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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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FLAIR Trial – Experiences post FCR – Recovery from Red Cell Cytopenia and Neutropenia
-3-
fcr
https://healthunlocked.com/cllsupport/posts/131702028/flair-trial-ernieuk-dehydration-in-round-4-
fcr
-and-home-made-soup https://healthunlocked.com/cllsupport/posts/131792445/flair-trial-ernieuk-more-dehydration-round-5-
fcr
https://healthunlocked.com/cllsupport/posts/131948274/flair-trial-ernieuk-final-round
-3-
fcr
https://healthunlocked.com/cllsupport/posts/131702028/flair-trial-ernieuk-dehydration-in-round-4-
fcr
-and-home-made-soup https://healthunlocked.com/cllsupport/posts/131792445/flair-trial-ernieuk-more-dehydration-round-5-
fcr
https://healthunlocked.com/cllsupport/posts/131948274/flair-trial-ernieuk-final-round
Ernest2
in
CLL Support
8 years ago
Happy day / complete remission
I received my results after finishing my
FCR
/Duvelisib trial treatment August 20th. And I wanted to share my good news with you all. I had a bone marrow biopsy done 2 weeks ago and the result is a have achieved a complete remission. I am so happy.
I received my results after finishing my
FCR
/Duvelisib trial treatment August 20th. And I wanted to share my good news with you all. I had a bone marrow biopsy done 2 weeks ago and the result is a have achieved a complete remission. I am so happy.
Dinasantos
in
CLL Support
8 years ago
Second treatment looming
The Oncologist decided to commence treatment right away which consisted initially of Rchop for the initial infusions and then
FCR
which were completed in October of that year. Bone marrow biopsys revealed a complete remission and I continued to lead an active life .
The Oncologist decided to commence treatment right away which consisted initially of Rchop for the initial infusions and then
FCR
which were completed in October of that year. Bone marrow biopsys revealed a complete remission and I continued to lead an active life .
plett1234
in
CLL Support
8 years ago
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ACP 196
If I am I'm less willing to undertake
FCR
. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
If I am I'm less willing to undertake
FCR
. Does anybody know anything about the btk inhibitor ACP 196. How is it different to Ibrutinib?
Kenn123
in
CLL Support
8 years ago
FCR for IGHV unmutated
Hi, I've pulled the
FCR
arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment.
Hi, I've pulled the
FCR
arm in a clinical trial in UK (was hoping for Ibrutinib). I've been 5 years w and w and haven't received any treatment. Extreme fatigue and large nodes forcing me into treatment.
Kenn123
in
CLL Support
8 years ago
About to start FCR
I'm about to start
FCR
after almost 5 years of watch and wait. Anyone been through it? Any advice?
I'm about to start
FCR
after almost 5 years of watch and wait. Anyone been through it? Any advice?
Kenn123
in
CLL Support
8 years ago
Shingles with CLL
Hi all Has anyone had shingles post
FCR
. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Hi all Has anyone had shingles post
FCR
. Ive had it for a week now and just finished a course of Aciclivor 800mgs 5 x a day. Spread of the rash is continuing although slower. Anyone have any idea how long this painful virus lasts and any advice for dos and donts thanks.
Mick491
in
CLL Support
8 years ago
FCR vs imbruvica first line
I was wondering what people's opinion was for
FCR
vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with
FCR
which is the recommended standard treatment per current guidelines.
I was wondering what people's opinion was for
FCR
vs imbruvica first line for moderate risk (unmutated, +Zap70, normal FISH for me) patients. With my genetics, I should expect a average response ~5 years with
FCR
which is the recommended standard treatment per current guidelines.
nkferg
in
CLL Support
8 years ago
6-month post FCR
A year ago, before
FCR
-Lite I wouldn't be able to watch TV at night much at all without falling asleep while watching (and while fast forwarding LOL) and that would be a show that started at 8pm! I would fall asleep during teaching etc.
A year ago, before
FCR
-Lite I wouldn't be able to watch TV at night much at all without falling asleep while watching (and while fast forwarding LOL) and that would be a show that started at 8pm! I would fall asleep during teaching etc.
rlyndecker
in
CLL Support
8 years ago
Pneumonian prevention
I was treated with
FCR
in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics to take as a preventative measure as i come to the period i normally get unwell.
I was treated with
FCR
in 2010/11 and managed 5 treatments. At my last appiontment i told my consultant of my concerns for this winter and he has given me 3 months of antibiotics to take as a preventative measure as i come to the period i normally get unwell.
Mick491
in
CLL Support
8 years ago
What normally triggers the start of first treatment
Two scans and 4 blood tests later, my oncologist says I now qualify for treatment, and would I like to join a clinical trial (
FCR
v. Ibrutinib + rituximab). He quotes ( I think) white blood cell count, which went up from 9 to 66 in that year. The thing is, i don't feel unwell at all.
Two scans and 4 blood tests later, my oncologist says I now qualify for treatment, and would I like to join a clinical trial (
FCR
v. Ibrutinib + rituximab). He quotes ( I think) white blood cell count, which went up from 9 to 66 in that year. The thing is, i don't feel unwell at all.
Graham64
in
Healthy Eating
8 years ago
4 weeks post FCR
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so. Doctors are pretty convinced its a virus as the blood results and cultures don't show an infection, and that it will eventually clear. In with the Prof
jackhammer
in
CLL Support
8 years ago
FCR Cycle 1
Hi, My dad is on day 2 of cycle 1 of
FCR
. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Hi, My dad is on day 2 of cycle 1 of
FCR
. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you
Lena2016
in
CLL Support
8 years ago
FCR stopped after cycle 5
FCR
no big deal as I've written before in response but it's so good to finish. Life back to normal with energy. Yippee!
FCR
no big deal as I've written before in response but it's so good to finish. Life back to normal with energy. Yippee!
devonrr
in
CLL Support
8 years ago
FCR-neutrophils
Hi All, I've just finished 6 rounds of
FCR
, last infusion 2 weeks ago 13th July.I have been hospitalised twice during rounds 3 and 4 with neutropenic sepsis and then had a rest bite of a further 2 weeks before going on to round 5 for my neutrophils to come up and were at 1.1 on treatment day.
Hi All, I've just finished 6 rounds of
FCR
, last infusion 2 weeks ago 13th July.I have been hospitalised twice during rounds 3 and 4 with neutropenic sepsis and then had a rest bite of a further 2 weeks before going on to round 5 for my neutrophils to come up and were at 1.1 on treatment day.
jackhammer
in
CLL Support
8 years ago
New PSP Diagnosis
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Hi, After 3 years living with a PD diagnosis, my husband's new dr believes he has PSP. I have read some info about this, but wonder how a definite diagnosis could be made. It seems from what I read that PSP is worse than PD. I pray the dr is wrong, but we would like to know for sure. He has never
Babowen898
in
PSP Association
8 years ago
Untreated Aussies needing treatment - great clinical trial just for you
Three rounds of
FCR
Jan 2013 -MRD+ remission, relapsed Jan 2015 - clinical trial of ABT-199 plus Obinutuzimab started Nov 2015 - blog: http://www.abtandme.com
Three rounds of
FCR
Jan 2013 -MRD+ remission, relapsed Jan 2015 - clinical trial of ABT-199 plus Obinutuzimab started Nov 2015 - blog: http://www.abtandme.com
Debinoz
in
CLL Support
8 years ago
Severe anemia
Since diagnosis at the beginning of May I have completed three rounds of
FCR
treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs).
Since diagnosis at the beginning of May I have completed three rounds of
FCR
treatments. The first cycle went well and before second cycle my blood counts were close to normal (low lymphs).
Elremsetay
in
CLL Support
8 years ago
Meds changed without notice.
My husband has been on sinemet 125mg 5× daily and sinemet cr at bed time. This Works well for him. The new pharmacy assistant has been wanting to put his parkinsons meds in with his other blister packs . These are administered wirh meals and bed time. Where his sinemet is given 8am 11am 2pm 5pm and
My husband has been on sinemet 125mg 5× daily and sinemet cr at bed time. This Works well for him. The new pharmacy assistant has been wanting to put his parkinsons meds in with his other blister packs . These are administered wirh meals and bed time. Where his sinemet is given 8am 11am 2pm 5pm and
Noella21
in
Cure Parkinson's
8 years ago
The unspeakable side effects of a bit of chemo ( bums and faries)
Recovering well from the trauma of the first round of
FCR
BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ...
Recovering well from the trauma of the first round of
FCR
BUT now learning that it's not all plain sailing... Having had the most horrendous diarrhoea last week... Sorry for graphic details .... Which was rancid and bright yellow ... Like piccalilli ...
Bethan49
in
CLL Support
8 years ago
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