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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Alcohol
Hi guys can anyone tell me if they had a few beers when on the
FCR
Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Hi guys can anyone tell me if they had a few beers when on the
FCR
Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Sailormoon11
in
CLL Support
6 years ago
Thoughts on CLL treatment and watch and wait
Why
FCR
may still be best for some patients? There’s a good reason we are still running a trial in the uk which compares
FCR
to ibrutinib alone or in combination: we don’t yet know what is best for everyone.
FCR
is chemo. But it is not as harsh as some chemo.
Why
FCR
may still be best for some patients? There’s a good reason we are still running a trial in the uk which compares
FCR
to ibrutinib alone or in combination: we don’t yet know what is best for everyone.
FCR
is chemo. But it is not as harsh as some chemo.
AdrianUK
in
CLL Support
6 years ago
What if venetoclax and/or ibritinib stops working?
I have had
FCR
when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group for GDC199 (venetoclax). Veneoclax worked well, but only gave me 1,5 years of no threatment.
I have had
FCR
when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group for GDC199 (venetoclax). Veneoclax worked well, but only gave me 1,5 years of no threatment.
JanAmsterdam
in
CLL Support
6 years ago
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Muscle Spasms - Not dehydrated
Post round five
FCR
with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these?
Post round five
FCR
with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these?
Paul_Mangold
in
CLL Support
6 years ago
Was anyone else frightened to start Ivig treatments ?
I like to consider myself a pretty tough chick but for some reason I’m scared to start then for fear of long term side effects like the
FCR
did to me by giving me autoimmune neutropenia. In order to supposedly fix that I need these Ivig drips two days in a row for 5 hours every 3 weeks.....
I like to consider myself a pretty tough chick but for some reason I’m scared to start then for fear of long term side effects like the
FCR
did to me by giving me autoimmune neutropenia. In order to supposedly fix that I need these Ivig drips two days in a row for 5 hours every 3 weeks.....
Luckyliss
in
CLL Support
6 years ago
International Prognostic Index Calculator
All the signs suggest that these results may well be much better in the era of
FCR
, Ibritunib, Venetoclax, other agents, and stem cell transplants where needed.
All the signs suggest that these results may well be much better in the era of
FCR
, Ibritunib, Venetoclax, other agents, and stem cell transplants where needed.
AdrianUK
in
CLL Support
6 years ago
Be positive
I'm reminded that a year ago I was mid
FCR
(6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA.
I'm reminded that a year ago I was mid
FCR
(6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA.
MattGGibson
in
CLL Support
6 years ago
Blood transfusion after first round of FCR
Next
FCR
in 10 days or so, when it’s all downhill again. Anyone else had this reaction and did it happen every time?
Next
FCR
in 10 days or so, when it’s all downhill again. Anyone else had this reaction and did it happen every time?
Mandy56
in
CLL Support
6 years ago
Syncope incident? vasodilation Sinemet CR 50-200; food as slow down?
Here is the bottom line for now. Has anyone successfully used food to lesson the impact of a Sinemet dose?
Here is the bottom line for now. Has anyone successfully used food to lesson the impact of a Sinemet dose?
aspergerian
in
Cure Parkinson's
6 years ago
F.C.R.
How long after each treatment do you feel reasonable?
How long after each treatment do you feel reasonable?
Bamboon62
in
CLL Support
6 years ago
My cancer is in remission – what does this mean?
This is despite the encouraging news that
FCR
patients with 'mutated status' CLL exceeding 7 years remission aren't experiencing relapses.
This is despite the encouraging news that
FCR
patients with 'mutated status' CLL exceeding 7 years remission aren't experiencing relapses.
AussieNeil
Partner
in
CLL Support
6 years ago
Levodopa and cerebral blood flow
I sense that I can feel blood vessels in or near my scalp changing as I head towards off-time and as the next dose as Sinemet CR (50-200) levodopa is transformed into dopamine inside my noggin. ×÷×÷× Effects of Levodopa on Regional Cerebral Metabolism and Blood Flow. Ji Hyun Ko, Renata P. Lerner, and
I sense that I can feel blood vessels in or near my scalp changing as I head towards off-time and as the next dose as Sinemet CR (50-200) levodopa is transformed into dopamine inside my noggin. ×÷×÷× Effects of Levodopa on Regional Cerebral Metabolism and Blood Flow. Ji Hyun Ko, Renata P. Lerner, and
aspergerian
in
Cure Parkinson's
6 years ago
Anyone had FCR as second line treatment?
Hi all has any one had
FCR
for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Hi all has any one had
FCR
for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Mick491
in
CLL Support
6 years ago
Sinemet: factors affecting variability - gastric emptying
Sage et al 1994 summarily present factors which affect availability of levodopa. Roos et al 1993 compare C/L levels after empty-stomach ingestion with C/L levels after C/L has been ingested with a meal. Chen et al 2012 describe a newer form of controlled release Sinemet: gastric-retentive extended-release
Sage et al 1994 summarily present factors which affect availability of levodopa. Roos et al 1993 compare C/L levels after empty-stomach ingestion with C/L levels after C/L has been ingested with a meal. Chen et al 2012 describe a newer form of controlled release Sinemet: gastric-retentive extended-release
aspergerian
in
Cure Parkinson's
6 years ago
Hospital response to lack of monitoring after first FCR
So please note that everyone on
FCR
, if you aren’t already aware of it. There is nothing I can really do to up my iron. Blood transfusion is only answer if HB drops below 75 again.
So please note that everyone on
FCR
, if you aren’t already aware of it. There is nothing I can really do to up my iron. Blood transfusion is only answer if HB drops below 75 again.
Mandy56
in
CLL Support
6 years ago
Treatmant for cll
My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start
FCR
on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start
FCR
on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
nikolle
in
CLL America Support
6 years ago
First. FCR treatment
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Mandy56
in
CLL Support
6 years ago
Lessons from five years of ibrutinib experience
And if
FCR
could have bought me a few years before ibrutinib have I then lost those years?
And if
FCR
could have bought me a few years before ibrutinib have I then lost those years?
AdrianUK
in
CLL Support
6 years ago
Questions for consultant?
Started
FCR
Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression but was told healthy bone marrow was compensating.
Started
FCR
Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression but was told healthy bone marrow was compensating.
AntonMB
in
CLL Support
6 years ago
Hello my name is Donna. 56 yrs old, CLL diagnosis 2002, started FCR in Jan.
I was looking online for info on neurological side effects of
FCR
because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect?
I was looking online for info on neurological side effects of
FCR
because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect?
Hidden
in
CLL Support
6 years ago
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