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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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splashsplash
UK based, CLL for 15 years, Treatments: FC,
FCR
, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
UK based, CLL for 15 years, Treatments: FC,
FCR
, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
splashsplash
in
CLL Support
4 months ago
Chronic Lymphocytic Leukemia Therapy Guided by Measurable Residual Disease
at 3 years); results for overall survival also favored ibrutinib–venetoclax over
FCR
(98.0% vs. 93.0% at 3 years).
at 3 years); results for overall survival also favored ibrutinib–venetoclax over
FCR
(98.0% vs. 93.0% at 3 years).
Jm954
Administrator
in
CLL Support
5 months ago
Shingrix side effects
Reminds me of going through
FCR
! This is day four after the second vaccine and I’ve finally started to improve, but still pressure in my head, wobbly legs and tiredness. ☹️
Reminds me of going through
FCR
! This is day four after the second vaccine and I’ve finally started to improve, but still pressure in my head, wobbly legs and tiredness. ☹️
Mandy56
in
CLL Support
2 months ago
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Ibrutinib stopped working, what’s next
Morning all,a quick recap on journey so far,
FCR
treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January Rituximab and Ventoclax for 2 years, just wondering if there are any alternatives?
Morning all,a quick recap on journey so far,
FCR
treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January Rituximab and Ventoclax for 2 years, just wondering if there are any alternatives?
Stacky66
in
CLL Support
4 months ago
Solutions needed to manage nerve pains ( Post herpetic neuralgia ) after shingles .
Had
FCR
as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir.
Had
FCR
as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir.
Oldscores1
in
CLL Support
2 months ago
Transformation of Richter's Transformation Treatment to combination targeted therapy - tislelizumab +zanubrutinib (ASH 2023)
58.3% in patients with Richter's transformation" [/i] [i] [/i] Here's the paper from German CLL study group authors at the University of Cologne [i]https://www.nature.com/articles/s41591-023-02722-9[/i] [i] [/i] *R-CHOP is a combination of; R = Rituximab, an anti-CD20 monoclonal antibody, the 'R' in
FCR
58.3% in patients with Richter's transformation" [/i] [i] [/i] Here's the paper from German CLL study group authors at the University of Cologne [i]https://www.nature.com/articles/s41591-023-02722-9[/i] [i] [/i] *R-CHOP is a combination of; R = Rituximab, an anti-CD20 monoclonal antibody, the 'R' in
FCR
AussieNeil
Administrator
in
CLL Support
5 months ago
uMRD 6
Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles of
FCR
due to profound neutropenia. I just learned from my oncologist that I can’t get the UMRD6 test because we had no bone marrow biopsy done before treatment.
Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles of
FCR
due to profound neutropenia. I just learned from my oncologist that I can’t get the UMRD6 test because we had no bone marrow biopsy done before treatment.
skipro
in
CLL Support
1 month ago
secondary cancers
Besides skin cancers ( I've had 13 since
FCR
in 2018). What other types of secondary cancers we get and 3. How and how often should we be screened thx Skipro
Besides skin cancers ( I've had 13 since
FCR
in 2018). What other types of secondary cancers we get and 3. How and how often should we be screened thx Skipro
skipro
in
CLL Support
5 months ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with
FCR
from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018.
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with
FCR
from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018.
alipali
in
CLL Support
2 months ago
R-CHOP Treatment
After
FCR
chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4.
After
FCR
chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4.
scorpio74944
in
CLL Support
5 months ago
Windermere
I had
FCR
in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
I had
FCR
in 2012 was in remission until 2018. Then started ibrutinib and still on it, how long is it likely to keep me in remission.
Windemere
in
CLL Support
9 months ago
moving on to next treatment-considering Nurex
Have had multiple treatments
FCR
,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would appreciate their thoughts or other members on this clinical trial.
Have had multiple treatments
FCR
,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would appreciate their thoughts or other members on this clinical trial.
Osprey69
in
CLL Support
7 months ago
Reply to issues with Spleen
After a treatment cycle of
FCR
for 6 months and neutropenia sepsis for 10 days my course of treatment was stopped as the chemotherapy had had the desired effect and my oncologist advised it would have been dangerous for us to continue more treatment at this point as it would have made me even more poorly
After a treatment cycle of
FCR
for 6 months and neutropenia sepsis for 10 days my course of treatment was stopped as the chemotherapy had had the desired effect and my oncologist advised it would have been dangerous for us to continue more treatment at this point as it would have made me even more poorly
Roseneath69
in
CLL Support
14 days ago
Recently started Acalabrutinib
He was diagnosed with CLL in 2007 and has received
FCR
(twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the aggressive nature of the disease.
He was diagnosed with CLL in 2007 and has received
FCR
(twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the aggressive nature of the disease.
Healthgiddy
in
CLL Support
21 days ago
What’s next?
Less than a year later I started
FCR
. After completing
FCR
my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly PET scans and 3 MRD test using Flow Cytometry.
Less than a year later I started
FCR
. After completing
FCR
my blood counts rose steadily until I reached stage 4 which led to two years of Venclexta (400mg daily) treatments. Throughout all treatments I’ve had monthly bloodwork, yearly PET scans and 3 MRD test using Flow Cytometry.
Pokerguy
in
CLL Support
8 months ago
Relative risk for secondary bone marrow cancer within 5 years after initial CLL chemoimmunotherapy treatment (typically BR or FCR)
* Long term follow-up of those treated with
FCR
, has shown that if you make to 7 years in remission, your remission is likely to last 20+ years.
* Long term follow-up of those treated with
FCR
, has shown that if you make to 7 years in remission, your remission is likely to last 20+ years.
AussieNeil
Administrator
in
CLL Support
9 months ago
Wife getting MMR vaccine booster - isolate or not?
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6
FCR
treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles!
I'm an SLL patient, 55 years old, now about 2.5 years into remission after 6
FCR
treatments. I just recovered from a recent (and thankfully mild) bout of shingles. My shingles was so mild that my GP wasn't convinced it actually was shingles!
xpro3
in
CLL Support
2 months ago
hu CAR-T 19 IL-18 4th Generation Clinical Trial 90 Day Check-up With All of My Favorite Tests
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my
FCR
treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper.
It's been a long time since I have received a MRD negative diagnosis, 13 years to be exact, after my
FCR
treatment. All of the other treatments didn't require a BMB to confirm a negative reading, I had a few remissions, but they were just on paper.
steve5441
in
CLL Support
4 months ago
mild struggles
FCR
. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis.
FCR
. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis.
Corin850
in
CLL Support
7 months ago
acalabrutinib and tegretol
Hi everyone My 70-year-old father had
FCR
five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol.
Hi everyone My 70-year-old father had
FCR
five years ago, with great results. We’ve just been advised he needs to start treatment again, and they’ve chosen Acalabrutinib. He has been advised he had to go off his medication for epilepsy, which is Tegretol.
MelaniePet
in
CLL Support
9 months ago
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