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Good news
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and chemo, she started taking Olaparib and the disease has been stable since. I just wanted to share the good news with you, as she had a PET scan
Uniquem
in
My Ovacome
7 months ago
What’s the protocol for GP actioning full iron panel?
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
It’s become apparent that my daughter’s ferritin levels are deficient and she’s going to put in a request to her GP for a full iron panel. I routinely read here that one shouldn’t supplement with iron based on a low ferritin reading alone but I’d like to know what the supporting information for this
J972
in
Thyroid UK
5 months ago
TAPUR study
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting, or before, standard of care options, allows patients to trial off label approved drugs using genomics to identify specific targetable variations
muzzatron
in
SHARE Metastatic Breast Cancer
7 months ago
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Feeling a bit nervous. What next?
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my liver. I finished 6 rounds of chemo late Oct and had bloods and a CT scan. Chemo has shrunk the cancer in my liver so that was good news. My oncologist
Skyeplus
in
My Ovacome
7 months ago
Next steps after radiotherapy
Hi, In Oct 2023, My dad's MRI revealed that cancer had spread to few vertebral bones and has reached a rib bone. He got a PET scan and then underwent ~20 days of radiotherapy in Nov 2023. But his doctor has not asked him to do any follow-up tests after the radiotherapy ended. Is this the norm? Should
Hi, In Oct 2023, My dad's MRI revealed that cancer had spread to few vertebral bones and has reached a rib bone. He got a PET scan and then underwent ~20 days of radiotherapy in Nov 2023. But his doctor has not asked him to do any follow-up tests after the radiotherapy ended. Is this the norm? Should
QuestionsAbtMyDad
in
Prostate Cancer Network
7 months ago
Update on Cancer Diagnosis
Correction to recent post: I should have stated that I have been recently diagnosed with Lung Cancer. I could not see anywhere that I could edit my Post.
Correction to recent post: I should have stated that I have been recently diagnosed with Lung Cancer. I could not see anywhere that I could edit my Post.
cpt13
in
NRAS
7 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
5 months ago
Active B12 levels
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
Fortie
in
Thyroid UK
5 months ago
Coroner: Vitamin D packs should outline ‘serious risks’ after overdose death
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
helvella
Thyroid UK
in
Thyroid UK
5 months ago
SE's on Cabazitaxel/Carboplatin Combo
Fellow chemo warriors: I'm hoping your experiences can shed some light on my latest treatment variation. Long story short: I had 3 docetaxel infusions with zero side effects. Unfortunately, the response was only partial, so last week I started on Cab/Carboplatin combo. This has been a very different
Fellow chemo warriors: I'm hoping your experiences can shed some light on my latest treatment variation. Long story short: I had 3 docetaxel infusions with zero side effects. Unfortunately, the response was only partial, so last week I started on Cab/Carboplatin combo. This has been a very different
CrocodileShoes
in
Advanced Prostate Cancer
7 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
7 months ago
Restart
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
I completed couch to 5k a few years ago & loved the experience - I was then addicted to running, to the freedom, how it helped clear my mind, distressed me, made me fitter, I could go on . However in November 2022 I got the worst news ever- I had cancer - by December 25th I was laid in hospital after
MissTwiggy
Graduate
in
Couch to 5K
7 months ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
5 months ago
Prostatic Artery Embolization
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
I’m 67 year old and have been suffering with BPH for years. Don’t want to do TURP or lasers. I’m interested in doing PAE. Has anyone had this procedure done. Does it work. I had a cystoscope and the urologist found a medial lobe at the neck of the bladder. Would PAE work if the blockage is located there
Roenken
in
Men's Health Forum
7 months ago
WHAT ARE THE CURRENT EFFECTIVE SALVAGE TREATMENTS IN CASE OF A REOCCURRENCE IF YOU HAVE HAD SBRT,IMRT, WITH PLACEMENT OF GOLD BARS?
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
It appears that if you had SBRT or like myself IMRT and you were given
gold markers
you cannot do any of the following
salvage treatments in case of a reoccurrence
: Proton therapy, Hifu, Tulsa Pro , Etc. Is this true???? Again a significant fact left out before treatment...
In addition
JWS13
in
Advanced Prostate Cancer
7 months ago
anyone else feel wierd after discontinuing Piqray / Faslodex?
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
LDR1
in
SHARE Metastatic Breast Cancer
7 months ago
GP disagrees with diagnosis of osteoporosis
I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteoporosis and gave me a leaflet about it and an information sheet about Alendronic acid. She said GP would contact me when he got the results to start me on AA. Last week I got a text from GP saying “your bone thickness is
I had a Dexa scan 2 weeks ago and the lady who did the scan told me I had osteoporosis and gave me a leaflet about it and an information sheet about Alendronic acid. She said GP would contact me when he got the results to start me on AA. Last week I got a text from GP saying “your bone thickness is
Mfaepink1973
in
PMRGCAuk
9 months ago
Reacting to piqray.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Timtam56
in
SHARE Metastatic Breast Cancer
7 months ago
Indigestion Medications
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Galaxy2
in
Gluten Free Guerrillas
5 months ago
HGSC 3B
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and now 60 and im waiting on scan but im worried. Has anyone else been in similar position?
0151tmac69
in
My Ovacome
6 months ago
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