and I haven't stopped bleeding since, not one day. Is this normal and will it settle? I'm
Motherduck2
in
BASHH
1 year ago
What would you do?
Hi everyone I'm just hoping for some advice. I have a lap booked in June with a general gynaecologist. It is purely diagnostic and won't be doing any excision so I would need another OP down the line. I've just had a long conversation with my GP who has endo herself. She is very firm on me getting the
Hi everyone I'm just hoping for some advice. I have a lap booked in June with a general gynaecologist. It is purely diagnostic and won't be doing any excision so I would need another OP down the line. I've just had a long conversation with my GP who has endo herself. She is very firm on me getting the
RWilliamson
in
Endometriosis UK
1 year ago
Recently diagnosed Endo
Hi I'm new and looking for some insight away from the walls of medics.My story starts 3 years ago, I was bleeding more than I wasn't. I had always had heavy periods since they started and a lot of pain and anaemia more often than not, but thought it was normal (I'm 46 now). After having 2 children I
Hi I'm new and looking for some insight away from the walls of medics.My story starts 3 years ago, I was bleeding more than I wasn't. I had always had heavy periods since they started and a lot of pain and anaemia more often than not, but thought it was normal (I'm 46 now). After having 2 children I
Booty42
in
Endometriosis UK
1 year ago
Hashimotos and which contraception?
Hi everyone, I recently believe my hormone levels have gone a bit haywire. I have really bad hormonal acne, the last 4 periods i have been extremely low during pmt and I have been off the combination pill for around 5 years. I am wanting to go back on contraception and toying between the two different
Hi everyone, I recently believe my hormone levels have gone a bit haywire. I have really bad hormonal acne, the last 4 periods i have been extremely low during pmt and I have been off the combination pill for around 5 years. I am wanting to go back on contraception and toying between the two different
sparklefairy
in
Thyroid UK
1 year ago
Help!
I am currently really struggling with my endo symptoms and at a total loss for what to do. I am under John Radcliffe Hospital in Oxford and was advised to call them between appointments if I was struggling, which I have done, just told be fobbed off being told I have an appointment in august, which doesn
I am currently really struggling with my endo symptoms and at a total loss for what to do. I am under John Radcliffe Hospital in Oxford and was advised to call them between appointments if I was struggling, which I have done, just told be fobbed off being told I have an appointment in august, which doesn
EndoTurtle
in
Endometriosis UK
1 year ago
Hysterectomy at 40 no endometriosis
I had my hysterectomy 2 days ago and although I am in pain I'm feeling relieved 😌. My consultant has told me he has found no signs of endometriosis and that my uterus was severely scarred from my 3 c-sections and my coil that had been embedded in my uterus. My bladder was stuck to my uterus and that
I had my hysterectomy 2 days ago and although I am in pain I'm feeling relieved 😌. My consultant has told me he has found no signs of endometriosis and that my uterus was severely scarred from my 3 c-sections and my coil that had been embedded in my uterus. My bladder was stuck to my uterus and that
PurpleChase39
in
Endometriosis UK
1 year ago
First symptoms
hello, Firstly I have a chronic autoimmune disorder diagnosed aged 17 of rheumatoid specialty. I’m now 61 med free for this condition but have become unwell recently. There is only a locum at the surgery offering telephone only appointments. Symptoms; Weight loss, bloating, change in toilet habits
hello, Firstly I have a chronic autoimmune disorder diagnosed aged 17 of rheumatoid specialty. I’m now 61 med free for this condition but have become unwell recently. There is only a locum at the surgery offering telephone only appointments. Symptoms; Weight loss, bloating, change in toilet habits
Hidden
in
My Ovacome
1 year ago
10 month long period and doctors say theres nothing they can do!
Hi, so a bit of back story, I have been on the mini pill since I was 12 (I'm no 20) I am limited to which contraception's I can be on due to blood clots in my family. I went on the pill to help with pain, this worked until I was around 17. The pain got worse, I was throwing up and missing work due to
Hi, so a bit of back story, I have been on the mini pill since I was 12 (I'm no 20) I am limited to which contraception's I can be on due to blood clots in my family. I went on the pill to help with pain, this worked until I was around 17. The pain got worse, I was throwing up and missing work due to
LuluBerry1
in
Endometriosis UK
1 year ago
MRI Result: Ovary Stuck to Womb yet gynaecologist says "no active endo"?
Hi everyone, It's been over one month since I was emailed my MRI results. I have yet to speak to my gynecologist to discuss them in depth. I waited a month to speak to my GP and she couldn't answer a single question. I am losing my mind. If anyone can shed any light on the results that would be so
Hi everyone, It's been over one month since I was emailed my MRI results. I have yet to speak to my gynecologist to discuss them in depth. I waited a month to speak to my GP and she couldn't answer a single question. I am losing my mind. If anyone can shed any light on the results that would be so
MoominBabe92
in
Endometriosis UK
1 year ago
problems possibly from my IUD
since having my IUD fitted nearly 3 years ago after my 3rd child I have suffered with thrush and BV re-occurring. it’s starting to get me down as there always seems to be something wrong and all the Drs do is fob me off a course of antibiotics here one pessary there and it never clears up! This has
since having my IUD fitted nearly 3 years ago after my 3rd child I have suffered with thrush and BV re-occurring. it’s starting to get me down as there always seems to be something wrong and all the Drs do is fob me off a course of antibiotics here one pessary there and it never clears up! This has
Mumofthree29
in
BASHH
1 year ago
Update
Hey, so a little update for anyone that remembers me .. iv had a meeting with my consultant, he said its defiantly not a cyst , and that the mass has high blood flow, he talked alot about it being cancer and didnt really touch on the possability that it could be benign , until i aksed and he said that
Hey, so a little update for anyone that remembers me .. iv had a meeting with my consultant, he said its defiantly not a cyst , and that the mass has high blood flow, he talked alot about it being cancer and didnt really touch on the possability that it could be benign , until i aksed and he said that
Sophali31
in
My Ovacome
1 year ago
Hormones - coil and patch
Has anyone been told to try the coil and the patch. I’m really struggling with endo pains three years after excision surgery and have a mirena coil fitted but have been told to try the patch as well to shut my cycle down. I really had having all these hormones put in my body and worried about the side
Has anyone been told to try the coil and the patch. I’m really struggling with endo pains three years after excision surgery and have a mirena coil fitted but have been told to try the patch as well to shut my cycle down. I really had having all these hormones put in my body and worried about the side
Nikneja
in
Endometriosis UK
1 year ago
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